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I drink up to a pint of the concentrate undiluted every day with no problems at all. I mix it with taurine powder, d-Ribose powder, potassium gluconate powder and Honegar, which is a mixture of apple cider vinegar and honey. I drink this 'potion' throughout the day, adjusting the amount of Waller water to bowel tolerance. Done this for years, works for me - suppresses ectopics so Iby Gill - AFIBBERS FORUM
In answer to Whitehaven's question, here is my story, familiar to those who have been reading the forum for a long time, but maybe encouraging for newer readers. I had my first ablation in Bordeaux in January 2003 after many years of paroxysmal afib and 18 months of long term persistent afib. I was not a simple case - in those far off days very few EPs would have even attempted my ablatioby Gill - AFIBBERS FORUM
Some years ago I asked my EP here in London what he thought of FIRM. His reply: "There have been many false dawns." Gillby Gill - AFIBBERS FORUM
I find Holland and Barrett and other UK brands much lower dosage than equivalents in the USA, so you have to take more of them which makes them very expensive. Eg. in UK Seven Seas Omega-3 One a Day capsules have 120mg of Omega-3. In the US I can buy Nature's Bounty Mini Fish Oil capsules which have 450mg - a huge difference. I buy taurine and D-Ribose from Amazon UK and use lots of homeby Gill - AFIBBERS FORUM
Hi George I spent many many months researching ablations in those far off days, reading articles in scientific journals (of which I understood very little at that time) and asking any EP that I saw if s/he would have it done. They all said absolutely not, it was experimental and dangerous, the results were one third better, one third stayed the same, one third were worse. In UK only a coupby Gill - AFIBBERS FORUM
Shannon AF recurred 3 days after my initial ablation, so I had a second one immediately. Prof. Haissaguere said he thought he would find a gap in the lines but that was not the case. There was a very toxic focus in the coronary sinus which he said was extremely difficult to find and ablate. He was not sure that he had managed to get all of it. I have always wondered if this could be theby Gill - AFIBBERS FORUM
Since my ablations in Bordeaux in 2003 I have been in sinus rhythm but plagued by many ectopics, up to 8000 on a 24 hour Holter. Although they were very uncomfortable, like being kicked in the chest every few seconds, the EPs said they were a nuisance but not a problem. I started to take lots of magnesium, then added taurine, and finally potassium. I thought they had stopped, however anotherby Gill - AFIBBERS FORUM
Wolfpack - did you know that English pints are 20 fluid ounces, whereas American pints are 16 fluid ounces. So one US half pint cup is less than one UK cup. Might be worth mentioning this because there are people from all over the world on this forum. Gillby Gill - AFIBBERS FORUM
Jackie I have been taking Waller Water every day for many years, sometimes lots of it, up to bowel tolerance. It is a very easily available source of magnesium, and very cheap! I just wonder how much magnesium would you get if you took the Milk of Magnesia neat? I wouldn’t do it, of course because of bowel tolerance issues, I’m just curious! Gillby Gill - AFIBBERS FORUM
Another person who travelled with paroxysmal AF. I flew all round the world as a scuba diver, remote places like Papua New Guinea, Vanuatu, Palau, Yap etc. I didn’t take any medication, just used to sit out the dives when I had AF and jump right back in the water when it stopped. When the AF became long term persistent of course I stopped diving, but 3 months after ablation in Bordeaux I wasby Gill - AFIBBERS FORUM
Ablation Jaunuary 2003 in Bordeaux by Professor Michel Haïssaguerre, assisted by Dr (now Prof) Jaïs, after over 40 years of paroxysmal AF and 18 months of persistent AF. Second ablation 3 days later because of recurrence. He thought there was a gap In the lines but that was not the case - he found a very toxic focus in the coronary sinus which he said was extremely difficult to find and ablate.by Gill - AFIBBERS FORUM
Which organisation sets the standards for BP, BMI cholesterol etc in US and UK. Who funds them? I’m not being sarcastic (though that may come later). I really have no idea. Gillby Gill - AFIBBERS FORUM
Very interesting, impressive amount of experimentation and a great result. But Katesshadow's calcium was low not high. Have I missed something here? Gill (pronounced 'Jill' and female)by Gill - AFIBBERS FORUM
Mike You would have known if it was an MRI scan, I assure you! It used to be called NMRI - Nuclear Magnetic Resonance Imaging but the N was dropped because it had negative connotations. I had one (not heart related) and it takes place in the Department of Nuclear Medicine. You get injected with radioactive stuff then have to sit in a special shielded room while your body absorbs it. Theby Gill - AFIBBERS FORUM
Deniss An EP here in London once told me that ablation might not prevent AF from starting, but should stop it from sustaining itself. Sounds to me just like what is happening to you - the lines are doing exactly what they are supposed to do. I have experienced this many times. I have been in nsr since ablation in Bordeaux in January 2003, (will be 16 year anniversary tomorrow!) and that rby Gill - AFIBBERS FORUM
Pompon They follow a similar pattern to to my AF before it became persistent - I get loads, then it’s almost as though there has been a discharge of electricity and everything goes quiet. After a few days I get occasional ones, then they gradually build up until there is another 'discharge'. Nothing seems to change that pattern. Gillby Gill - AFIBBERS FORUM
Since my ablation in Bordeaux over 15 years ago I have been in nsr. But I get many many ectopics, almost 8000 on a 24 hour Holter, which don’t trigger AF. The docs say they’re harmless but I could take a small dose of bisoprolol if they bother me. They used to be very uncomfortable, like being kicked in the chest every few minutes, but if I take magnesium, potassium and taurine every day thaby Gill - AFIBBERS FORUM
Two ER doctors once told me that my ECG showed atrial fibrillation. When the EP consultant saw it he said it wasn’t AF, just runs of ectopics. It needs an expert to interpret the results correctly Gillby Gill - AFIBBERS FORUM
Interesting discussion! I have been in nsr for 15 years since ablation and touch up in Bordeaux, but since I am female and over 80 years old I should be taking anticoagulants. I choose not to for various reasons. I avoid medication of any kind unless it will be lifesaving - seems to me that all medications have side effects which then require another medication, which has side effects and soby Gill - AFIBBERS FORUM
I did loads of travelling while my AF was paroxysmal, scuba diving trips to very remote places like Papua New Guinea, Palau, Yap, New Caledonia, Vanuatu. Didn't have any problems. Paid extra premium on travel insurance to have cover for AF. I never dived during an AF episode but once I was back in nsr I was right back under water. When the AF became persistent I stopped travelling anby Gill - AFIBBERS FORUM
Mike I once had to go to A&E after knee surgery, when painkiller Tramadol gave me what I thought was AF. The A&E docs looked at the ECG and said yes, it was AF. I was devastated after about 10 years of NSR since ablation in Bordeaux. I took 5mg of bisoprolol, which I always carry with me, and was back in normal rhythm quite quickly However..... ...a few days later I saw the conby Gill - AFIBBERS FORUM
Collecting data? Gillby Gill - AFIBBERS FORUM
Mother, sister and brother all had afib. Gillby Gill - AFIBBERS FORUM
An EP in London once told me that the ablation would not prevent AF from starting but would make it impossible for it to sustain itself. Could it be that the lines are just doing what they are meant to do? I sometimes get a few minutes of what feels like AF but it stops quickly so I assume the ablation is still doing its job. Gill (Female, pronounced 'Jill', 15 years of nsr sinceby Gill - AFIBBERS FORUM
I have been in nsr since ablation and touch up in Bordeaux in January 2003. Since then I have always had many ectopics, up to 8000 on a 24 hour Holter. Prof. Haïssaguerre said they were a nuisance but not a problem, and that if they bothered me I could take a small dose of bisoprolol. I don’t like taking medication but they were extremely uncomfortable. My solution was supplements - magnesiby Gill - AFIBBERS FORUM
I had 3 cardioversions over the space of 18 months.. First one lasted 36 hours, second didn’t work at all, third, with anti-arrhythmic drugs, lasted 48 hours. I then went for ablation with one of the world's best in Bordeaux, still working after 15 years. Gillby Gill - AFIBBERS FORUM
Think I might be the longest - 15½ years. I had an ablation and touch up 3 days later in Bordeaux after years of paroxysmal AF and 18 months of longterm persistent AF. Get a fluttery feeling now and then but it feels like runs of ectopics not AF. Most crucial thing is to choose a maestro to do the job - I had Prof. Haïssaguerre, assisted by Dr. (now Prof.) Jaïs. Gill (female and pronounceby Gill - AFIBBERS FORUM
Ken is right, they dare not let you dive if you tick the heart condition box. Dive operators can’t be expected to know that AF isn’t going to kill you. I used to leave that box blank - the risk was mine and the dive operator would not have been blamed if something went wrong. Gillby Gill - AFIBBERS FORUM
I dived for many years with paroxysmal AF but I would sit out dives when it was actually happening. I stopped diving when it turned into long term persistent AF. 4 months after ablation in Bordeaux I was on a liveaboard dive boat in the Maldives. Gillby Gill - AFIBBERS FORUM
Carey is correct. Longstanding persistent AF was what I had before my Bordeaux ablation and touch up 15½ years ago. Gillby Gill - AFIBBERS FORUM