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My contact details for Bordeaux are out of date. Please can someone give me the name, email address and phone number of Prof. Jaïs's secretary? Gillby Gill - AFIBBERS FORUM
Thanks George, Carey and Anti-fib. He's still thinking about his choices but I think he definitely won’t be going down the amiodorone route! Gillby Gill - AFIBBERS FORUM
Many of you here will know my story - long term persistent AF, ablation in Bordeaux in January 2003, sinus rhythm since then. A year ago my husband age 79 was diagnosed with persistent AF - asymptomatic so we don’t know how long he has had it. He is on rate control medication and Apixaban anticoagulant and he feels fine. After several tests he had a phone consultation today with a consultantby Gill - AFIBBERS FORUM
Hi Jonathon Thank you for that information. My journey has been long!! It started many years ago, paroxysmal AF undiagnosed for many years, then finally diagnosed by chance in 1994. I tried various medications which all made me feel worse so during an episode I just used to rest and wait for it to stop. Over several years the episodes happened more often and lasted longer, until eventuby Gill - AFIBBERS FORUM
Jonathan Is your ablation to be done on the NHS or privately? And how long did you have to wait before it was scheduled? Gill (also in UK)by Gill - AFIBBERS FORUM
I’m writing this via Safari on my iPad. Gillby Gill - AFIBBERS FORUM
Thank you Jackie for letting us all know. I’m one of those old-timers and I think of Erling often when I drink daily Waller Water. So he was 92 years old? I think he had already reached quite some age when he taught himself biochemistry (?) and replicated the magical Australian magnesium bicarbonate water. Gillby Gill - AFIBBERS FORUM
Mike and Sam Please keep posting here about your plans. My husband might be heading for Bordeaux in the near future so it would be really useful for us to know the details. Much will have changed since my ablation there in 2003. Gillby Gill - AFIBBERS FORUM
Hi Mike He had appointments at King's cardiology in February and March but they were all cancelled because of Covid. They did get him on to Apixaban very quickly but nothing else. We don't know when the high heart rate started, he had felt quite ill for months by the time he collapsed in August but refused to contact the GP despite my urging. So in some ways it was his own doing,by Gill - AFIBBERS FORUM
Sorry to hear this, Mike, hope you’ll be able to get to Bordeaux soon. I might well be headed there once travel is possible because husband has long term persistent AF, so I will be relying on you for up to date information! Gillby Gill - AFIBBERS FORUM
Hi Aldona, so good to hear from you again after all this time - I well remember our chats when you were going to Bordeaux. The EP has suggested a cardioversion but with amiodorone, and husband isn’t happy to take that drug. As well, my own experience with three cardioversions (2 external and 1 internal) was that they lasted only a few days before AF returned. We don’t know yet what damage haby Gill - AFIBBERS FORUM
Jeff He has been in AF since it was first detected in February, asymptomatic so we don’t know how long he has had it. No cardioversion so far, the EP has proposed one with amiodorone on board. He is still having investigations/treatment for heart failure and we don’t yet know if he will be a candidate for ablation. Gillby Gill - AFIBBERS FORUM
Carey - he has decided to do exactly what you suggested, will stick with rate control until travel is allowed, then we will head for Bordeaux. George - yes, it’s because of the heart failure. Gillby Gill - AFIBBERS FORUM
My husband, age 79, was diagnosed with persistent AF in February, during treatment for something minor, not heart related. He was asymptomatic so we have no idea how long he had been in AF. Until that time he had been in good health, going to the gym three times a week. He was put on Apixaban (Eliquis) very quickly but then his EP appointments were all cancelled because of Covid. By Augustby Gill - AFIBBERS FORUM
A very long time ago, January 2003, in Bordeaux, I had an ablation and touch up under sedation rather than anaesthetic. It was very comfortable, no problems, and I quite enjoyed sleepily watching the flickering wires on the monitor above my head. Don’t know what the current practice is in Bordeaux. Still in nsr after almost 18 years. Most EPs in those days wouldn’t even try to ablate longby Gill - AFIBBERS FORUM
82 - F - 2 -17-and-counting. (Prof.. Haïssaguerre in Bordeaux January 2003) Gillby Gill - AFIBBERS FORUM
Susan.d Yes, sorry, I was replying to NLAMA and to George. Gillby Gill - AFIBBERS FORUM
Susan.d Prof Haïssaguerre said that if I lived locally he would have waited to see if it stopped by itself but since I had travelled from London he did it right away. In fact it was the right thing to do - he thought there might be a gap in the lines but that was not the case. There was a very toxic focus In the coronary sinus which he said was extremely difficult to find and ablate, andby Gill - AFIBBERS FORUM
Ablation January 2003 in Bordeaux after 18 months of long term persistent AF. Second ablation three days later because AF recurred. Since then nsr. That's over 17 years. Lots of ectopics but supplements damp them down so I hardly notice them. Regrets? Can't believe my luck in having it last so long. Gill (pronounced 'Jill' and female)by Gill - AFIBBERS FORUM
A while back I asked my EP about FIRM. He said, with a wry smile, "There have been many false dawns". Gillby Gill - AFIBBERS FORUM
Sam It was a very long time ago, but when I went to Bordeaux they did the TEE in the morning before doing the ablation later in the day. That was much easier (and cheaper) than having it done the week before in London. Gillby Gill - AFIBBERS FORUM
QuoteDavrosT I have IBS, so is that something I'll want to start at slowly? I also know nothing about IBS. This may not suit you at all. Maybe start with a small amount and gradually increase to bowel tolerance, then take a step back? Gillby Gill - AFIBBERS FORUM
I use Waller Water, get loads of magnesium from that. Cheap and easy to make, everything available in UK. Recipe is here: Gillby Gill - AFIBBERS FORUM
Allofus After many ynears of paroxysmal AF and 18 months of persistent AF I had ablation in Bordeaux in January 2003, followed three days later by a second because of recurrence. In those far off days very few EPs would even attempt ablation for persistent AF. Since then I have been in nsr - 17 years and counting. I get a lot of ectopics but supplements dampen them down so I hardly noticeby Gill - AFIBBERS FORUM
LaniB January 2003. I’ve written about it many times here, try searching my name Gillby Gill - AFIBBERS FORUM
Before my first attempt at ablation in 2002 in Bordeaux I had a TEE/TOE. I had been on Warfarin for 18 months and been meticulous about keeping my INR in the required range. They still found a clot behind the heart so the ablation had to be postponed. Might be different with the newer OACs. Gillby Gill - AFIBBERS FORUM
Seems to be available on Amazon UK I’ve never heard of the brand, no idea if it’s any good. Gillby Gill - AFIBBERS FORUM
My niece, who lives in a tiny village in the French Alps, has just been diagnosed with paroxysmal AF. She saw a cardiologist for the first time today, and he recommended that she get an ECG phone so that she can send him ECGs. He suggested a Withings watch because it was cheaper than Apple Watch. I have never heard of Withings and I suggested a Kardia Instead because I've used one myselfby Gill - AFIBBERS FORUM