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Re: Video interview with Dr Narayan re FIRM ablation - 12 years ago

Researcher (and others) If you click on the symbol next to my name in the green strip on one of my postings it brings up a page where you can send me a private mail. Gill

by Gill - AFIBBERS FORUM

Re: Video interview with Dr Narayan re FIRM ablation - 12 years ago

McHale Barry G posted that Dr Hocini told him that she cringes when she thinks of what they were doing in Bordeaux 5 years ago. My ablation there was 9½ years ago so was definitely a cringe ablation! However, if I had waited and stayed in persistent AF I would have lost 9½ wonderful years of living life to the full, travelling the world and scuba diving. I am happy with the decision I ma

by Gill - AFIBBERS FORUM

Video interview with Dr Narayan re FIRM ablation - 12 years ago

Video of Melanie Truehills interviewing Dr Narayan: If what he has found is replicated elsewhere this could be a major step forward. Gill

by Gill - AFIBBERS FORUM

Re: Longest clinical follow-up study Of Ablation results - 12 years ago

I have been reading research papers on AF ablation for the last 10 years, and this is the first time I have come across the name of Dr Josephson. I thought Professor Haissaguerre in Bordeaux, whose landmark study in 1998 is quoted in many texts, was the 'father'! Gill

by Gill - AFIBBERS FORUM

Re: Boston AF symposium daily blog by Dr. John M - 12 years ago

Thanks Jackie - some fascinating stuff in there. Eg People often ask here on the board what are the causes of AF.... From a session on the genetics of AF Dr John reports "Parental history doubles AF risk. Any first degree relative With AF increases risk by 40%". Gill

by Gill - AFIBBERS FORUM

Re: Back in afib after 7 months. Question about ablation - 12 years ago

Monty When I went to Bordeaux for ablation in 2003 I had had paroxysmal AF for many years, and persistent AF for 18 months. At that time the EPs I saw in London said they wouldn't have it done because it was experimental and dangerous. I ignored their advice and went anyway and I have never for a moment regretted my decision. I have now been In nsr for over 9 years, can exercise, can

by Gill - AFIBBERS FORUM

Making Waller Water on a tiny island in the Indian Ocean - 12 years ago

Husband and I are scuba diving on a tiny island in the Maldives. Bringing supplements as pills or powder wasn't a problem but what to do about Waller Water? Thought hard. Took an empty half-litre water bottle to the bar and after a little persuasion got them to fill it with club soda. Back in our hut chilled the soda in the mini bar then dug the Milk of Magnesia out of the suitcase and

by Gill - AFIBBERS FORUM

Re: PACs after ablation - 12 years ago

In Bordeaux they told me that everyone gets them, they are a nuisance but not a problem so just forget about them. Gill

by Gill - AFIBBERS FORUM

Re: comparison of 3 ablation strategies for persistent AF - 12 years ago

It's also worth looking at the Bordeaux 5-step approach. I have been in nsr for over 9 years since ablation and touch up there, after 18 months of continuous AF. Gill

by Gill - AFIBBERS FORUM

Re: catheter abalation with one catheter - 12 years ago

Karen In 2002 I was due to have an ablation in Bordeaux, France, and had a trans-oesophageal echocardiogram (TOE in UK or TEE in the US) beforehand. They found a clot behind my heart so the ablation had to be postponed. I had been on warfarin until a few days before the ablation but there was still a clot. The treatment in Bordeaux was injections of a particular form of heparin twice dail

by Gill - AFIBBERS FORUM

Re: So far, so good - 12 years ago

Great news, Lou, hope all continues to go well. Gill

by Gill - AFIBBERS FORUM

Re: ablation number two - 12 years ago

Bonne chance Lou! Gill

by Gill - AFIBBERS FORUM

Re: Waller Water - 12 years ago

Waller water is wonderful - easy to make, costs next to nothing and gives me lots of magnesium. Also means that I no longer need the occasional laxative - I just increase the amount of concentrate I use. Gill

by Gill - AFIBBERS FORUM

Re: Here comes 3rd ablation? - 12 years ago

Janet You have to go with the best that is available to you. Choices are limited by where you live and what you can afford. It isn't fair, but it is life. I was lucky in that living in England I could get to Bordeaux easily, and I had enough savings to pay for Prof. Haissaguerre himself to do the ablation. if I was in your situation I would go for the third ablation because living w

by Gill - AFIBBERS FORUM

Re: Bordeaux ablation - 12 years ago

Brings back memories of January 7th 2003 when I was there. Now into my 10th year of nsr - you are in very good hands, Adrian. Gill

by Gill - AFIBBERS FORUM

Re: Question for Erling - 13 years ago

Would the cider vinegar I add to my 'potion' reduce the PH? Gill

by Gill - AFIBBERS FORUM

Question for Erling - 13 years ago

Erling This question is prompted not by a need for information but just curiosity. When I make Waller Water, after the first shaking the bottle goes really hard. Then, after the second shaking, it implodes slightly and has hollows in the sides. What is happening? Gill

by Gill - AFIBBERS FORUM

Re: Ablation Cost in US? - 13 years ago

When I had my ablation in Bordeaux in January 2003 AF recurred after two days and a second ablation was done immediately at no extra cost. Of course things may have changed since then, but it would be worth asking them. Gill

by Gill - AFIBBERS FORUM

Re: To those who've had ablations - did it help enough to make it worth it? - 13 years ago

Ablation in Bordeaux January 2003, now into my 10th year of nsr. Gave me my life back, best thing I ever did. Gill

by Gill - AFIBBERS FORUM

Re: Bordeaux ablation - 13 years ago

Adrian I wish you well in Bordeaux. I had my ablation there more than 9 years ago, after being in AF 24/7 for 18 months. AF recurred after 2 days but they did a second ablation immediately and, except for one 2-hour episode 10 days later, I have been in sinus rhythm ever since. You will be in good hands. Gill

by Gill - AFIBBERS FORUM

New report on aspirin risk v. benefit - 13 years ago

From the Guardian newspaper in UK today -- "It's certainly time to add the prevention of cancer into the analysis of the balance of risk and benefits of aspirin. So far, all the guidelines have just been based on the prevention of strokes and heart attacks. This research really shows that the cancer benefit is as large as, if not greater than, the benefit in terms of preventing h

by Gill - AFIBBERS FORUM

Re: 5 years - 13 years ago

Aldona So pleased to her that you are still doing well after all that you went through. Long may it continue! Gill

by Gill - AFIBBERS FORUM

Re: Need recipe for Mott's Garden Cocktail or LS V8. Anyone? - 13 years ago

Murray I assume you saw the recipe for my low calorie 'potion', which I drink in three doses with meals? Here it is again just in case you didn't: 4 teaspoons potassium gluconate powder ½ teaspoon taurine powder 2 scoops D-Ribose powder 150 - 250mls Waller Water for extra magnesium (amount varies to keep me within bowel tolerance) Water to make this up to 500mls When

by Gill - AFIBBERS FORUM

Re: post eating ectopics, pavs, pacs etc - 13 years ago

Paul Post 2003 ablation I have had no afib but get thousands of ectopics in 24 hours, plus runs of bigeminy and trigeminy. They used to be very uncomfortable, like being kicked in the chest every few seconds. The docs told me they were a nuisance but harmless. I started taking magnesium, no difference, then added taurine, slight improvement, then finally added potassium and there was a hu

by Gill - AFIBBERS FORUM

Re: Veggie Pac Tamer/New Here/Taurine/Fast Heart Beat - 13 years ago

Erling Your numbers don't seem quite right. Can you translate them with this information from the side of the tubs? 1 teaspoon potassium gluconate powder = 3.48g 1/4 teaspoon Taurine powder = 675mg 1 scoop D-Ribose powder = 5 grams. (The scoop comes with the powder.) Gill

by Gill - AFIBBERS FORUM

Re: Veggie Pac Tamer/New Here/Taurine/Fast Heart Beat - 13 years ago

Nancy You asked "Has anyone made a recipe for Hans' pac tamer drink that uses vegetables instead of fruit? If so, I'd love to get the recipe" I take supplements to dampen down the thousands of PACs I get every day post successful ablation 9 years ago. I found Hans's PAC Tamer too high in calories so I make my own low calorie version, which has no fruit, as follows:

by Gill - AFIBBERS FORUM

Re: permanent afib - 13 years ago

Murray As far as I know, 'permanent' in this context doesn't mean 24/7. It means that AF does not respond to cardioversion, either external or internal. If cardioversion has not been attempted, or has failed, then the correct term is 'long term persistent' AF. Before my successful ablation I had been in continuous AF for 18 months. I had three cardioversions - firs

by Gill - AFIBBERS FORUM

Re: Cardioversion/Ablation - 13 years ago

Who did your previous ablations, and where? Is s/he one of the best in terms of skill and experience? If not, I would change EP, find one of the best, and try another ablation. Barry G, who posts here sometimes, was a very difficult case. He had many ablations but persevered, eventually going to Bordeaux three times but the last we heard he was happily in nsr and feeling great. Gill

by Gill - AFIBBERS FORUM

Re: A 45 Minute Catheter Ablation? Possible? - 13 years ago

Murray 10 years ago I was researching ablations for persistent AF, particularly in Bordeaux. I first saw Prof. Haissaguerre in September 2002 and told him that the EPs in London had said that his success rate was 20%. He said that had previously been true, but in May that year they had changed the way they did the procedure and their success rate was now 78%. That was when I decided to go

by Gill - AFIBBERS FORUM

Re: What do the docs think of supplements?? - 13 years ago

I don't think it is bizarre Murray. Medics ihere in England are forced to practise what they call evidence-based medicine. Since there is no money to be made from supplements no double blind trials are done, so there is no evidence. Gill

by Gill - AFIBBERS FORUM