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Re: Med ques, tachycardia - 7 months ago

QuoteAs Susan suggests, pushing your limits on flec is not something to trifle with. Yes, I also got accidentally overdosed on Flecainide. My doc prescribed 150 mg twice a day but for me this was an overdose as, due to genetics, I am a very slow metabolizer of the pathway it uses. It caused complete heart block

by Daisy - AFIBBERS FORUM

Re: Ablation for Flutter - 7 months ago

Quotecornerbax My LAA was sutured/closed, but as mentioned, the tissue surrounding that area can still allow for Afib. Are you saying that not all experienced EP's can ablate the tissue "around" the LAA? Because, again, mine is closed. If this is the case, this will be, yet, one more question I will ask my EP this week when I meet with them. Thank you. When we discuss isolati

by Daisy - AFIBBERS FORUM

Re: Ablation for Flutter - 7 months ago

Cornerbax, even though your LAA was sutured, from what I remember, it is still possible to have arrhythmias coming from the tissue surrounding it – check me on that Carey. And yes I have been Afib and Aflutter free since my ablation.

by Daisy - AFIBBERS FORUM

Re: Ablation for Flutter - 7 months ago

QuoteBut if I understand this correctly and am going between AFI and Aflutter the likelihood is that the Afib is on the left side and the Aflutter is on the right side and that it would be best to have them BOTH ablated at the same time, correct? I had both Afib and Aflutter going on during my ablation with Natale (no previous ablations). Both were in the left atrium and he took care of them bo

by Daisy - AFIBBERS FORUM

Re: Anesthesia for colonoscopy - 7 months ago

Thanks for sharing the discussion with your anesthesiologist—very interesting. I hope your recovery is going well and I guess that after the LAA isolation you will get a Watchman down the road?

by Daisy - AFIBBERS FORUM

Re: New Study: Fish Oil Increases Risk of A-Fib - 8 months ago

Fish oil is directly related to PACs for me. I’ve experimented with it so many times and always get that result.

by Daisy - AFIBBERS FORUM

Re: Anesthesia for colonoscopy - 8 months ago

In my experience the problem with colonoscopies is getting your electrolytes out of balance during the prep – not with the anesthesia which was fine.

by Daisy - AFIBBERS FORUM

Re: Ct results regarding watchman post 2 years check - 8 months ago

Quotesusan.d Why would a clot appear at 2 years if there was no clot at 6 weeks, 6 months, 9 months and a year? Good question! Natale has just found a few (even with patients on a half dose of Eliquis) so he is doing scans.

by Daisy - AFIBBERS FORUM

Re: Ct results regarding watchman post 2 years check - 8 months ago

QuoteStill curious if my watchman is sealed because of the mention of my BCV vein. The reason Natale is doing 2 year scans is not to check for whether the Watchman is sealed but rather to make sure there are no clots.

by Daisy - AFIBBERS FORUM

Re: Dosage - 8 months ago

QuotePamelaJean I hope you fired her! I sent her my Kardia strip and she told me to come right in. After some drama, she actually closed her practice 3 weeks later, leaving me without an EP or a cardiologist. That is when I called Natale!

by Daisy - AFIBBERS FORUM

Re: Dosage - 8 months ago

QuoteJohnBM P.S., i have sent a sample to a pharmacogenomics tester to see if there are better options for my meds. I have attached a list of the meds that are profiled, and recommendations for the different genotypes for flecinaide I am glad that you sent a sample to a pharmacogenomics lab. I want to really stress how important it is to dose Flecainide correctly if you have CYP 2D6. I have t

by Daisy - AFIBBERS FORUM

Re: Dr. Natale’s Watchman Protocols - 8 months ago

QuoteCarey If memory serves correctly, they've only seen the DRTs (device-related thrombi) with people who stayed on aspirin rather than low-dose Eliquis and those are the only people they're recommending get a 2-year scan. Well, I am on low-dose Eliquis and the two-year scan was recommended for me and I was told that though they had found about three clots at two years, not all of th

by Daisy - AFIBBERS FORUM

Re: Dr. Natale’s Watchman Protocols - 8 months ago

QuotePixie I read on this forum that because a few people have developed blood clots a year after their watchman implant, Dr. Natale is recommending a CT scan at the 2 year mark. Since I am approaching 2 years post watchman, I reached out twice to his office to see what the protocol is and who it applies to. I am getting no response, so I am asking any Dr. Natale folks on this forum if they hav

by Daisy - AFIBBERS FORUM

Re: Anyone taking Ribose? - 8 months ago

Quotesldabrowski I took it for several months as it is purported to help with heart arrythmia. Did not do a thing for me. I didn’t notice anything from it either.

by Daisy - AFIBBERS FORUM

Re: to ablate or not ? - 8 months ago

QuoteWilly Would you go to Natale for your first ablation or look for a local EP? I went to Natale for my index ablation, even though that meant traveling. I am glad I did! Everything went very smoothly, couldn't be better.

by Daisy - AFIBBERS FORUM

Re: PFA ablation - 8 months ago

Quotegloaming It is limited, at present, to PVI. If your case is more complicated, you'll have to return and be ablated using RF or cryo, whatever your physician feels is best for your case. Or, ask your EP if they will switch to RF, if necessary, after doing the PVI with PFA. This is only, of course, if there are other trigger areas contributing to your Afib.

by Daisy - AFIBBERS FORUM

Re: Euflexxa Injections and a-fib - 9 months ago

QuoteSueChef Thanks for your input, Daisy! Where you applying it to your knee area? If so, did you eventually have a knee replacement? Sue I was probably applying it to my knee as I do have pain there (It was a few years ago and I don’t remember as I have other areas of pain as well). I have not needed a knee replacement though.

by Daisy - AFIBBERS FORUM

Re: Euflexxa Injections and a-fib - 9 months ago

Quotediclofenac sodium topical gel 1% This actually triggered Afib for me. I tried it numerous times with the same results. I haven't heard of this being a problem for others though.

by Daisy - AFIBBERS FORUM

Re: natural blood thinners - 9 months ago

Quoteama1952 I guess they both work to stop blood clots but in different ways. Antiplatelet drugs prevent platelets from sticking together to form clots, while anticoagulants make it harder for the body to form clots in the first place. I have no idea which one is more effective in stopping clots. Yes, It depends on your medical history and why you were prescribed a “blood thinner.” Afib pati

by Daisy - AFIBBERS FORUM

Re: natural blood thinners - 9 months ago

Quoteama1952 Have you considered Policosanol? Here is some info from Cardiologist Dr. James Robert about this product derived from sugar cane- Interesting, but this is an anti-platelet rather than an anticoagulant so is not comparable to a drug like Eliquis which is an anticoagulant.

by Daisy - AFIBBERS FORUM

Re: Safety of pulsed field ablation in more than 17,000 patients with atrial fibrillation in the MANIFEST-17K study - 9 months ago

QuoteYuxi Saw Dr Reddy yesterday for my one-year PFA follow up. I had one episode 7 month after ablation, so it wasn't perfect, but I am very happy with my result. I had weekly episode prior to the ablation and could not tolerate meds. Since PFA is only for pulmonary veins, did Dr. Reddy do any RF work on other areas of your heart? Glad you are doing so well?

by Daisy - AFIBBERS FORUM

Re: Verapamil Allergy - 9 months ago

QuoteMeganMN Well, EP called today. My hemoglobin keeps dropping, liver function getting worse. EP said no more meds. Another ablation is the only option. Now I just have to figure out the who, when, and where after all this has passed. Who but me gets Pericarditis and Vasculitis in the same year? Unbelievable what you are going through! So sorry. Hope you can get a plan in place as soon as pos

by Daisy - AFIBBERS FORUM

Re: natural blood thinners - 9 months ago

Quotecalvin I have though of this for years. My question would be how do we test to see if they are working? Cal And I think this is the problem--there aren't standardized ways of measuring the very complex coagulation cascade that would show whether or not they are equivalent to the proven effects of the new generation of anticoagulants. For many of us, this would be too much of a risk a

by Daisy - AFIBBERS FORUM

Re: Multaq and kidney/liver problems? - 9 months ago

I had abnormal kidney and liver numbers while taking Multaq. Both my primary care and Natale’s lab brought this to my attention. They resolved after stopping Multaq.

by Daisy - AFIBBERS FORUM

Re: Adventures in Ablation - 9 months ago

Thanks for your post – I also found that it was very helpful to read the posts here from those who had already gone through ablation. I’m glad that yours went so smoothly, and yes, I think you will be very glad to get off all those drugs! I also had two cataract surgeries in the same year that I had my ablation on the followup from the cataract surgeries was almost more of a bother than the follo

by Daisy - AFIBBERS FORUM

Re: Why do atrial flutters tend to slow down? - 9 months ago

Then why did some of us get flutter before we ever had an ablation?

by Daisy - AFIBBERS FORUM

Re: Importance of Extra-Cardiac Vagal Stimulation during Catheter Ablation for Vagal Atrial Fibrillation: What is the Hidden Trigger? - 9 months ago

QuoteMeganMN What testing did you have for that Daisy? I have always wondered about that with my propensity for Orthostatic Tachycardia, etc. I had tilt table testing coordinated beat to beat with BP and 5 other types of autonomic testing administered by an autonomic specialist. Autonomic specialists are hard to find though and there is always a wait list. My testing showed orthostatic intolera

by Daisy - AFIBBERS FORUM

Re: Importance of Extra-Cardiac Vagal Stimulation during Catheter Ablation for Vagal Atrial Fibrillation: What is the Hidden Trigger? - 9 months ago

Quotesusan.d Paywall unfortunately but here was a teaser sentence: QuoteClinical results demonstrate that pulmonary vein isolation (PVI) remains the cornerstone of AF ablation in these patients, but additional ablation of the ganglionated plexi (GP) has been proposed as a complementary strategy. This interested me as I have autonomic dysfunction with too high “vagal tone,” according to auton

by Daisy - AFIBBERS FORUM

Re: Suspect HR on Fitbit Charge 5 - 9 months ago

I have a Fitbit and a Kardia and agree with Carey— the Fitbit isn’t very accurate and there is also a lag in reporting your HR. I have a pacemaker which is set to pace me anytime my HR is less than 70 yet my Fitbit often tells me the my HR is in the low 60s—go figure. I use the Fitbit for other things like steps, which it is pretty good at.

by Daisy - AFIBBERS FORUM

Re: PRECARDIOVERSION ASSESSMENT WITH CT COMPARED WITH TEE IN PATIENTS WITH ATRIAL FIBRILLATION OR FLUTTER - 9 months ago

QuotepixieIn a few months, it will be 2 years since my Watchman implant. I recently had a telehealth call with Dr. Natale and he told me the two year watchman scan applies to the folks who chose to take daily aspirin, not those who chose Eliquis. Since I am on the reduced Eliquis dose, it was not for me, That seems to vary from patient to patient as I am also taking Eliquis, as are two other N

by Daisy - AFIBBERS FORUM