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Re: PFA ablation - 1 year ago

Quotegloaming It is limited, at present, to PVI. If your case is more complicated, you'll have to return and be ablated using RF or cryo, whatever your physician feels is best for your case. Or, ask your EP if they will switch to RF, if necessary, after doing the PVI with PFA. This is only, of course, if there are other trigger areas contributing to your Afib.

by Daisy - AFIBBERS FORUM

Re: Euflexxa Injections and a-fib - 1 year ago

QuoteSueChef Thanks for your input, Daisy! Where you applying it to your knee area? If so, did you eventually have a knee replacement? Sue I was probably applying it to my knee as I do have pain there (It was a few years ago and I don’t remember as I have other areas of pain as well). I have not needed a knee replacement though.

by Daisy - AFIBBERS FORUM

Re: Euflexxa Injections and a-fib - 1 year ago

Quotediclofenac sodium topical gel 1% This actually triggered Afib for me. I tried it numerous times with the same results. I haven't heard of this being a problem for others though.

by Daisy - AFIBBERS FORUM

Re: natural blood thinners - 1 year ago

Quoteama1952 I guess they both work to stop blood clots but in different ways. Antiplatelet drugs prevent platelets from sticking together to form clots, while anticoagulants make it harder for the body to form clots in the first place. I have no idea which one is more effective in stopping clots. Yes, It depends on your medical history and why you were prescribed a “blood thinner.” Afib pati

by Daisy - AFIBBERS FORUM

Re: natural blood thinners - 1 year ago

Quoteama1952 Have you considered Policosanol? Here is some info from Cardiologist Dr. James Robert about this product derived from sugar cane- Interesting, but this is an anti-platelet rather than an anticoagulant so is not comparable to a drug like Eliquis which is an anticoagulant.

by Daisy - AFIBBERS FORUM

Re: Safety of pulsed field ablation in more than 17,000 patients with atrial fibrillation in the MANIFEST-17K study - 1 year ago

QuoteYuxi Saw Dr Reddy yesterday for my one-year PFA follow up. I had one episode 7 month after ablation, so it wasn't perfect, but I am very happy with my result. I had weekly episode prior to the ablation and could not tolerate meds. Since PFA is only for pulmonary veins, did Dr. Reddy do any RF work on other areas of your heart? Glad you are doing so well?

by Daisy - AFIBBERS FORUM

Re: Verapamil Allergy - 1 year ago

QuoteMeganMN Well, EP called today. My hemoglobin keeps dropping, liver function getting worse. EP said no more meds. Another ablation is the only option. Now I just have to figure out the who, when, and where after all this has passed. Who but me gets Pericarditis and Vasculitis in the same year? Unbelievable what you are going through! So sorry. Hope you can get a plan in place as soon as pos

by Daisy - AFIBBERS FORUM

Re: natural blood thinners - 1 year ago

Quotecalvin I have though of this for years. My question would be how do we test to see if they are working? Cal And I think this is the problem--there aren't standardized ways of measuring the very complex coagulation cascade that would show whether or not they are equivalent to the proven effects of the new generation of anticoagulants. For many of us, this would be too much of a risk a

by Daisy - AFIBBERS FORUM

Re: Multaq and kidney/liver problems? - 1 year ago

I had abnormal kidney and liver numbers while taking Multaq. Both my primary care and Natale’s lab brought this to my attention. They resolved after stopping Multaq.

by Daisy - AFIBBERS FORUM

Re: Adventures in Ablation - 1 year ago

Thanks for your post – I also found that it was very helpful to read the posts here from those who had already gone through ablation. I’m glad that yours went so smoothly, and yes, I think you will be very glad to get off all those drugs! I also had two cataract surgeries in the same year that I had my ablation on the followup from the cataract surgeries was almost more of a bother than the follo

by Daisy - AFIBBERS FORUM

Re: Why do atrial flutters tend to slow down? - 1 year ago

Then why did some of us get flutter before we ever had an ablation?

by Daisy - AFIBBERS FORUM

Re: Importance of Extra-Cardiac Vagal Stimulation during Catheter Ablation for Vagal Atrial Fibrillation: What is the Hidden Trigger? - 1 year ago

QuoteMeganMN What testing did you have for that Daisy? I have always wondered about that with my propensity for Orthostatic Tachycardia, etc. I had tilt table testing coordinated beat to beat with BP and 5 other types of autonomic testing administered by an autonomic specialist. Autonomic specialists are hard to find though and there is always a wait list. My testing showed orthostatic intolera

by Daisy - AFIBBERS FORUM

Re: Importance of Extra-Cardiac Vagal Stimulation during Catheter Ablation for Vagal Atrial Fibrillation: What is the Hidden Trigger? - 1 year ago

Quotesusan.d Paywall unfortunately but here was a teaser sentence: QuoteClinical results demonstrate that pulmonary vein isolation (PVI) remains the cornerstone of AF ablation in these patients, but additional ablation of the ganglionated plexi (GP) has been proposed as a complementary strategy. This interested me as I have autonomic dysfunction with too high “vagal tone,” according to auton

by Daisy - AFIBBERS FORUM

Re: Suspect HR on Fitbit Charge 5 - 1 year ago

I have a Fitbit and a Kardia and agree with Carey— the Fitbit isn’t very accurate and there is also a lag in reporting your HR. I have a pacemaker which is set to pace me anytime my HR is less than 70 yet my Fitbit often tells me the my HR is in the low 60s—go figure. I use the Fitbit for other things like steps, which it is pretty good at.

by Daisy - AFIBBERS FORUM

Re: PRECARDIOVERSION ASSESSMENT WITH CT COMPARED WITH TEE IN PATIENTS WITH ATRIAL FIBRILLATION OR FLUTTER - 1 year ago

QuotepixieIn a few months, it will be 2 years since my Watchman implant. I recently had a telehealth call with Dr. Natale and he told me the two year watchman scan applies to the folks who chose to take daily aspirin, not those who chose Eliquis. Since I am on the reduced Eliquis dose, it was not for me, That seems to vary from patient to patient as I am also taking Eliquis, as are two other N

by Daisy - AFIBBERS FORUM

Re: PRECARDIOVERSION ASSESSMENT WITH CT COMPARED WITH TEE IN PATIENTS WITH ATRIAL FIBRILLATION OR FLUTTER - 1 year ago

Quotesusan.d Normally EPs (except for Natale) don’t read CT images. I believe that is changing. My local hospital is doing CTs post-Watchman and Boston Scientific has technology now that will enhance post-Watchman CTs (they have an office at St. David's for this purpose and no doubt have similar offices elsewhere). By the way, Natale now asks for scans at both one and two years post-Wa

by Daisy - AFIBBERS FORUM

Re: Just checking In after Ablation - 1 year ago

Yay, good news after such a long wait. Thanks for checking in.

by Daisy - AFIBBERS FORUM

Re: Chewing Diltiazem ? - 1 year ago

QuoteEvelyn Hi Susan Hmmm. They gave me a 10mg Diltiazem injection in a vein in the ER the other day and I went from 170 to 85 bpm within five minutes. Then it was just a matter of waiting an hour til my hr was 55. How big of a dose requires an 8 minute push or an IV drip? I can also share experience with this as I had an IV push of Diltiazem in the ER. They pushed 10 mg but VERY slowly

by Daisy - AFIBBERS FORUM

Re: “The Tyranny of Beta Blockers” - 1 year ago

QuoteFibberMcGee I titrate my metoprolol, depending on how I feel and what my heart is doing. I have tried to explain to my EP how lousy metoprolol makes me feel, both physically and cognitively. But he just doesn't get it. I monitor my pulse and BP frequently and have a Kardia. I have been able to take a smaller dose of metoprolol after I recently started taking taurine. It helps with my B

by Daisy - AFIBBERS FORUM

“The Tyranny of Beta Blockers” - 1 year ago

Well worth a read!

by Daisy - AFIBBERS FORUM

Re: Will ablation anesthesia hurt my brain? - 1 year ago

QuoteMeganMN Is there a way for you to chat with an anesthesiologist prior to deciding? That might.be a way to look at statistics, or other options. Yes, that would be important though usually you only see the anesthesiologist as you are already being prepped for the ablation. I’ll share my experience in case it is helpful. I had an extensive RF ablation with Dr. Natale and because of his vast

by Daisy - AFIBBERS FORUM

Re: BP meds - 1 year ago

QuoteDini I had the pharmacogenomics testing done two months ago. My doctor said that beta blockers, especially metoprolol were ones i should not take as well as clonidine. Has anyone else had this testing done, and know how to easily determine what BP meds are ok to use? Yes, I had pharmacogenetics testing and my biggest problem is being a poor metabolizer of CYP 2D6 which is a pathway used b

by Daisy - AFIBBERS FORUM

Re: Now what? Too much Diltiazem - 1 year ago

QuoteSueChef I take flecainide 150 mg twice a day. I also take metoprolol extended release about an hour and a half after I take my flecainid e. As I understand it, you are supposed to take the beta blocker a half hour before the flecainide to prevent one to one conduction – which is rare but could be serious.

by Daisy - AFIBBERS FORUM

Re: Raising arms/hands stops my bigeminy - 1 year ago

QuoteEvelyn Johnny S Thank you. I think B would probably help but the supplements I’ve tried have given me indigestion. With me indigestion sometimes becomes extreme. I once tried a liquid form- it was hydroxocobalamin- but I read it reduces nitric oxide which is supposed to be good for the heart. Also I was once told by a functional medicine doc that I might have a methylation problem - B vit

by Daisy - AFIBBERS FORUM

Re: ? An old iPhone7 & upgrading to Kardia are - 1 year ago

QuoteSueChef I have an iPhone 7 & realize it’s quite old. It does the job but now I’m wondering with new technology available, would it mesh with KardiaCare, should I wish to upgrade from regular basic Kardia to the new stuff. Does anyone happen to know this? Thanks! SueChef I use KardiaCare with an iPhone 7 with no problem. I have had my Kardia for many years and was grandfathered into

by Daisy - AFIBBERS FORUM

Re: PACs are back again - 1 year ago

Quotekliving Well I made it from last Tuesday to today without any. It lasted about 3 hours today and at one point my heart rate was bouncing for 35 to 120 again. If starts up again tomorrow I call the doctor or head back to the ER. This is just getting old now. Sorry just a small rant for today. If you do end up in the ER and they want to put in a pacemaker, it is worth asking your EP to sele

by Daisy - AFIBBERS FORUM

Re: Diagnosis from hospital. How bad is it? - 1 year ago

QuoteCarey The sick sinus syndrome may mean there's a pacemaker in your future if it's confirmed. I was also thinking that as well as I have a pacemaker for sick sinus syndrome. The good news is the pacemaker really does the job well!

by Daisy - AFIBBERS FORUM

Re: Antiarrhythmics and Neuro-Psychiatric Symptoms - 1 year ago

QuoteMeganMN Wow. I started long-acting Propafenone and am having some serious issues. When I took Flecainide, I had to stop taking it because I had some serious anxiety and agitation that accompanied it. They stopped when I stopped the Flecainide. I am on dose 3 of the Propafenone and am seriously in a bad state. I feel anxious, tearful, depressed, and kind of unstable, and it is a sudden onse

by Daisy - AFIBBERS FORUM

Re: What side effects are there from stopping Multaq? - 1 year ago

I didn’t experience anything when I stopped Multaq. I stopped it once before my ablation and again 2 months after my ablation and didn’t notice anything except slightly better digestion.

by Daisy - AFIBBERS FORUM

Re: 7 months after Natale ablation...PACs are back - 1 year ago

QuoteMeganMN @WhyMe. I am being recommended to take Rhythmol for the PACS AND inappropriate sinus tachycardia. They are not opposed to another ablation but man, I feel your pain. Either option feels frustrating.... Am I remembering correctly that you had tried Flecainide in the past? Just asking because Rhythmol is the same class drug and very similar.

by Daisy - AFIBBERS FORUM