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FULL LENGTH ARTICLEArticles in PressJanuary 09, 2025by susan.d - AFIBBERS FORUM
QuoteJAYHAWK When I told him of my efforts to identify a trigger, he told me it was a waste of time and that I was genetically predeiposed for arrhythmia. Steve Klein, Tx. I was told exactly the same thing.by susan.d - AFIBBERS FORUM
by susan.d - AFIBBERS FORUM
If you use an iPhone you can use a generated iCloud hide my email addressby susan.d - AFIBBERS FORUM
QuoteNBeener However the test results, skimpy as it is, does not show Amyloidosis, which is good news. Dr Natale suspected I had it because one of the symptoms is afib. Unfortunately, amyloidosis was neither ruled IN nor ruled OUT -- certainly not by that MRI. Negative results are not diagnostic in a case like yours. Too many false negatives in most of the non-invasive tests. Only positiby susan.d - AFIBBERS FORUM
QuoteCarey Does the hospital not offer translation services? Pretty much every hospital in the US does. And if not, are there services you can hire? I have a friend who works as a translator and he does it all by phone/video. There is a tourist department/expat non profit organization right in the hospital. They were supposed to had translated for me last week while I was in the hospital. Theyby susan.d - AFIBBERS FORUM
QuoteGeorgeN I see the chief cardiomyopathy cardiologist in two days. I plan on asking him questions but his English is not fluent. Thanks for your list of questions. If you think of anymore, please let me know. . Don't know if you already do this, but suggest you have a grandkid translate your questions for you and either print it out or have the questions on your phone to show him.by susan.d - AFIBBERS FORUM
Do you have any bleeding disorders? Kidney function low? Active job or risk of falling? . Medicare: As long as its medically necessaryby susan.d - AFIBBERS FORUM
I see the chief cardiomyopathy cardiologist in two days. I plan on asking him questions but his English is not fluent. Thanks for your list of questions. If you think of anymore, please let me know. While seeing him, he will call in my EP. My MRI was not enhanced. I got the results. It was a big disappointment. Due to my arrhythmia, they were not able to take measurements. That’s disappointby susan.d - AFIBBERS FORUM
Well I posted in 12-11-24 that after a hurdle with bureaucracy, I was approved for an import of brand name Tenormin. Twice after ablations, Tenormin (not generic Atenolol) stopped my PVCs cold turkey. I’m hoping for a miracle. I’m still waiting for my Tenormin. Because of missile activity near the airport, flights have been delayed or canceled. I ordered Tenormin from Germany thinking it wouldby susan.d - AFIBBERS FORUM
I know it had a positive conclusion. I shared because some people are reluctant to get ECVs for various reasons. This study rules out one concern. An EP I saw recently told me that my ECV count of 54 was a Guinness book record. For me, it gives me some peace of mind my brain wasn’t fried from up to 300 joules of electricity.by susan.d - AFIBBERS FORUM
by susan.d - AFIBBERS FORUM
They didn’t move the wires in 4 days yet the first few days I had rabbit ears and I woke up to the same pattern I usually get. It happened on its own.by susan.d - AFIBBERS FORUM
The position was originally wrong and I had rabbit ears. Today the rabbit ears disappeared while the positioning remained the same. I don’t know how to explain it.by susan.d - AFIBBERS FORUM
It wasn’t false positioning of the electrodes after all. Today the rabbit ears disappearedby susan.d - AFIBBERS FORUM
My dose today is 120 BID. They are keeping me here longer for observation.by susan.d - AFIBBERS FORUM
Can it be taken with 50mg Tenormin BiD, lisinopril BID and norvasc?by susan.d - AFIBBERS FORUM
Here is the video. What is it? I never had this The EP is not discharging me now and wants to increase Sotalol to 120 BID…higher than drugs.com recommended 80mg BID. I also got a second echo. Very leaky valves, great images.by susan.d - AFIBBERS FORUM
I have longer videos if that can help Carey. It started yesterday when all my drugs were given to me at one time to take.by susan.d - AFIBBERS FORUM
My PVCs monitor (I’m in the blue strip) changed after I started a very low dose of Sotalol in a hospital setting. Instead of 80mg BID, I got started for two days at 40mg BID. My ekg changed to rabbit ears. Any clue what’s wrong? I’m in the blue strip.by susan.d - AFIBBERS FORUM
Actually I like their drug regimen. Instead of 80mg twice a day, I’m taking 40mg 4 times a day. I have a pillow and a nice toasty blanket. I’m in hog heaven.by susan.d - AFIBBERS FORUM
It’s a different approach, but this hospital admitted me hours ago. I’m in bed because I, unlike other patients in this cardiac ward, do not have a portable holster so I can not walk around. Now I was given a half a Sotalol tablet-40mg and I will get an ekg in two hours to compare with my ekg I had 4 hours ago. I suspect they will start slow. This is different than my last Sotalol admissiby susan.d - AFIBBERS FORUM
I’m being admitted tomorrow morning for 48 hours while starting Sotalol. I wonder if they will cease giving me my BB which I need to calm my palpitations. In the states I was given both cardiazem and Sotalol. But I’m in a foreign country with their own guidelines.by susan.d - AFIBBERS FORUM
my PM surgeon must had been very lax, not as cautious as Daisy's surgeon. My PM surgeon put his iPhone pro max , right on my PM and said "see, no problem"... I asked about dangers of being near a microwave and he shrugged and said no problems unless I climbed in. He is no longer in practice. I also used my left ear when talking on my phone. I may switch to my right now. I foundby susan.d - AFIBBERS FORUM
QuoteNBeener Noraly Schoenmacher of 'Itchy Boots' fame on YouTube, a geologist who does world travels on a motorcycle and who vlogs her experiences, uses such a translator. She speaks into her phone, and a voice repeats what she says in the language of her selection...in recent days it was Turkish. And more recently, in Iraqi Kurdistan ;-) But they are tourists. Where is the stress?by susan.d - AFIBBERS FORUM
Gloaming-I have that app (voice translator). People don’t like talking into my phone. If they pause talking the translation gets erased and then they get upset. I supposedly have the best paid app out there. Plus phone messages are not as clear to translate so I now use a native speaker to help. I was assigned a 7 hour a week native speaker caregiver. She throws out my trash, carries my grocerby susan.d - AFIBBERS FORUM
QuoteNBeener I have to get my o2 stable first. I get hypoxia when I’m reclined or laying down. It’s in the low 80s lying and 94-97 sitting . Doesn’t make sense. I am seeing a private pulmonologist next week. Walking I am out of breath too. I had a dental cleaning today and it was difficult to breathe as well because she reclined the chair. Nights are impossible. My Cpap machine clocked my slby susan.d - AFIBBERS FORUM
It will take a month to find out the results of the MRI. My last MRI took 6 weeks. I have to start camping out in EPs waiting rooms to get a letter for a rush result. Carey, thanks as always. Why do you think it’s heavy hitter? I’m too weak to tolerate it? I thought amino was the worst. I was suggested it today or to take flecainide again which I was previously warned never to take again sinceby susan.d - AFIBBERS FORUM
I am being admitted Sunday for observation for 48 hours to start Sotalol to see if I can get my 43% pvc burden to stop. Another EP suggested Dofetilide or amio while a third only amio or risk a low dose of flecainide again which is confusing because I had a flecainide overdose and was told never to use it again. If I recall, even Carey warned me never to use flecainide again. .A few suggestby susan.d - AFIBBERS FORUM
Why didn’t the ER electrically cardiovert him to NSR? They discharged him in tachycardia? He didn’t need a TEE, once I just got a scan (done on the gurney) to rule out clots.by susan.d - AFIBBERS FORUM