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University of California San Francisco sent me an email if I wanted to be part of a new study. I was part of a beta testing study for the Samsung Galaxy watch once (thanks George!) They gave me free a new Galaxy ekg watch at the time and a free week holter test. This new study is on how alcohol affects your atrial fibrillation. I don’t drink but if you do you may qualify. You will get freebiby susan.d - AFIBBERS FORUM
by susan.d - AFIBBERS FORUM
I didn’t know he existed. Dr. Shephal K. Doshi, M.D., Executive Medical Director The Edward and Mary White Endowed Chair in Electrophysiology Dr. Doshi, the executive medical director of Providence Saint John’s Heart and Vascular Institute and director of the Sandra & Vin Scully Heart Rhythm Center, is a leading expert in interventional therapies for arrhythmias including atrial fibrillatiby susan.d - AFIBBERS FORUM
I would fly to Austin and use Natale …but I do understand reservations and second thoughts because I declined a left ventricular PVC ablation which probably may had prevented my cardiomyopathy because of doubts about its success if I went through with it. Natale was presented with many challenges when he implanted my watchman. I had a bent twisted vein while doable for catheter use or ablatioby susan.d - AFIBBERS FORUM
Drummer. I never was lethargic on it. I had to switch drugs to the highest dose of Tenormin. I feel like napping after my morning dose but it helps my PVCs. However Diltiazem I has been my favorite drug. It just calms my heart. After my AV node ablation technically I didn’t need it but this drug helped not feeling my wonky heart. Plus I feel calmer with a calmer heart.by susan.d - AFIBBERS FORUM
FWIW, Every cardiologist has their own opinion, but at Cedar Sinai Barbara Streisand Center, I was told to stop L'Arginine because studies found it lead to a higher risk of death in women. Below is the study my cardiologist quoted:by susan.d - AFIBBERS FORUM
QuoteShiny Sleeves My complaint is PVCs. I have them every day. Most of the time when I get them it's from a posture change, like when I lie down for the night (the head of my bed is raised a little), and again when I get up in the morning. For what’s it’s worth, get out of bed very SLOWLY. I found it’s helpful to first turn to your side and slowly drop a leg over, then slowly sit up, waby susan.d - AFIBBERS FORUM
QuoteShiny Sleeves Also if I get a lot of sugar then they can wake me up with a very high HR. I fall off the wagon every so often I'm ashamed to say. Everyone is different, but if I drink or consume a sugary anything, my PVCs are going to rise significantly. It’s not worth it. Tape a picture of an oxygen concentrator and compression stockings to your fridge to motivate you if you fall offby susan.d - AFIBBERS FORUM
Luckily your burden is low. I would keep an eye on it. My burden went to 42-43% and I got heart failure. I’m on brand Tenormin which stopped it but if I get stressed I get some beats and when I take my next dose I’m ok back in nsr. Magnesium helps. I just mailed in a holter and am curious on my burden %. Tenormin helped me in 2020, 2022 and now. Tenormin is brand for atenolol which didn’t helby susan.d - AFIBBERS FORUM
Flecainide PIP you need to know the safety guidelines on dosage limits. I too started flecainide at home.by susan.d - AFIBBERS FORUM
May I make a suggestion? Buy the air cushion F20 full face mask. It has a foam-not hard silicone perimeter. Set the machine to ramp the pressure. You can set it to 4 to start so you don’t feel it. Then hopefully when you do fall asleep you don’t be bothered when it ramps up. I like the full face F20 air cushion mask because I am a mouth breather and it’s very comfortable. Obviously yoby susan.d - AFIBBERS FORUM
Carey: Sign up again. They have this referral program: ! Afibbers org gets something and readers here gets 10% off their first purchaseby susan.d - GENERAL HEALTH FORUM
I like to comment my sadness of his death. I had problems at Los Robles. I went straight to the icu where the icu doctor told me to make my funeral arrangements. I know of another patient as well. I’m sure this could and unfortunately may happen at any hospital with any procedure, I recommend taking a flight to Austin where Dr N had recommended to me because he felt he has state of the art equby susan.d - AFIBBERS FORUM
by susan.d - AFIBBERS FORUM
It’s Eastern time btw [5781677fd9514a8f9ac329457dfb2d9e.marketingusercontent.com] List of other seminars and support groups. I they have a mailing list. They offer a S.L.E.E.P. Virtual support group for sleep apnea and also cardiac support groups.by susan.d - AFIBBERS FORUM
I’m looking for an excellent oncologist in the tri-state NY/NJ area. Any suggestions?by susan.d - GENERAL HEALTH FORUM
Wow George! I’m impressed!! Don’t forget you shoveling snow barefoot and wearing shorts without a jacket. QuoteGeorgeN i guess one of the difficulties we all face is trying to weigh up all of the things that affect our immediate future versus doing things that our 10 year futures selves will thank us for. I can relate. I'd figured out within a month of my first episode (by findingby susan.d - AFIBBERS FORUM
IDK, but extensive exercise frequently seems to do this to you. You may have to choose from something that gives you pleasure to physically protect your heart so you don’t end up getting many ablations, flutter or last resort an AV node ablation and a pacemaker when other choices could fail. Please don’t have >3 ablations and still get tachycardia after a workout. It’s not worth it.by susan.d - AFIBBERS FORUM
QuoteRobertus The EP prescribed 50 mg flecainide acetate twice daily, but said I could take more in case of an AFib incident, not to exceed 400 mg in 24 hours. However, I haven't yet tried taking extra. If you weigh less than 154 pounds, the maximum dosage in a 24 hour period is 200mg. If you weigh more than 154#, then the maximum dosage is 300mg. If your EP told you 400, you risk deathby susan.d - AFIBBERS FORUM
Here is the full articleby susan.d - AFIBBERS FORUM
Interesting for those who get MRIs…cardiac imaging or other imagingby susan.d - AFIBBERS FORUM
I got many IV magnesium treatments. Maybe Medicare will approve it.by susan.d - AFIBBERS FORUM
QuoteCarey i was wondering if there is anything to be gained by using Gadolinium scanning for AF hearts? I underwent a late gadolinium enhancement MRI in 2014. It basically shows the amount and location of fibrosis in your heart. I think it's informative to doctors but it's not ground breaking. The results aren't likely to change treatment decisions in most cases. I had itby susan.d - AFIBBERS FORUM
Open access pdf availableby susan.d - AFIBBERS FORUM
There is a link before the article to download the issue. Another article on blanking periods: Redefining the blanking period after pulsed field ablation in patients with atrial fibrillation Third article: Prevalence, timing, and impact of early recurrence of atrial tachyarrhythmias after pulsed field ablation: A secondary analysis of the PULSED AF trial All three offers pdf fuby susan.d - AFIBBERS FORUM
You can request to be in a cancellation list.by susan.d - AFIBBERS FORUM
I had three feet of my small intestines removed from the beginning of my duodenum onward and apparently I can’t absorb iron. I now suspect my constant iron deficiency has lead to all my afibs and now PVCs. I was against getting iron infusions and when I finally did two years ago my heart became calm. Of course I can’t be a Monday morning quarterback but I am kicking myself. I could had saveby susan.d - AFIBBERS FORUM
Dr Natale has an office in Thousand Oaks which he visits 3 days a month. I had all my 4 ablations there. He mentioned to me he has better state of the art equipment in Texas and he mentioned he could reach a stubborn spot if I booked in Austin. I regret not taking a plane instead of picking location. Plus in CA he only has one NP while in Austin he has many on call. I found when I was hospitalizeby susan.d - AFIBBERS FORUM
I can’t type worth a darn with my double vision being on Tenormin. Thanks Carey. You figured it out.by susan.d - AFIBBERS FORUM