One of the authors was my EP and he was recommended by Dr. N, and another was recommended by my local CA EP. They are supposed to be highly regarded.by susan.d - AFIBBERS FORUM
he wouldn’t know that gloaming. I performed a pantomime like I’m a drunken sailer to show him how I walk around bumping into things. When in the ER I point to my heart and moan. It’s the only communication I have. I should of had that Epley test with my eyes opened. I closed them because I was too dizzy. He was watching my face. Why couldn’t he use that instrument that goes inside the ear canby susan.d - AFIBBERS FORUM
Same with my story. I was stable in Sotalol unhh the uk I came down with vivid and then the flutter started. Hopefully the new meds will work.by susan.d - AFIBBERS FORUM
Thanks KF. I had it done pre afib around 2015. I was fine. But now, post v-tach and other cardiac issues, I’m very sensitive to injections. The first covid vaccine my throat , inside palate, lips started to react like I drank very hot coffee, that burning tingling numbness you get when you drink something burning hot. Same with my iron infusions. I needed Benadryl and steroids. That said, I havby susan.d - AFIBBERS FORUM
Exactly what you wrote. dipyridamole used plus a nuclear element? I was told it was a nuclear stress test and the chemicals will dilate my arteries. I just can’t take adenosine. I have to make sure it isn’t used.by susan.d - AFIBBERS FORUM
I wouldn’t be concerned about an ECV..it only takes a few minutes of prep and you will feel better. I had 54 of themby susan.d - AFIBBERS FORUM
I’m a chad 5 and even with my successful sealed watchman, dr Natale suggested I stay on 2.5 BID Eliquis for the rest of my life. I fall and stumbled but nothing as bad as a stroke if I stopped . A bruise is temporary, a stroke may not beby susan.d - AFIBBERS FORUM
My potassium levels are 4.5. I got a Rx I take 20mcq BID. I noticed the difference if I skip a pill.by susan.d - AFIBBERS FORUM
So happy for you! I miss my cedar Sinai cardiologist. They have the best umbrella cardiac care.by susan.d - AFIBBERS FORUM
QuoteMel-O There are only a few sources of funding for research. Drug companies? Haha look at the struggles taking Eliquis generic. The Feds (NIH, FDA, etc)? Politics influences the flow of funds - there's no AF lobby. Philanthropists? Yes, they get to name an institute or medical center, but no interest until a billionare gets AF! Pure research? It doesn't exist in the real world.by susan.d - AFIBBERS FORUM
Yep I’m one of the “lucky ones”. Story of my health. I attached the 287/63 for a reason to show it does beat fast and yes it shouldn’t make a difference because my ventricles are at 63, but I won the lottery on symptoms because I feel it and it affects my mobility and quality of life.by susan.d - AFIBBERS FORUM
Yes three times. My upper chambers can go to 350+ and I feel like puking and get dizzy and fall or stagger into things, I feel it and breathing so labored I pause between words at times to suck in air. I want to confirm I’m not imaging it, I started recording a Kardia strip , as a time stamp to compare to my pacemaker report. I’m spot on usually. Yes he recommended amio. after my successfulby susan.d - AFIBBERS FORUM
Quotegloaming I couldn't wait to get on that operating table. . Me too. No anxiety, I had 4 and told them to put me under and rock and roll. There are other risks than an ablation. Getting hit by a bus is one. I got lost yesterday at night. I didn’t realize I was lost until I was heading for the mountains. I got off the bus in the wrong town, pitch dark, and told to cross this busy higby susan.d - AFIBBERS FORUM
Ps. I was shocked when this head cardiologist suggested I start amio. Isn’t that the reason for an AV node ablation? I feel after eating anything with sugar some vibration and a pounding nsr. However I was getting my PM interrogation and although my ventricles were at 63, my upper were 212. Thus the suggestion for amio. I refused. He then gave me a rx for Carvedilol 25mg BID to replace my Carby susan.d - AFIBBERS FORUM
What side effects (I.e. racing hr) should I expect from dipyridamole and is it similar to adenosine? Actually I just googled the drug and nuclear scan and some get both drugs. Is dipyridamole a nuclear material?by susan.d - AFIBBERS FORUM
The order is for the chemical Pyrophosphate was for a nuclear test they decided not to take. I had a very bad reaction to adenosine. I immediately got angina and was in the ICU for 3 days. My official diagnosis from the chief of cardiology, was type 2 MI. My bracelet mentions Adenosine as an reaction. If it’s the same family as adenosine is in the second test, a stress test with drugs, theby susan.d - AFIBBERS FORUM
I’m told I need the mri plus a chemical stress test. Is the chemical going to raise my hr? It’s instead of running on the treadmill. If one runs their hr is rapidly increasing. I do have a PM but even when the atriums beat at 250-400 I feel them.by susan.d - AFIBBERS FORUM
I had no side effects while in Sotalol but towards the end I stopped working. I had six good months of nsr until I got vaxx and then Sotalol stopped working. Some of these drugs you may need to be admitted to the hospital for a few days while under observation. Tikosyn For sure.by susan.d - AFIBBERS FORUM
Try to avoid a sinus node ablation and pacemaker. Although your ventricles will be paced safely, you will still feel your upper chambers on crack with the same symptoms. It is the absolute last resort. I did it because the entire month, except for a couple of days in November 22, I was hospitalized with uncontrollable tachycardia. Nothing worked. When I reached my 54 ecv (by then it didn’t help),by susan.d - AFIBBERS FORUM
Avoid a CBB doctor. I like this article. It has motivated me to perhaps switch doctors. I have a CBB doctor at the moment. I miss my GP in the states but I could always make a 15 minute zoom appointment which I do. I found one GP where I’m at who doesn’t speak a word of English but he was so concerned about my tachycardia that he walked out of clinic and took me for an ekg and waited untby susan.d - GENERAL HEALTH FORUM
Thanks Joe!by susan.d - GENERAL HEALTH FORUM
QuoteMeganMN I tried Arginine and Taurine at one point but the Arginjne messed up my stomach. The supplement has: 300mg Magnesium 500mg GABA 450 mg Taurine 200mg L-Theanine 100mg Holy Basil I have also been taking the ginger, and another antiinflammatory, but last night was my first night with any relief. How do you know it’s the Multaq that maybe causing an allergic reaction? Perhaps sby susan.d - AFIBBERS FORUM
At the pacemaker clinic they have a display of pacemakers. Some are quite big.by susan.d - AFIBBERS FORUM
It’s almost 3:30am and I just saw this relevant study.by susan.d - AFIBBERS FORUM
If you read this link you will realize afib isn’t as bad as what others overcome.by susan.d - GENERAL HEALTH FORUM
I googled the drug and came upon this article which also mentions Adenosine, a drug i can’t take. . I’m allergic to adenosine. A few cardiologists want me to take a stress test using dipyridimole. I’m fighting against it for three reasons, my pacemaker was just tweaked and my performance (exercising) was turned off. I don’t want to risk symptoms because I will be flying a 14 hours flight soonby susan.d - AFIBBERS FORUM
There is a performance setting an EP could tweak for exercise. settings varies with each patient. I get an interrogation (download) automatically every 3 months and a tweaking by the PM clinic every 6-9 months to check the battery settings. I just had my performance settings turned off because of mycomplaints of my hr being 60 pacing sitting and the act of walking to another room would just jumpby susan.d - AFIBBERS FORUM
QuoteCarey As long as I'm not on fire and am not getting shot at, life is mighty good. There was a guy on another afib forum who liked to say that. LOL. This applies actually to me too. :-)by susan.d - AFIBBERS FORUM
Join the club. It's 2am and I am not a bit tired. Hopefully I'll get sleepy at 4am. I never had an issue falling asleep. I would hit the pillow and be out. Then in 2004 I started flecainide and stayed up as late as 5am and took cat naps. Now I'm off most drugs except cardizem and Eliquis and still I can't sleep. I suggest starting a lifetime of controlled substance sleeby susan.d - AFIBBERS FORUM