I have now been on Ticosyn for over a month now. So far as it's ability to keep me in rhythm, meh. However, I have been fighting bouts of sciatic nerve pain now for the better part of 2 weeks to the point of it being debilitating. It started with the left side and just as that started to let up the right side started and now the left is rearing it's ugly head again. I have had issuesby rocketritch - AFIBBERS FORUM
The Ticosyn call ntnues to fail athikding my affib at bay. It does convert me back but I haven't had a fun of NSR for longer than a day now. I had hgh hioes early on but now am at my whits end. I have an appointment with my EP next week and am waiting on an appointment with Dr.Natale as well. Hopefully I will get some relief here soon.by rocketritch - AFIBBERS FORUM
IMHO a successful ablation eliminates at the very least the need for antirhythmic and rate control drugs as well as anticoagulants. I had one of those once. And I would also say if you had to remain on anticoagulants that would be successful as well. Quality of life is the best guage of success. In my particular case I am very symptomatic with the affib. And the meds make me feel just as badby rocketritch - AFIBBERS FORUM
QuoteElizabeth Well it seems that the Cabana trial doesn't seem to think that an ablation is much better than taking drugs. Liz Except for the fact that successful ablation has zero side effects where as meds not so much. Also, this study only took into account an older segment of the affib community (over 65 I believe with some other caveats) if im not mistaken). So long term effectby rocketritch - AFIBBERS FORUM
Yet another eposode of affib yesterday evening upon sitting down to dinner. I Converted back in just a couple hours this time. I'm starting to see a pattern here.by rocketritch - AFIBBERS FORUM
I uses Flecanide and Metoprolol as PIP for several years following my first ablation in 2009. Never had to use it for first 5 years. After that when I would have an eppisode I would take 100mg of Flecanide and 25mg of Metoprolol and would convert within an hour. In 2017 I had to increase to 200mg of Flecanide and 25mg of Metoprolol to convert. In 2018 Flecanide no longer worked for me either aby rocketritch - AFIBBERS FORUM
In and out of rhythm since Sunday. Converted on Monday then back out last evening for a few hours. Then back out of rhythm this morning.by rocketritch - AFIBBERS FORUM
Just a quick update. Being on the Ticosyn has been a roller coaster. From the time I came home up until last Tuesday I had small successes. Every time My heart would convert back to NSR it would remain there for longer periods. Last Tuesday I went into Affib as soon as I sat down to dinner after around 32 hours of NSR. On that particular day it only took 4 hours for my heart to convert back tby rocketritch - AFIBBERS FORUM
QuoteKen If there was/is a relationship between my exercise and afib, I wouldn't go back and change anything. I concur. Although, I think that when I have my next ablation I will approach my exercise a cardio exercise a little differently.by rocketritch - AFIBBERS FORUM
So following my record run in NSR I had a record converson from affib back to NSR of 4 hours. So 2 positives yesterday. Now if I can only figure out teh magic combination. To convert yesterday I took another 25mg metoprolol to keep my heart rate under 100bpm. This is a constant. What I did differnt yesterday is double up on my Potassium and Magnesium. I normaly take it with my meds which it juby rocketritch - AFIBBERS FORUM
Longest stretch of being affib free since starting the Ticosyn.....32 hours. I had a pretty busy day at work today as I filled a position that I don't normally do. Lots of stair climbing and walking around today with no issues. As soon as I got home and sat down to dinner my heart immediately jumped out of rhythm.by rocketritch - AFIBBERS FORUM
My exercise trigger was always recovery from a hard effort when cycling or running. Although my affib did start back when I was into body building before I took up cycling. I do often wonder if the cycling did contribute to the progression of my affib. I used to ride at least 25 miles 3-4 times a week with an additional 80-150 miles on the weekends. This habit usually lasted from march throughby rocketritch - AFIBBERS FORUM
Sorry to hear this and hope you convert soon.by rocketritch - AFIBBERS FORUM
I've been on Ticosyn now for a little over a week. Can't seem to get past 24 hours without going into affib. No other symptoms from Ticosyn so far.by rocketritch - AFIBBERS FORUM
Been one week since being released from hospital on Ticosyn. I'm in rhythm about as much as I am out so far. Longest I have gone in rhythm is 28 hours. Shortest time to convert back to NSR is 10 hours. Otherwise I feel like total crap right now. The metoprolol really does a number on me. Especially the 75mg dose I take to keep my heart rate bellow 100 bpm when in affib. The 50mg nocks the snby rocketritch - AFIBBERS FORUM
I use melatonin 6mg. I work shifts and I sleep so much better with it.by rocketritch - AFIBBERS FORUM
I'm so glad to hear that you are doing well.by rocketritch - AFIBBERS FORUM
Had another affib breakthrough yesterday afternoon. I converted this morning. It's possible that I caused the situation. I was out on the bike on Saturday when I got home and yesterday afternoon. I went into afdib close to the end of my ride today. I made sure to keep my heart rate low the whole time. My heart rate was around 85 bpm when I went into affib. My average heart rate for theby rocketritch - AFIBBERS FORUM
Quotemwcf rocketritch, Where did you have your two ablations? UPMC Shadyside, Pittsburgh PA. My current plan is to have a third with DR Andrea Natale in Texas.by rocketritch - AFIBBERS FORUM
Quoteggheld I was switched to Flecanide which worked very well for me. Gordon I used Flecanide for six months following my ablation back in 2009. I then used it as a PIP but it was becoming less effective. I used it again starting in January following my second ablation but it ended up failing me. Thus the change.by rocketritch - AFIBBERS FORUM
QuoteCarey When I first started Tikosyn, I was told by others who had been on it that it becomes more effective the longer you take it. They were right. It took 3-4 weeks for it to become fully effective, so don't give up on it it. The doctor this morning had a similar stance that it may work better as time progresses and hopefully carry me to the next phase. Also, the fact that I did convby rocketritch - AFIBBERS FORUM
So following my cardioversion last Friday I was scheduled to come back to the hospital to change my meds form Flecanide to Ticosyn. I started the Ticosyn 500/2x along with 50mg Metoprolol on Tuesday morning and converted to NSR a few hours later. They ended up reducing me to 250/2x due to my QT intervals the next day. Last night when the nurse brought my evening meds I went back into affib witby rocketritch - AFIBBERS FORUM
Thanks again Carrey. They started me on 500 micrograms 2x yesterday. Today they reduced to 250 micrograms 2x due to QT duration. I spoke to my EP yesterday and still have some questions. I did ask his NP a couple today. Both my ablations included PVI and CTI ablation. The first in 2009 being RF with 5 years duration of no problems leading to another 4 years of mageble PIP events, and the one tby rocketritch - AFIBBERS FORUM
Took my first dose of Ticoxyn @0900 and converted back to NSR @1210. I seem to be tolerating it so far as the the EKG is normal. We will see what the next few days and weeks bring. I'm not a medication type person so my hope is that the meds are just a stepping stone towards the next phase of my journey.by rocketritch - AFIBBERS FORUM
QuoteCarey Sorry, but hopefully the Tikosyn will take care of that for you. Thanks Carey. I got admitted late last night so I just started the Ticosyn this morning. If I don't convert on my own another cardioversion will take place. My doctor and I are going to have a long talk about this before it happens. I refuse to have another bad TEE experience. Besides that I am planning on havinby rocketritch - AFIBBERS FORUM
The cardioversion lost it's hold yesterday afternoon. I was hoping it would last until today as I am supposed to start on Ticosyn today. I'm currently sitting in a comfortable chair at the hospital waiting to be admitted.by rocketritch - AFIBBERS FORUM
Thats pretty nice. Im not an apple fan though.by rocketritch - AFIBBERS FORUM
QuoteThe Anti-Fib What the Hell? Is this? My sentiment exactly. I was begining to think it was me before reading everyone elses expereinces. Now I'm pretty sure its not me it's them.by rocketritch - AFIBBERS FORUM
QuoteCarey BTW the TEE was a total disaster again. What happened? A TEE shouldn't be a disaster a single time, much less multiple times. It should be a trivially easy procedure that takes only minutes, followed by maybe an hour of boredom waiting for the anesthesia to wear off. I wish I knew. The anesthesiologist said that as soon as the doctor got the TEE towards the back of my throaby rocketritch - AFIBBERS FORUM