QuoteShiny Sleeves I understand that after the procedure you may get some chest pain or chest tightness. I wondered if anyone could describe it to me and how much of a burden it is, how long it lasted for you, and anything else you can think of. As Carey said, most people don't feel this though many EPs will give you a course of colchicine before and after to lower inflammation which iby Daisy - AFIBBERS FORUM
QuoteNoTrigger Daisy - my LAA was taken care of during the open heart surgery. Less tricky then I would imagine. I am getting a better understanding of my situation and why my EP, skilled as he is, was somewhat reluctant to do another ablation. Since I have had 3 (not counting the Maze) they know exactly what is going on. Unfortunately, each time they induce flutter, it jumps around and doesnt sby Daisy - AFIBBERS FORUM
QuoteShe said it would help us determine if Beta Blockers should be absolutely avoided, and if other drugs, like Flecainide, would be metabolized differently. It should give you that information. My results showed that Metoprolol should be completely avoided whereas Bystolic and Propranolol are okay and Carvedilol is use with caution. For Flecainide a 50% dose reduction was recommended. Interesby Daisy - AFIBBERS FORUM
QuoteAs mentioned, you must pay $299 for the top tier plan as my Premium plan is $99/annually and still says Possible Afib and not ''Afib''. They must have changed their structure. I have never paid for a membership as I was grandfathered in as I bought my Kardia quite a few years ago. Evidently my membership corresponds to the $299 tier as I get 6 possible diagnoses and nevby Daisy - AFIBBERS FORUM
QuoteUnclassified Sometimes, actually often, the unclassified tag is related to "noise," hands not in the optimal position etc. Natale's NP gave me a heads up on this. Try taking your reading in a room with no appliances or electronic interference. Also have your hands on a table right in front of you instead of below, and moisten your finger tips for good contact. At least withby Daisy - AFIBBERS FORUM
QuoteNoTrigger He had said a few weeks ago that there wasn't any other places left to ablate but seems to have changed his mind. Ask him if ablated (isolated) the LAA—chances are he didn’t as that is a very tricky area to work with, but also sometimes the source of really stubborn arrhythmias. Natale isolated mine as it was such a source for me, and that was the move that got me back intoby Daisy - AFIBBERS FORUM
QuoteNoTrigger My EP is highly skilled in a major hospital in San Francisco and has suggested either lowering the dose or try for another ablation. He had said a few weeks ago that there wasn't any other places left to ablate but seems to have changed his mind. He has left it entirely up to me to decide. He is also very fond of the AV node/pacemaker option as well - ugh! Would appreciate sby Daisy - AFIBBERS FORUM
QuoteDini Sorry, I didn’t not mean rate control I meant antiarrthymic. He did tell me it your only be for 1 month. But I thought I remembered it was a powerful drug. Is multaq a better choice? I’ve had issues with flecainide. Multaq is about the mildest of the antiarrythmics with few side-effects. It took it for two months after my ablation with no problems. It hadn’t worked well for me beforby Daisy - AFIBBERS FORUM
Yes, and when I mentioned dose adjustments, with one of my genetic variations those were in the magnitude of reducing the dose by 3/4! Google pharmacogenomics and you can read more about it. With your reactions, I’d suspect that you have some significant variations. It just makes sense to test. For instance Natale tested his patients and found that 1/4 of them were non-responders to Plavix, onby Daisy - AFIBBERS FORUM
QuoteMeganMN I tried many of them for weeks/months, feeling awful the entire time. I'm tired. I don't know what I want to put up with as it all seems awful- no arrhythmia and feeling like poo, or arrhythmia and feeling like poo. My next options, according to EP, are.Verapamil, Tikosyn, Sotolol, or maybe another BB like Atenolol or Nebivolol. I expect, like everything else, they will bby Daisy - AFIBBERS FORUM
QuoteSueChef Jim and Daisy, you give me waaaay more credit for knowing how to do this stuff. smiling bouncing smiley I can't even find what version I have using Settings and About Kardia... as for options available like share or pdf etc, I'm muddling through it. I agree, they could have made the process easier. I have done my share of head scratching on this. I had to figure it ouby Daisy - AFIBBERS FORUM
Quotemjamesone My software does not have a universal share button, but only "download pdf", "share with inner circle", "order a clinician review" and "speak to a cardiologist". However, since I have the paid subscription plan, it might be different. In any event, with my software version, once you choose "download pdf" you can then -- save-toby Daisy - AFIBBERS FORUM
Quotemjamesone I think the problem is you're taking the screenshot of only the preview. Try this. (1) click on the preview.; (2) then scroll down and click on"download pdf"; (3) then click on "skip" or enter a password if necessary, and then click on "next" (4) scroll down a little and now you will see the entire EKG; (5) now take your screenshott; (6) editby Daisy - AFIBBERS FORUM
Quotehds Hi all, I have searched the forum for answers but found my situation might be somewhat unique. I had paroxysmal Afib, onset by a Covid infection and subsequent Long-Covid (still recovering - classic ME/CFS symptoms), and Afib appears to have stopped altogether which my cardiologist (EP) indicated might happen start to recover from Long-Covid. I have bouts of insomnia and am lookinby Daisy - AFIBBERS FORUM
Quotejasams The second is the need to stay on an anticoagulant or antiplatlet after the device is implanted, which means I will still have a bleeding risk. Good points and you are correct that there is more to learn about the Watchman and that the fit is vital. Mine was implanted in April last year by Dr. Natale. He is monitoring his Watchman patients more closely than many EPs, most recentlyby Daisy - AFIBBERS FORUM
QuoteJasams . At this point, I am more interested in a LAA occlusion, but haven't been convinced the current devices are ready for prime time. Perhaps the latest watchman FLX Pro will be it; What are your reservations on the Watchman? Quite a few of us here have them if you have questions about our experiences with them.by Daisy - AFIBBERS FORUM
Have a look: Colchicine in Cardiac Surgery: The COCS Randomized Clinical Trialby Daisy - AFIBBERS FORUM
Were you given colchicine by chance? It calms the heart and inflammation and quite a few EPs are giving it before and after ablations, including Natale.by Daisy - AFIBBERS FORUM
QuoteThe literature is sparse on this. Here is a recent article: Identifying the prognostic significance of early arrhythmia recurrence during the blanking period and the optimal blanking period duration: insights from the DECAAF II studyby Daisy - AFIBBERS FORUM
Quotesusan.d He gave me a test. I laid down and he rapidly pulled me up and down while turning my head. I made me sick. Like I got off a roller coaster. Not that I’ve been in one but I speculate it feels the same. I should had kept my eyes open during the test because he said I’m fine and gave me a referral to see a balance therapist..never heard of this treatment. It seems snake oil treatment. Iby Daisy - AFIBBERS FORUM
Who is the scheduler whose call you missed? (You can send me a private message if you don’t want to post their name) You should be able to contact them—have you tried going through Norma? Scheduling is not done strictly first come first serve as there is some triaging done so that the most urgent cases will be done first. This is to say that there can be a wait time of two or three months dependiby Daisy - AFIBBERS FORUM
Quotegloaming You'd be surprised at how much of what we use in volume comes from India. Yes, even most of our “brand-name medications” that we would assume were made in the United States are made in India, Turkey or some other country, though at labs owned by the big pharmaceutical companies.by Daisy - AFIBBERS FORUM
Donated--thanks to everyone and particularly to Shannon and Carey for all that you do for us all. This is such an important, even sometimes lifesaving resource, what would we do without it? And however did Afib patients ever learn what was what before the internet? Me thinks that some died younger.by Daisy - AFIBBERS FORUM
Question: is it dizziness as in vertigo or lightheadedness like you would get from low blood pressure?by Daisy - AFIBBERS FORUM
Quotecornerbax I just have to stop Checking my watch so many times To make sure I'm still in NSR....I'm not out of the woods but from My understanding every hour you are In NSR is a better chance the arrhythmias Don't come back. Yes, it takes a while before you "trust" your newly fixed heart and actually forget about it--what a luxury that is! Hint: you won'by Daisy - AFIBBERS FORUM
QuoteElizabeth AF is exploding in our country, hopefully AF can be helped with some of the new technology that is being explored Let’s hope that there will continue to be progress in treating Afib. Though, since research is showing that rather than Afib directly causing strokes, it is likely that they both have a common cause (changes in the tissue of the heart) simply successfully treating Afby Daisy - AFIBBERS FORUM
QuoteWith my insurance, I only paid $7,500. And with Medicare and a Medicare supplement plan my out-of-pocket was zero.by Daisy - AFIBBERS FORUM
QuoteBut that's just me. Not just you—me too!by Daisy - AFIBBERS FORUM
Yes, my post MitraClip Echos show “trace” regurgitation and all the cardiologists involved have been very pleased with that. When reviewing my latest Echo with me, my local cardiologist showed me the recording saying “Look at her go!” Seeing the recording really highlights how important it is to have a well-functioning Mitra valve, so congratulations. I am also really glad that you can actually fby Daisy - AFIBBERS FORUM
QuoteI wanted to be as detailed as possible In order to hopefully help others who Have similar situations and find this Post via this forum or Google, etc. Yes, this is very important, particularly seeing as how many might be told, as you were initially, to just get an ablation and all would be well. I also am very thankful that Dr. Natale advised me to get my mitral valve repaired and THby Daisy - AFIBBERS FORUM