Quoteajr1960 I have since found out that My vagus nerve and ganglia fibers were damaged (which are unrepairable) and now I’m left para sympathetic dysfunction. Due to this outcome - my BP bottoms out (I never a BP issues prior to my ablation) and I can’t stand more then a few minutes without severe Tachycardia/ BP issues and symptoms. I can be sitting or laying in bed and my heart rate will sudby susan.d - AFIBBERS FORUM
How long wolfpack? My ablation was 5 weeks ago and now my ankles are swollen this week and I gained 5 pounds in my legs alone. My daughter flew into and I was stupid enough to think I could walk from an underground parking lot to the elevator . Today I seriously feel sorry for myself. My heart is pumping from 90s to 120s. I’m concerned I will wear out my already leaky valves and high hr can onlyby susan.d - AFIBBERS FORUM
Carey-what about pvc’s? It is an arrhythmia. Isn’t the heart vibrating like af when someone gets a run of pvc that are on off all day? Same 3 months? Last night after my multaq and magnesium I had such violent (high hr and syncope) pvc that would not go away. I have to take a Kardia reading as part of my ep Kardia program and the readings kept saying possible AF but it’s a Kardia software inteby susan.d - AFIBBERS FORUM
QuoteJoyWin Just now and then it catches me out, especially when the Dr is trying to show me he’s not concerned. 🤗🤗 I prefer a doctor who doesn’t sugar coat. It gives me doubts which could cause anxiety. I call my oncologist “dr death” because she is straight forward. Try biofeedback. I used to listen to Dick Sutphen (Amazon) “sleep like a baby” trains you on biofeedback and his CD “Zapper”by susan.d - AFIBBERS FORUM
Depending on your weight, be careful when taking extra flecainide. I listened to an EP and ended up in the ICU with 24-37 HR flecainide overdose. Flecainide is a black label drugby susan.d - AFIBBERS FORUM
GeorgeN, What about either of these two? I read the one star negative feedbacks. Lots of headaches and runs. I never had headaches with magnesium Aspartate, dizziness and unexplainable syncope.by susan.d - AFIBBERS FORUM
GeorgeN or others- I’m sensitive to supplements. Back in 2004 I took ginkgo biloba for memory and went into my second af. Cardiologist said it was from supplement. So I stay away from brain food supplements. Can you look at this supplement? It doesn’t give me the runs or pain. However I started it in August after disconnecting flecainide and had some nasty high 180+ Af so I’m thinkingby susan.d - AFIBBERS FORUM
I am not taking a beta blocker. I suspect my syncope to beta blocker withdrawal which this is the 3rd time. Thanks Carey. You are so helpful. I actually didn’t have much pvc and angina today so I used my treadmill twice at 1.0 slow walk and took a walk (1000+ ft) to neighbor without a problem.,by susan.d - AFIBBERS FORUM
Carey, I would love to take a beta blocker but Dr. Natale said I can’t be on both multaq and Tenormin. I realized why I may have syncope. Not from my Apple Watch but from one of the three ecg monitors I got free for being a beta tester was I able to watch my rhythm. I hovered at 37 for at least 5-7 seconds at times then it goes tachy and then low again. I never had tachy and pvc together. Iby susan.d - AFIBBERS FORUM
That is why I have syncope. Cold turkey off beta blockers and two BP meds. My BP is low. Same experience in 2004 when I was fainting after being decades on Tenormin and was told to cold turkey it. It took 6 months of tests and syncope before they let me resume the beta blocker. Then on August 18th after the flecainide overdose, ICU discontinued my beta blocker because my hr was 24-37 for dayby susan.d - AFIBBERS FORUM
I had it while in the ER and I asked the ER doctor and she said “nah, it’s nothing”. Last time I thought twice about it.by susan.d - AFIBBERS FORUM
I’m antsy because it’s affect my quality of life. >110 HR gives me syncope plus the symptomatic banging in my heart is not pleasant especially when I want to sleep. I was in nsr this past 2 hours on the couch watching Netflix. I rather be outside to garden, build a fence, make a cabinet, but I cannot. No high HR this past 2hrs- calm heart sitting like a lump on the couch. This isn’t my lifby susan.d - AFIBBERS FORUM
Thanks Carey! Did mine show every other beat pvc? Both my EP and NP to Natale said I’m ok but it has to be wear and tear to my existing leaking valves when HR is over >130 frequently...like if I walk, drink, or stand up. paramedics fire dept said I had tachy pvc With their 12 lead ekg, while ER said to another nurse “she is in arrhythmia, wait, back in sinus”. is pvc considered an arrhythmby susan.d - AFIBBERS FORUM
At 105-109, why didn’t you take a beta blocker once stopping solalol? I’m waiting to go back on it. Wear and tear. I’m asking because I walked to my backyard and my HR jumped to 130. Last week 120-130s when walking one block. It isn’t the numbers but the syncope. Did you have that during your blanking period?by susan.d - AFIBBERS FORUM
I am required by my cardiologist to participate in his practice’s Kardia Care Plan with 6 lead and BP cup. I am waiting for them to ship it to be but I downloaded the app. Under education, they describe pvc as following: “PVCs are the most common ventricular arrhythmia. As with PACs, these are usually benign and not a predictor of future heart disease or problems. They are spurred on by thby susan.d - AFIBBERS FORUM
If you go to the dentist or dermatologist, ask for linocaine “plain”. Regular has epi. I would go into tachy before I ever had AF with Linocaine regular (red writing, without Epi is either green or blue. When I first got AF, I was in the ER at the time not keeping any food down. Throwing up. ER gave me Reglan. I went into AF...cardiologist said it was triggered by Reglan because I was hydrateby susan.d - AFIBBERS FORUM
I am very happy for you! How did you find out how long fluoroscopy? I was never able to find out when he did mine. Very happy for you!by susan.d - AFIBBERS FORUM
Correction: It’s Carey, never Casey. Very bad case of double vision down and shifting to right where C and S are located on my iPhone. Sorry Carey...took a while to type thisby susan.d - AFIBBERS FORUM
My GI doctor likes a full bottle of miralax but my last was 10 years ago so he might had changed his protocol. I’m way overdue. I usually in the past take with coconut water like Casey suggested. Is there a concern for the overall natural sugar content? I happen to love coconut water but I found in my past AF episodes, there was a pattern for me, in a spike of high glucose in my labs. I then founby susan.d - AFIBBERS FORUM
QuoteShannon Hi Susan, As you may recall, in the week prior to your ablation when you sent me a ZIO patch report you recently had and asked my view of what it showed, I mentioned to you that I would not assume that you actually had VT (Ventricular Tachycardia), based on the very minimal short duration runs of PVCs noted in the report that you sent to me. Specifically, I said that overall, it loby susan.d - AFIBBERS FORUM
Sorry, I meant thank you Carey! QuoteCarey Yes, I know I said what you showed us was PVCs, Keep in mind that most people have no way of knowing what they're experiencing actually is unless they happen to be in a doctor's office with a 12-lead on their chest. Even Kardia and Apple Watch won't tell you if what you're feeling is a PAC, PVC, or whatever, so you can't expecby susan.d - AFIBBERS FORUM
Whole Paycheck? Ahh no chance! Thing is that I am mending now in my blanking period. My symptomatic pvc cause dizziness so I have to be careful. I stay away from my pond where I can fall once dizziness appears and no driving if dizzy, showers I use the bathroom with the only handrails and I don’t wander anywhere on my property that is hidden from plain site otherwise if I pass out (history),by susan.d - AFIBBERS FORUM
I would be zero bothered with a few pvc. But I don’t get a few. Yesterday I was chilling out by my new pond feeding my fish and watching my new fishes I bought the day before acclimate to their new home. The koi I baby to feed so I was outside for an hour really relaxed until I got pvc. I ignored them. I got extremely dizzy so I decided to walk inside because my husband had an accident and fellby susan.d - AFIBBERS FORUM
Thank you for an interesting link. Valium has a 200 half life or 8.3 days. I was clueless. Too late nowby susan.d - AFIBBERS FORUM
I found this site, written by an EP, helpful for me on further understanding what to expect after an ablation, especially GI issues and pain at the insertion groin areas concerns from this EP’s website remaining after 3 days. I slept briefly 3.5 hours interrupted yet another night. Up 3 times due to GI pain, bloated, gas and incredible burping marathon (more extreme than drinking a “big guby susan.d - AFIBBERS FORUM
everyone is different. One advise may not cover the target audience.by susan.d - AFIBBERS FORUM
What brand do you use? There are many offered on iherb, and amazon. I prefer supporting this forum if iherb offers close to what I am on now. My GP sells his own homeopathic Rx which has 782mg of marine lipid (from anchovies, sardines) EPA 330mg, DHa 170 mg, other omega-3 60mg, omega-7 210mg, and palmitoleic acid 110mg. He just closely tripled his price so I am looking for an equivalent suby susan.d - AFIBBERS FORUM
smackman: what symptoms do you get if you don't titration off Benzos? just curious. I used to be a sound sleeping until Sept 4th, 2004. The second my head hit the pillow I was out. Until I started Flecainide. The side effects listed includes insomnia. I would stay up until 5am trying to sleep and during the day doze off an hour at a time when sitting. One ER visit in 2004, the start of Flby susan.d - AFIBBERS FORUM
I didn’t need to take a benzo today...yesterday too with pvc. Heart is calm for once finally. During the night I couldn’t sleep more than 3 hours interrupted by pvc that was annoying but I just managed without a benzo. I felt so good today I went on my treadmill for 15 minutes on a slow 1.0 but I will work up the speed each day. I’ll repeat in a few hours and work up to 45 minutes at a faster speby susan.d - AFIBBERS FORUM