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Pain relief question

Posted by kliving 
Pain relief question
April 18, 2024 11:39AM
In addition to AFIB I also have problems with my back, hip, and suffer from some sciatic pain. We had planned a minor procedure, but my insurance decided it hasn't been proven to work enough for them to cover it. I used to take Motrin and an extra strength Tylenol to take the edge off the pain enough to allow me to get to sleep. As with many here, Motrin is not recommended while taking anticoagulants. Tylenol itself is not enough to do the job by itself. Doctors here are not open to prescribing pain medications, since opioid crisis. Which is fine, I would prefer to stay away from them if possible. But I am not sure might help with the pain I have and won't cause other problems. Anyone have any suggestion as to what might help? I haven't slept more than a few hours a night in a couple of weeks now because of it.
Re: Pain relief question
April 18, 2024 11:47AM
Tramadol seems to work for my wife who has several auto-immune disorders and whose body aches, burns, and is generally not great to live in. She was also prescribed a low-dose morphine when in an acute phase recently where she had to be catheterized in order to void. The prescription was to cover only the acute phase, maybe four days worth.
Re: Pain relief question
April 18, 2024 12:17PM
I have taken tramadol in the past, and it does affect my heart rate some. The doctors here are even hesitant to prescribe that, it seems. I may have to break down and ask him to prescribe something to help. It seems to make it worse, when I tell them I only need a few tablets a month. The pain is bad most of the time but getting up and moving around every hour helps to keep it at bay during the day. Usually it's just a few days here or there that it keeps me up, and I can't get to sleep. But the last couple of weeks it seems like every day. Thank you for your input!
Re: Pain relief question
April 18, 2024 02:33PM
Find a pain management specialist and book an appointment with them. You'll find the attitude toward narcotics vastly different, and they may have other options they can offer that other docs don't.
Re: Pain relief question
April 18, 2024 03:00PM
How about Gabapentin? I take it and it is helpful for some types of pain. It doesn't seem to affect my heart.

A couple other ideas: oral CBD oil--my EP gave that a green light. I take it for sleep but it does help many with pain. It is also helpful as a cream.

And here is a far out one (not really as there is a lot of research on it) Low dose Naltrexone. I take 3 mg when the "normal" dose is 50 mg. As I remember, George recently posted that his wife also takes it low dose and we both self-compound (with my doctor's blessing, dissolving a 50 mg tablet in 50 ml of distilled water) as otherwise it is expensive to get the low dose compounded from a compounding pharmacy. [www.ncbi.nlm.nih.gov]

Note, most who take it find that they have to titrate the dose up slowing from a minimal dose such as .5 mg. until you reach 3 or 4 mg. This is because at a low dose it seems to activate the immune system and this can result in side-effects.
Re: Pain relief question
April 18, 2024 05:55PM
Quote
Carey
Find a pain management specialist and book an appointment with them. You'll find the attitude toward narcotics vastly different, and they may have other options they can offer that other docs don't.

My doctor specializes in pain management. Florida still has a big problem with opioids, and most doctors here try to avoid prescribing them as a result, at least where I live currently. Not really complaining about it, but I would still like to have something that would help. Considering, at my last appointment we were at either ablating my sciatic nerve or looking at fusing the spine in my lower back. Fairly sure this is my fault for not complaining enough about the pain.
Re: Pain relief question
April 18, 2024 06:13PM
Quote
Daisy
How about Gabapentin? I take it and it is helpful for some types of pain. It doesn't seem to affect my heart.

A couple other ideas: oral CBD oil--my EP gave that a green light. I take it for sleep but it does help many with pain. It is also helpful as a cream.

And here is a far out one (not really as there is a lot of research on it) Low dose Naltrexone. I take 3 mg when the "normal" dose is 50 mg. As I remember, George recently posted that his wife also takes it low dose and we both self-compound (with my doctor's blessing, dissolving a 50 mg tablet in 50 ml of distilled water) as otherwise it is expensive to get the low dose compounded from a compounding pharmacy. [www.ncbi.nlm.nih.gov]

Note, most who take it find that they have to titrate the dose up slowing from a minimal dose such as .5 mg. until you reach 3 or 4 mg. This is because at a low dose it seems to activate the immune system and this can result in side-effects.

I plan on asking about Gabapentin when I can get my next appointment. Not sure how much it would help, but it does seem to be a reasonable candidate to try. If you wouldn't mind, could you recommend a CBD oil to try? And maybe a good starting dose.
Re: Pain relief question
April 18, 2024 06:49PM
Quote
kliving
My doctor specializes in pain management. Florida still has a big problem with opioids, and most doctors here try to avoid prescribing them as a result, at least where I live currently. Not really complaining about it, but I would still like to have something that would help. Considering, at my last appointment we were at either ablating my sciatic nerve or looking at fusing the spine in my lower back. Fairly sure this is my fault for not complaining enough about the pain.

It's that way everywhere. The medical community lost their minds over the opioid crisis, which was a crisis of their own making. They've gone so far over the edge that I've heard of them refusing to prescribe narcotics for terminal cancer patients.

For example, about 6 months ago I developed severe arm and shoulder pain combined with tingling and weakness in my right hand due to a pinched nerve in my neck. The pain was downright debilitating and totally unrelenting, but my PCP wouldn't do any better than prescription strength NSAIDs, which barely even touched the pain. Plus that meant I had to stop Eliquis since I was taking hefty doses daily for weeks. So I finally went and found a pain management clinic. Once they verified the cause with MRI, they prescribed oxycodone (10 mg tid). After one month I had to pee in a cup (to prove I was taking it, not diverting it), and once I passed that test they renewed the prescription without even being asked. I finally got at least partial relief from a cortisone injection in my neck so I stopped the oxy and the NSAIDs, but they are willing to represcribe any time I feel I need it.



Edited 1 time(s). Last edit at 04/18/2024 07:01PM by Carey.
Re: Pain relief question
April 18, 2024 07:32PM
Quote
kliving
I plan on asking about Gabapentin when I can get my next appointment. Not sure how much it would help, but it does seem to be a reasonable candidate to try. If you wouldn't mind, could you recommend a CBD oil to try? And maybe a good starting dose.

Gabapentin seems to be a "try it and see" medication. I had to start with a very low dose and slowly increase it as it made me groggy at first.

And CBD seems to be regulated differently in different states. I am in a state with legal cannabis so there are shops in every shopping center with a wide variety of products. If you have access to a local shop, their recommendations might be the most helpful. Since I am taking it for sleep the formula I am taking includes CBN but that might not be true for pain relief. Again, starting with a low dose, as recommended by a local shop if you have one, and working up would be the safest as even CBD can make you groggy if you take too much.

Here is the cream I use: [www.facebook.com]

The Facebook page doesn't say where to buy it though there is a website by the same company that doesn't mention that particular product. It may be regulated state by state. I buy it directly from the chemist who makes it, but one of the other products on their website might be helpful as well: [nuvocool.myshopify.com]
Re: Pain relief question
April 18, 2024 07:44PM
Quote
Carey

My doctor specializes in pain management. Florida still has a big problem with opioids, and most doctors here try to avoid prescribing them as a result, at least where I live currently. Not really complaining about it, but I would still like to have something that would help. Considering, at my last appointment we were at either ablating my sciatic nerve or looking at fusing the spine in my lower back. Fairly sure this is my fault for not complaining enough about the pain.

It's that way everywhere. The medical community lost their minds over the opioid crisis, which was a crisis of their own making. They've gone so far over the edge that I've heard of them refusing to prescribe narcotics for terminal cancer patients.

For example, about 6 months ago I developed severe arm and shoulder pain combined with tingling and weakness in my right hand due to a pinched nerve in my neck. The pain was downright debilitating and totally unrelenting, but my PCP wouldn't do any better than prescription strength NSAIDs, which barely even touched the pain. Plus that meant I had to stop Eliquis since I was taking hefty doses daily for weeks. So I finally went and found a pain management clinic. Once they verified the cause with MRI, they prescribed oxycodone (10 mg tid). After one month I had to pee in a cup (to prove I was taking it, not diverting it), and once I passed that test they renewed the prescription without even being asked. I finally got at least partial relief from a cortisone injection in my neck so I stopped the oxy and the NSAIDs, but they are willing to represcribe any time I feel I need it.

I understand, I got messed up when tricare decided not pay for the procedure. I ended up getting dropped out of my appointment schedule and need to get back into the system to get the MRI results, and figure out the next step. I was hoping for at least the cortisone injections again if nothing else. Not a cure all, but it did help enough to get some sleep. Perhaps I am just stressed out today and feel like complaining a bit. Motrin helped enough I could get comfortable long enough to fall asleep, the same is true with the cortisone shots. I am probably going to need to have the work done on my back, but I would really like to hold off longer.
Re: Pain relief question
April 18, 2024 08:00PM
Quote
Daisy
Gabapentin seems to be a "try it and see" medication. I had to start with a very low dose and slowly increase it as it made me groggy at first.

And CBD seems to be regulated differently in different states.

That is the opinion I get from reading and talk to a couple of people I know here. One individual swears by it and the says it is just ok for him.

CBDs are legal here, but I haven't found a shop I trust just yet. Thank you for trying to help!
Re: Pain relief question
April 19, 2024 12:17AM
Have you tried muscle relaxers? They are actually usually more effective than pain medication. If you cannot get a prescription, there is a natural alternative (Valerian) but most likely Flexeril or Tizanidine would be better.
Re: Pain relief question
April 19, 2024 08:46AM
Quote
MeganMN
Have you tried muscle relaxers? They are actually usually more effective than pain medication. If you cannot get a prescription, there is a natural alternative (Valerian) but most likely Flexeril or Tizanidine would be better.

I have not recently, but I will ask about it at my next appointment. It seems I don't complain enough about the pains I have and need to start expressing it more at the doctor's office. Thank you for the ideas and hope you are getting some resolution with your problems.
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