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One mans route to being AF free

Posted by Barry G. 
One mans route to being AF free
January 25, 2020 06:21AM
Just found this on my computer but cannot remember ever down loading it. Google ….. Some unrelated material by the author Steven Carr — about

I am sure many afibbers cannot afford ablations or possibly just fear having one so this guys way to being AF free is worth trying. It is basically Paleo diet and although it may get a bit confusing in a few parts the guy gets his case through convincingly.

PS. Still Atrial Flutter free and solid NSR since cardioversion 6 months ago.

Barry G.
Re: One mans route to being AF free
January 25, 2020 07:54AM
Barry:

There is a still somewhat active Topic thread, with plenty of updated detail, on this site at http://www.afibbers.org/forum/read.php?10,171974



Edited 1 time(s). Last edit at 01/25/2020 08:07AM by SteveCarr.
Re: One mans route to being AF free
January 25, 2020 08:06AM
Hi Barry,

There is a lot of detailed info on Steve Carr's experiment, that some of our readers are exploring now too, on the General Health Forum for anyone to follow so take a look there to get more info and to keep up with Steve's project.

Cheers!
Shannon
Re: One mans route to being AF free
January 25, 2020 08:38AM
Quote
Barry G.
PS. Still Atrial Flutter free and solid NSR since cardioversion 6 months ago.

Barry G.

Great news Barry! Continued NSR to you!!!
Re: One mans route to being AF free
January 25, 2020 11:42PM
Hi again guys.

After reading your comments above I realized I briefly skipped through Steve's initial post a month or so back however I long since stopped looking for a 'natural' way out of the AF world and ultimately went the ablation route - 5 times. 2007 to 2010.
I only visit the Forum occasionally now either to buy from the iHerb store or just checking if a new breakthrough has occurred in eliminating AF etc etc
Reading Steve's 'story' which strongly indicates calcium being a major player in causing arrhythmias I simply googled.. too much Calcium causes arrhythmias and up popped this website....medicanewstoday.com/articals/271427.php#1

In their study report they describe manipulating the calcium sensor in the mice, and how doing so completely prevented calcium-triggered arrhythmia's.
Dr. Chen says:

"The calcium-sensing gate mechanism discovered here is an entirely novel concept with potential to shift our general understanding of ion channel gating, cardiac arrhythmogenesis, and the treatment of calcium-triggered arrhythmia's.

These findings open a new chapter of calcium signaling and the discovery fosters the possibilities of new drug interventions."

This may be old news to you guys but I certainly found the articular interesting and certainly appears to support Steve's views on the connection between calcium and AF. I know George's freedom of AF follows his regimen of very high intake of magnesium which I believe may well suppress any possible calcium overload.

Cheers,
Barry G.
Re: One mans route to being AF free
January 25, 2020 11:58PM
Thanks George, yes NSR is to be treasured. I initially followed your idea of exercising only at the level of breathing nasally which may well have nursed me thru the first months after the cardio version. I say exercising but I really mean walking around a construction site all day up and down external access route's of this new power station project. Unfortunately I have to accept that running and hard gym work are things of the past but general hiking the hills is well within my capabilities at age 70. Without doubt when AF/AFL shows up again I will go full on Vit D low calcium as per Steve's plan meanwhile I will be looking to cut down on the calcium though I believe my consumption is not a great amount anyway.

Cheers,
Barry G.
Joe
Re: One mans route to being AF free
January 26, 2020 01:38AM
Hope your ablations continue to hold!
BTW, your link doesn't work but it got me to google Dr Chen. Looks like he produced a lot of research.
[www.google.com]
smileys with beer
Re: One mans route to being AF free
January 26, 2020 04:56AM
Hi Joe.

Yes the ablations appear to still be holding, I had the full slash and burn in Bordeaux in 2010 i.e. there was nothing more they could do at the time. Before I put the link up I tried it on Internet Explorer and Google Chrome and Google Chrome was successful. Another way may be to Google Chrome...…. Researchers find cause of calcium-triggered arrhythmias..... which also works.

Cheers,
Barry G.
Re: One mans route to being AF free
January 26, 2020 12:08PM
Quote
Barry G.
This may be old news to you guys but I certainly found the articular interesting and certainly appears to support Steve's views on the connection between calcium and AF. I know George's freedom of AF follows his regimen of very high intake of magnesium which I believe may well suppress any possible calcium overload.

And I also restrict calcium, though am not as fanatic about it as Steve. Essentially I don't consume dairy, which is the highest source of calcium in most diets.

Here is a link that works <[www.medicalnewstoday.com] Here is the abstract <[www.nature.com]
Joe
Re: One mans route to being AF free
January 26, 2020 06:00PM
thumbs upBarry and George
Re: One mans route to being AF free
January 27, 2020 03:57AM
Gosh, I have a lot of reading to do relative to this thread...and so many other threads as well! It's now close to 1:00 a.m. so I'll have to save it for much later, but thank you so much for posting this, and for those who replied, and for the links!

A-fib still scares me & I feel helpless in the face of it.

I keep thinking that my "runs" of a-fib won't resolve on their own and off I'll have to go to the ER as had happened last Dec. I have my backup intervention plans to do before I go to the ER, like an additional flecainide and 2 or 3 seemingly quite different breathing techniques, as well as relaxation and meditation, valsalva/vagal? maneuvers, wait it out (it all puts me on edge!), etc.

It seems this beast will do what it wants. What works for one may not work for another, but there's always more reading and exploring to do, and questions to ask.
Thank goodness for this forum!!!!!
Sue



Edited 2 time(s). Last edit at 01/27/2020 04:06AM by SueChef.
Re: One mans route to being AF free
January 27, 2020 01:21PM
Hi Barry

Good to hear from you, very pleased that the cardioversion is still holding, long may it last! On January 8th I celebrated 17 years since my 'cringe' ablations in Bordeaux in 2003. (Long term readers will understand the 'cringe' bit!)

Can't believe I have been so lucky, especially since it was for long term persistent AF, at a time when few EPs were even attempting to ablate that. I've had occasional bumps along the way, can’t tell if they are short bursts of AF or just runs of many ectopics, but they are very brief and aren’t getting any longer or more frequent. An EP once told me that ablation might not prevent AF from initiating itself but should make it impossible for it to sustain itself. So I just assume that the lines are doing their job and get on with life.

Gill
Re: One mans route to being AF free
January 27, 2020 03:13PM
Quote
Gill
An EP once told me that ablation might not prevent AF from initiating itself but should make it impossible for it to sustain itself. Gill

Nail. Head. IMO FWIW.
Re: One mans route to being AF free
January 27, 2020 03:35PM
An EP once told me that ablation might not prevent AF from initiating itself but should make it impossible for it to sustain itself. Gill


Then why do people have more than one ablation, sometimes they have 3 or maybe 6?

L
Re: One mans route to being AF free
January 27, 2020 04:23PM
Quote
Elizabeth
Then why do people have more than one ablation, sometimes they have 3 or maybe 6?

Because the ablation wasn't complete or wasn't performed correctly. That can happen through lack of training and experience, and it can happen even to highly experienced EPs because a source of afib exists that wasn't apparent during the procedure.

But the statement is true. A properly done ablation line makes it impossible for afib signals to get past the line. So if there is a properly done ablation line completely encircling a source of afib, that source can't cause afib because the signals can't leave the circle.
Re: One mans route to being AF free
January 27, 2020 05:12PM
Carey said:


(But the statement is true. A properly done ablation line makes it impossible for afib signals to get past the line).

The following is from Stop Afib.Org


Very late recurrence differs from early or late recurrence. Early recurrence occurs within three months of catheter ablation and is related to tissue inflammation that arises from ablation. If atrial fibrillation returns during this period, it usually subsides after the tissue has healed.

If afib recurs during the three to 12 months after ablation, it is characterized as late recurrence. Late recurrence is not uncommon following pulmonary vein isolation, which is the cornerstone of catheter ablation. Pulmonary vein isolation entails creating scars on atrial tissue (“lesion lines”) that will prevent abnormal heart rhythms from circulating in the heart. Even though doctors confirm that electrical conduction has been blocked during the procedure, the pulmonary veins can “re-connect” in the three to 12 months after catheter ablation. In fact, about 30% of patients undergo a repeat procedure within the first year.

This happens with all EPs, highly skilled or not.



Edited 1 time(s). Last edit at 01/27/2020 05:17PM by Elizabeth.
Re: One mans route to being AF free
January 27, 2020 08:32PM
Quote
Elizabeth
This happens with all EPs, highly skilled or not.

Yes it does, but the difference is how often. Top EPs have success rates over 90% while average EPs manage about 75% and EPs who shouldn't be doing ablations at all come in around 50-60%.

An expert ablationist doesn't have ablations fail because they made inadequate lesions or couldn't find sources outside the pulmonary veins. They fail because sources of afib remained in hiding during the procedure and only revealed themselves later. C'mon, you know how idiopathic afib is. We see it every day on this forum. It can occur for no known reason and not occur when we think it will. The same thing happens in an EP lab.
Re: One mans route to being AF free
January 27, 2020 11:40PM
Hi Gill, good to see you are still posting and giving newbies some hope of a way out of this hideous affliction. 17 years on after that 'cringe' ablation in Bordeaux is certainly a great achievement. I trust you have found other activities now that you have retired from marine diving around the world. The only time I went scuba diving was in the Philippines and it immediately brought on a 24 hour AF attack.:-(

Yes the recent cardio-version - for Atrial Flutter - is still holding and yesterday for the first time in 6 months I ventured out on a 2 1/2 hour hike around the local hills here in Hong Kong with my 21 year old daughter and her 24 year old Californian boyfriend and not a single missed beat as far as I know.

For any newbies..
After my last ablation (of 5 total) 10 years ago by Prof Jais in Bordeaux he stretched back in his chair with his head in bits and said in total frustration, he "could not get it all" but the amount of work he had done should keep me out of AF/AFL which proved true until just 6 months ago when Atrial Flutter kicked in whilst on the 'rowing machine' at the gym. I fully believe that ablation kept the AFIB away however Left Atrial Flutter??? the most difficult to ablate, sneaked in under the radar.

Cheers,
Barry G.
Re: One mans route to being AF free
January 27, 2020 11:58PM
Hi Carey, your line....

'They fail because sources of afib remained in hiding during the procedure and only revealed themselves later'.

On my visit to Escorts hospital in New Delhi (India) for ablation number 1 I was in full blown AFIB for around 36 hours before the procedure began. 10 minutes before I was taken to the Cath. Lab the AFIB stopped dramatically and I fully believe the 'natural' AFIB went in hiding throughout the procedure making the EP's chances of creating a 100% successful ablation impossible. That ablation definitely did reduce my AF burden by 80%?? though.

Cheers,
Barry G.
Re: One mans route to being AF free
January 28, 2020 01:23AM
Quote
Barry G.
On my visit to Escorts hospital in New Delhi (India) for ablation number 1 I was in full blown AFIB for around 36 hours before the procedure began. 10 minutes before I was taken to the Cath. Lab the AFIB stopped dramatically and I fully believe the 'natural' AFIB went in hiding throughout the procedure making the EP's chances of creating a 100% successful ablation impossible. That ablation definitely did reduce my AF burden by 80%?? though.

Yep, that's typical. A top-notch EP would get past that, but an average EP would have a problem with it.
Re: One mans route to being AF free
February 20, 2020 10:37AM
Hi Elizabeth,

Would you by chance be able to locate the initial link for Steve Carr's post regarding Ca and afib. I hear a lot of folks talking about it and can't seem to find it.

Thanks, Jeff Walkup
Re: One mans route to being AF free
February 20, 2020 04:48PM
Jeff:

Yes, go to the General Health Forum, click on it and scroll down you will find Steve Carr's post, lots of info there on CA and Afib.

liz
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