Another New Afibber with questions & support needed August 01, 2019 04:16PM |
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Re: Another New Afibber with questions & support needed August 01, 2019 04:24PM |
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Re: Another New Afibber with questions & support needed August 01, 2019 04:48PM |
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Re: Another New Afibber with questions & support needed August 01, 2019 04:52PM |
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Re: Another New Afibber with questions & support needed August 01, 2019 05:01PM |
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Re: Another New Afibber with questions & support needed August 01, 2019 05:02PM |
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Re: Another New Afibber with questions & support needed August 01, 2019 05:07PM |
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Re: Another New Afibber with questions & support needed August 01, 2019 06:40PM |
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I haven’t had one since January, and that was at a time I had some flu-like illness—inflammation and dehydration can bring it on. I take a fairly low dose of flecainide (75mg twice daily) and don’t notice any side effects though I did when I was on 100 mg twice daily. No side effects from Eliquis. Even if I cut myself I don’t have more bleeding. I have only had the pacemaker a bit less than a year and I’ve had Afib for 9 years. The pacemaker also uploads its data to the manufacturer as well as my EP every night. I’ve never had a lot of episodes as after I saw an EP who put me on flecainide, I’ve been well controlled—but since it will fail sooner or later, I will be seeking an ablation from D. Natale in the future.Quote
Ingrid
Daisy
Thanks for your response. It was very helpful. Do you still have AF episodes? Do you have any side effects from the flecainide or Eloquis? How long did you have Afib before you had the pacemaker and how long have you had Afib for?
Ingrid
Re: Another New Afibber with questions & support needed August 01, 2019 06:41PM |
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Re: Another New Afibber with questions & support needed August 01, 2019 06:55PM |
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Re: Another New Afibber with questions & support needed August 01, 2019 09:14PM |
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safib
Anticoagulation for stroke prevention associated with Afib is determined primarily by your CHA2DS2-VASc score, not your Afib symptoms or burden (duration, frequency, etc.). Aspirin is not considered effective for this purpose. The newer NOACs are preferred over the traditional warfarin. Nattokinase seems promising and there is some evidence for it, but I would take a NOAC if mandated by CHADS.
Re: Another New Afibber with questions & support needed August 01, 2019 09:36PM |
Registered: 5 years ago Posts: 269 |
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Joe
Pretty sure the cardiologist told me to anti-coagulate if/when my Afib lasts for more than 2 hours regardless of Scores? Have i got that wrong?[/quote
I have had one Afib episode back in November 2018. I took Eliquis for about 3 months until the EP told me to stop and only start again if I had another episode.
Re: Another New Afibber with questions & support needed August 01, 2019 11:32PM |
Registered: 11 years ago Posts: 4,226 |
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Ingrid
Is anyone managing this without meds successfully or gone into remission -is that even possible?am hoping to ma
I nage this without any procedures or meds for as long as I can as I am concerned about the side effects, but I am also concerned about not being on any meds and stroke risk especially during a future episode.
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Is anyone taking the Nattokinase supplement as a natural anticoagulant rather than Rx with success?
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Could it be long distance running for so many years? Genetic? Consuming wine over the years?
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When trying to figure out triggers, how long before an Afib event would something be considered a trigger?
The last episode I had, was 24 hours after I had a few glasses of wine so could that be considered the trigger that many hours later?
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Does anyone still consume wine/alcohol moderately (1-2 glasses occasionally) or is that totally out of the question now?
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When do you recommend someone go to the ER when having an Afib episode or how long do I wait?
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Does anyone have a pacemaker and if so, does it help at all with AF episodes?
Re: Another New Afibber with questions & support needed August 02, 2019 04:49AM |
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Re: Another New Afibber with questions & support needed August 08, 2019 12:58PM |
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Re: Another New Afibber with questions & support needed August 08, 2019 01:07PM |
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Re: Another New Afibber with questions & support needed August 08, 2019 01:16PM |
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Re: Another New Afibber with questions & support needed August 08, 2019 02:17PM |
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Re: Another New Afibber with questions & support needed August 08, 2019 09:40PM |
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Re: Another New Afibber with questions & support needed August 09, 2019 01:45PM |
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Re: Another New Afibber with questions & support needed August 09, 2019 08:57PM |
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Re: Another New Afibber with questions & support needed August 10, 2019 12:03PM |
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Both times I've been converted I was told I needed to be on anticoagulants for a minimum of 3 weeks.Quote
Ingrid
I’m afraid they may do a cardioversion that can be risky – especially since I am not on any blood thinners.
Re: Another New Afibber with questions & support needed August 10, 2019 01:18PM |
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Re: Another New Afibber with questions & support needed August 10, 2019 05:08PM |
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Re: Another New Afibber with questions & support needed August 15, 2019 08:31AM |
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Re: Another New Afibber with questions & support needed August 15, 2019 03:36PM |
Registered: 4 years ago Posts: 38 |
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JoyWin
Hi Ingrid
Welcome to the club🤨
Each of us has different ways to tackle this nasty beast. What works for one may not work for another, but the advice on this site is beneficial because you can gain plenty of insight into the different methods others use to control their symptoms.
Fear and anxiety are a natural response when it involves ones heart. After 15 years of AF with episodes 4-5 times a month you’d think I would be used to it, but I still get a bit anxious when I have an episode. I’m in AF as I write, very chaotic and last reading, heart rate 178bpm.
You will handle it easier the more you know about it. Read all you can. There is a wealth of info here to start you off. The essential trio is excellent, not a cure obviously, but it does help. It’s a matter of trying different supplements to ascertain what works for you. I’m surprised you’re not on anticoagulants if you are having regular episodes as the risk of stroke with AF is high.
All the best.
Re: Another New Afibber with questions & support needed August 16, 2019 08:50AM |
Registered: 12 years ago Posts: 247 |
Re: Another New Afibber with questions & support needed August 17, 2019 09:57AM |
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Re: Another New Afibber with questions & support needed August 19, 2019 04:56PM |
Registered: 4 years ago Posts: 38 |
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chrrev
hello Ingrid, I’m also new to this (joined 22/07) but anyways I’ll share how I try to cope... I’m 60 by the way so it’s a little more expected at my age.
I refuse to take any drugs, it was bad enough going twice to ER and being given drip of amiodarone to get back in SR...
So in my case I drastically changed my lifestyle and stopped all alcohol, tobacco, reduced coffee and avoid Robusta (most commercial coffee outlets) in favour of Arabica, etc.
Stress is probably the hardest to come to grips with...
Other than that, I found Coq10 was pretty good along with Magnesium, D3 and B complex... I also drink fairly regularly wenxinkeli, a chinese herbs mixture which I find quite soothing and as of today Astragalus granules - see another post of mine on this for details... Bought some taurine the other day as I read it could be beneficial for sleep - mine isnt that great - and some ganoderma... Thats about it, I have fairly fast HR in the day, which can be uncomfortable but no Afib proper since December 31 2018... Touch wood!
All the best!
Re: Another New Afibber with questions & support needed August 22, 2019 05:00PM |
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Re: Another New Afibber with questions & support needed August 22, 2019 05:10PM |
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Re: Another New Afibber with questions & support needed September 11, 2019 09:39AM |
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