Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 07, 2019 08:34PM |
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Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 07, 2019 09:10PM |
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Catherine
Carey, go back and read the OP’s post and stop inserting your script into what YOU think has happened to him.
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I don’t appreciate your accusing me of “fear mongering” and censoring the forum. Instead, I would have hoped you would have addressed some of the points I made; for example, you bandy about the positive research and data, etc. on a drug that is comparatively new, and you express no concern about it being dispensed without an antidote.
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I might have mentioned, in a past post, when my husband was hospitalized after valve replacement surgery, the gentleman in the next bed was bleeding internally and for fwo days his doctors were unable to find the source. He was scheduled for exploratory surgery the next morning. He was on Xarelto and they had no antidote.
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 07, 2019 09:22PM |
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Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 07, 2019 09:54PM |
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Elizabeth
Anticoagulants do not cause bleeding. -------
Once bleeding starts anticoagulants promotes it.
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 08, 2019 07:53AM |
Registered: 9 years ago Posts: 182 |
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GaryPNW
One additional comment on risk of blood clots with Afib. On the question of, does someone with controlled afib need to be on an anticoagulant, my EP replied that at that time (about 3 years ago) studies had not been able to show a statistical difference in the risk of clotting between controlled and uncontrolled populations.
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 08, 2019 01:46PM |
Registered: 11 years ago Posts: 4,222 |
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tobherd
Not sure if I posted here on this or not...but Dr. Natale's assistant said that they don't use the CHAD score anymore to determine whether or not to take you off the Eliquis - they use the TEE.
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 08, 2019 01:51PM |
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Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 10, 2019 03:01PM |
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safib
One additional comment on risk of blood clots with Afib. On the question of, does someone with controlled afib need to be on an anticoagulant, my EP replied that at that time (about 3 years ago) studies had not been able to show a statistical difference in the risk of clotting between controlled and uncontrolled populations.
That's why CHADs doesn't differentiate, it applies to Afib whether controlled or not. So your EP statement in no way negates the evidence for use of anticoagulant with Afib.
What does it mean to be controlled in this context, did you ask him/her? Controlled as in duration and frequency? Controlled as in having TEE with certain results?
There are recent studies which are attempting to assess risk with stratified Afib. Until that's done, self-supplementing as an alternative to NOACs because of some parameter like elevated blood viscosity (even if it could be reliably and repeatably measured) and/or your perception of how controlled your Afib is completely lacks evidence compared to CHADs or TEE. With regard to the latter, I have confidence Natale has the evidence to support his approach.
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 10, 2019 06:25PM |
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Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 10, 2019 07:06PM |
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Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 10, 2019 09:55PM |
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Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 11, 2019 12:20AM |
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wolfpack
Probably because aspirin is useful in cases where platelets encounter anything other than smooth endothelium, like stents or an occlusion device.
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 11, 2019 11:54AM |
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Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 11, 2019 01:21PM |
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bettylou4488
so reading thru the comments because I really want to take ibuprofen for this potential kidney stone or whatever pain it is. (appt w/ urologist tomorrow.) I take xeralto but looking at that scoring thing as i understand it.. If you have or had afib that is factored in. The female part was taken out. So i don't need to count that. But i do have high BP. So that is just 1 point? Not 2 (for the female part). None of the other factors seem to fit for me. I did have some problems when i was on metrop (and had to take 3 days of lasix) but i truly think that was the drug b/c i am fine now. My BNP blood test went down way below normal. Plus outside even the kidney stone issue- do i NEED to take this for a YEAR (at least?) i have 2 friends who have afib.. one is on dofetilide (like me) and went in the hospital to get on it- and did not go home on any blood thinner. THe other friend goes in and out. She takes solotel PIP and elaquis for a few days after.. then stops both. Is there an SOP?
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 11, 2019 07:00PM |
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bettylou4488
do i NEED to take this for a YEAR (at least?)
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 13, 2019 12:04PM |
Registered: 6 years ago Posts: 60 |
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 13, 2019 02:37PM |
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Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 13, 2019 03:28PM |
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Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 13, 2019 03:29PM |
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Elizabeth
The article said that 20% of all strokes are because of AF, so what is the 80% due to?
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 13, 2019 05:25PM |
Registered: 6 years ago Posts: 819 |
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alxndr01
I was emailing with a guy in New Zealand and he was paying $30 a month for Eliquis. The high prices in the U.S. are to take up the slack from those really inexpensive costs in other countries.
I've looked into the comments of many people who are taking Eliquis. Most of them don't like it. Like many things you mainly hear from the people who tend to get relatively positive results. You rarely hear from the people having problems after the drug gets into the public.
[ethicalnag.org]
Check this out. They're already in the 2nd stage trials.
[www.prnewswire.com]
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 13, 2019 05:30PM |
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Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 13, 2019 06:11PM |
Registered: 9 years ago Posts: 182 |
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Carey
The article said that 20% of all strokes are because of AF, so what is the 80% due to?
All those other things the CHADS-Vasc score measures.
.
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 13, 2019 07:23PM |
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Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 13, 2019 08:29PM |
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Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 13, 2019 10:33PM |
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Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 14, 2019 12:55AM |
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Dean
The vast majority of afibbers on this forum have drastically altered their eating habits and lifestyles for the better so vastly diminishing their risk of stroke from all causes.
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 14, 2019 04:01AM |
Registered: 11 years ago Posts: 551 |
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Carey
The vast majority of afibbers on this forum have drastically altered their eating habits and lifestyles for the better so vastly diminishing their risk of stroke from all causes.
They have? Not sure if that's true and how you would know it, but even if it is true, what's the stroke rate for people on this forum?
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 14, 2019 10:33AM |
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Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 14, 2019 01:05PM |
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Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 14, 2019 03:59PM |
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colindo
Well Carry,
If you change your life style, cut out alcohol, reduce weight, lower blood pressure, eat low carb, get off the couch etc.
You will reduce your afib load and change your CHAD score to a point where you won't need any blood thinners which will stop its calcification action.
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 14, 2019 04:43PM |
Registered: 11 years ago Posts: 551 |
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 14, 2019 05:43PM |
Registered: 9 years ago Posts: 182 |
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colindo
Well Carry,
If you change your life style, cut out alcohol, reduce weight, lower blood pressure, eat low carb, get off the couch etc.
You will reduce your afib load and change your CHAD score to a point where you won't need any blood thinners which will stop its calcification action.
A better alteritive then would be nattokinase or Natto as well. It's at least thinning my blood and has lowered my figrinogen level, it's also making my finger and toe nails grow faster. Which means that calcium which does the damage to your artries and causes strokes is now going where it belongs, to my bones.
Some more info for you Carry.
Natto. There isn't pill like it
NATTO ADVANTAGES, the wonder food.
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 14, 2019 06:00PM |
Registered: 6 years ago Posts: 819 |
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 14, 2019 06:01PM |
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colindo
Nattokinase. I wonder if there was money to be made from it, would we see evidence of its effectiveness?
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 14, 2019 06:44PM |
Registered: 11 years ago Posts: 551 |
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safib
Well Carry,
If you change your life style, cut out alcohol, reduce weight, lower blood pressure, eat low carb, get off the couch etc.
You will reduce your afib load and change your CHAD score to a point where you won't need any blood thinners which will stop its calcification action.
A better alteritive then would be nattokinase or Natto as well. It's at least thinning my blood and has lowered my figrinogen level, it's also making my finger and toe nails grow faster. Which means that calcium which does the damage to your artries and causes strokes is now going where it belongs, to my bones.
Some more info for you Carry.
Natto. There isn't pill like it
NATTO ADVANTAGES, the wonder food.
So you are advocating ignoring CHADs and not taking prescribed anticoagulants, and instead proceeding with trying to lower CHADs enough that eventually you no longer need to take anticoagulants (according to CHADs!). You then follow this by the natto (miracle drug). The problem with your plan is there is no rigorous validation of any of it. In addition, there is plenty of risk in the interim while you are trying to reduce CHADs, if you can do it at all. This in addition to the unknown safety and dosing and efficacy data for natto.
These kinds of approaches which go against the best evidenced-based medical opinion are ill-informed and potentially dangerous.
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 14, 2019 07:52PM |
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Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 14, 2019 07:59PM |
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colindo
If you have a CHADs score of 2 you have a 2% chance of a stroke, then if you take a blood thinner you have a 3% chance of a blood bleed.
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 14, 2019 09:19PM |
Registered: 11 years ago Posts: 551 |
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 14, 2019 09:42PM |
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colindo
Never the less 98% chance of not having a stroke are good odds. No one is going to guarantee blood thinners is going to improve those odds much.
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 14, 2019 09:51PM |
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Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 14, 2019 10:02PM |
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Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 14, 2019 10:18PM |
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Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 14, 2019 10:24PM |
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Carey
This whole theory that afib is a lifestyle disease is a crock, in my opinion. Lifestyle can influence it and make it better or worse, but it's not a cause.
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 14, 2019 10:58PM |
Registered: 11 years ago Posts: 551 |
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wolfpack
This whole theory that afib is a lifestyle disease is a crock, in my opinion. Lifestyle can influence it and make it better or worse, but it's not a cause.
I concur.
I got AF at 6’0”, 170 lb, BP 115/70, running 35 miles/wk, eating a zero-fat diet and, of course, not smoking. What was I supposed to do to rend the “Scarlet AF” from my chest?
My dad got AF at age 50. My mom at age 71. Hmmm...
If poor diet and holding down sofas from the deleterious effects of anti-gravity were the sole cause of AF, it’d be a lot more prevalent than 5% of the population!
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 14, 2019 11:02PM |
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Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 14, 2019 11:20PM |
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colindo
So telling forum members that lifestyle changs is a crock is not good advise. BTW not all afibbers are like yourself and Carey.
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 14, 2019 11:22PM |
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Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 15, 2019 12:49AM |
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colindo
So telling forum members that lifestyle changs is a crock is not good advise.
Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 15, 2019 09:50AM |
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Re: Now I am really afraid to stay on Eliquis....today was an eye opener February 15, 2019 12:08PM |
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