Welcome to the Afibber’s Forum
Serving Afibbers worldwide since 1999
Moderated by Shannon and Carey
 |
 |
 |
 |
 |
 |
Show all posts by user
A forum for sharing experiences regarding atrial fibrillation and other atrial tachy-arrhythmias.
Re: Varipulse - 1 year ago
QuotecjkdmThis is how technology and care move forward however—companies invest in research and development and then when they develop new technology that is effective and approved they market it aggressively to recoup investment and turn a profit. It's also, quite often, the first time we really hear about the (industry-known but not generally well publicized to the consumer) downsides ofby NBeener - AFIBBERS FORUM
Re: A trigger for AF episodes? - 1 year ago
QuoteLornaNI am not sure if we have EPs in the UK, probably but not necessarily by that name. The country has EP's. I'm not sure about your area, though: Welcome. Sorry you find yourself needing to be here :-)by NBeener - AFIBBERS FORUM
Re: Do not play doctor - 1 year ago
Quotesusan.d However the test results, skimpy as it is, does not show Amyloidosis, which is good news. Dr Natale suspected I had it because one of the symptoms is afib. Unfortunately, amyloidosis was neither ruled IN nor ruled OUT -- certainly not by that MRI. Negative results are not diagnostic in a case like yours. Too many false negatives in most of the non-invasive tests. Only positiveby NBeener - AFIBBERS FORUM
Re: Do not play doctor - 1 year ago
Quotesusan.dWhile at the hospital, I was given an Echo. Having probably a higher PVC burden than before, the echo results show cardiomyopathy and pulmonary hypertension. My EF dropped in 4 weeks slightly but that could be erroneous but it was done by a doctor, not a tech. I basically have difficulty breathing when I am lying down. When discharged, I was able to get oxygen delivered. I have no insby NBeener - AFIBBERS FORUM
Re: CAN AN ABLATION AFFECT YOUR O2 SATURATION?? - 1 year ago
QuotePokeyI think that’s probably a long shot but wondering if I should share with my EP. IMHO, couldn't hurt, might help (to let the EP know). It's unique enough, and ... whether or not it sounds whacky (it does) ... you did do your homework, so it isn't beyond the realm of possibility. I'd let the EP be the judge of whether or not it's applicable in your case.by NBeener - AFIBBERS FORUM
Re: CAN AN ABLATION AFFECT YOUR O2 SATURATION?? - 1 year ago
QuotePokeywhat’s some of the other possibilities? Carey's right. Maybe it's apnea, maybe it isn't, but you need to be evaluated. QuoteCareyThe list of things that can cause SOB is long, but what you just described sounds like sleep apnea. Really, go see your doc instead of trying to guess. QuotePokeyIt did show mildly dilated left & right atrium. Which says to me thatby NBeener - AFIBBERS FORUM
Re: After stopping Nebivilol my anxiety level has gone up - 1 year ago
I'm not in a position to either remember or go back and get a better sense of your history, but I do seem to recall that beta-blockers were more or less knocking you flat. Have you been diagnosed with any degree of heart failure? One thing to remember is that what you're terming "anxiety" may not be exactly what you think it is. If your body is elevating your heart rateby NBeener - AFIBBERS FORUM
Re: Very strange ekg. What is it? - 1 year ago
QuoteCareyAs best I can tell it's PVCs in a bigeminal pattern. My wife is a Nurse Practitioner with no particular expertise in reading ECG's, but ... she has been trained in reading them. On her way out the door, I asked her to take a quick look. She said "pacer spike, followed by either bigeminy or PVC couplets , but I have to run." So ... there's that. FWIW.by NBeener - AFIBBERS FORUM
Re: Very strange ekg. What is it? - 1 year ago
Quotesusan.d Can it be taken with 50mg Tenormin BiD, lisinopril BID and norvasc? From WebMD's drug interaction checker: Serious Potential for serious interaction; regular monitoring by your doctor required or alternate medication may be needed. atenolol + sotalol atenolol and sotalol both increase blood pressure lowering effect. Monitor Closely Significant interaction possibleby NBeener - AFIBBERS FORUM
Re: Dofetilide For PVCs? - 1 year ago
QuotegloamingNoraly Schoenmacher of 'Itchy Boots' fame on YouTube, a geologist who does world travels on a motorcycle and who vlogs her experiences, uses such a translator. She speaks into her phone, and a voice repeats what she says in the language of her selection...in recent days it was Turkish. And more recently, in Iraqi Kurdistan ;-)by NBeener - AFIBBERS FORUM
Re: Dofetilide For PVCs? - 1 year ago
Quotesusan.d I have to get my o2 stable first. I get hypoxia when I’m reclined or laying down. It’s in the low 80s lying and 94-97 sitting . Doesn’t make sense. I am seeing a private pulmonologist next week. Walking I am out of breath too. I had a dental cleaning today and it was difficult to breathe as well because she reclined the chair. Nights are impossible. My Cpap machine clocked my sleeby NBeener - AFIBBERS FORUM
Re: Dofetilide For PVCs? - 1 year ago
I'm stuck with the comment that you're "sensitive to medications." That matters here, particularly in conjunction with The Wisdom of Carey. I'm also stuck with (only) a vague understanding of your history with arrhythmias and cardioversions. "The definition of insanity is doing the same thing over and over and expecting different results." --Albert Einsteinby NBeener - AFIBBERS FORUM
Re: Dofetilide For PVCs? - 1 year ago
IF cardiac amyloidosis is still on the table (ie, hasn't been definitively ruled in OR out), then -- IMHO -- that should be the first priority. One of my philosophies about medicine is: if at all possible, begin with an accurate and definitive diagnosis. This optimizes risk-reward decisions by ensuring that the right thing IS treated and that the wrong things are NOT treated. As alwayby NBeener - AFIBBERS FORUM
Re: Does stent change the nature of afib expisodes - 1 year ago
I'd be more likely to think it's the MI itself that may have monkeyed with your post-MI rhythm(s). MI's can cause scarring (fibrosis), structural, and electrical remodeling, all of which can induce or worsen arrhythmias. I'm not sure a stent would have a material impact. It may be worth your while to talk to a Cardiologist or EP. Wearing an event monitor for a week orby NBeener - AFIBBERS FORUM
Re: when things goes to sh#t - 1 year ago
I'm profoundly sorry for all that you've been through and all that you're still going through. I'm hoping there's something in this two-page PDF that can either help you or your doctors as you try to rule in or out Cardiac Amyloidosis: Though I think an Endomyocardial Biopsy is still the gold standard for diagnosing CA, I might also suggest, as a possible resourceby NBeener - AFIBBERS FORUM
Re: A Nighttime Whine - 1 year ago
I'm just so sorry for all that you've been through and all that you're going through. I've lived with chronic neuropathic eye pain (corneal) for more than 20 years. I understand the kind of toll it takes on mind, body, and spirit. I hope you find answers and relief very soon.by NBeener - AFIBBERS FORUM
Re: What to replace my Beta Blocker with??? - 1 year ago
QuotePokey I’ve had strain “bullseyes” done with echoes in the past and they were ok. Which raises two questions for me: * How far in the past, and * What does 'ok' mean? If we're talking years ago, then things could certainly have changed. Also, this isn't the time or the place to dive deeply into it, but ... I finally got my answers after two separate years-long mby NBeener - AFIBBERS FORUM
Re: What to replace my Beta Blocker with??? - 1 year ago
QuotePokey My annual echoes and a nuclear stress test ~2 years ago say I still have a pretty healthy heart. My EF is still 65% with no LV dilation or segmental defects and I am 75. I attribute that in part to the fact I was a mountain hunter while living in Alaska where I carried all I needed to survive for 7 days at time on my back at 5-6-7,000ft and I trained year round for such strenuous pursuby NBeener - AFIBBERS FORUM
Re: What to replace my Beta Blocker with??? - 1 year ago
QuotePokey Why do BBs make a person so bloody tired? I assume because they affect HR so profoundly?? That's what I think. I wrote a bit more on the subject in this post: And, obviously, RF catheter ablation just adds more scarring to the equation. That's ... kind of the goal :-) And scarring ... adds stiffness. It's like starching your blue jeans. I hope you findby NBeener - AFIBBERS FORUM
Re: Biofeedback to relax while having a bad arrhythmia - 1 year ago
Quotesusan.d I am sensitive to drugs. Do you have access to any pharmacogenetic Cytochrome P450 testing?? Can't hurt. Might help.by NBeener - AFIBBERS FORUM
Re: Headaches - 1 year ago
Unfortunately, that can be a side effect of the transseptal puncture, too: QuoteAbstractCatheter ablation for atrial fibrillation creates an iatrogenic atrial septal defect by transseptal puncture, which may produce a transient right-to-left shunt. We encountered a 44-year-old man who presented with de novo migraine-like headache after cryoballoon ablation for atrial fibrillation. On revieby NBeener - AFIBBERS FORUM
Re: AFIB and Hockey or Sports in general - 1 year ago
I have a theory, and it's just that: a theory. It's pretty likely that something is fundamentally different between people who are laid flat by beta-blockers and people who seem to have no ill effects when taking them. My theory? How flexible their heart is. I have restrictive cardiomyopathy, caused by an adverse drug reaction. Rather than a supple and pliable heart (that I useby NBeener - AFIBBERS FORUM
Re: AT after AF ablation? - 1 year ago
QuotegloamingBottom line, you can live a long time with pretty much all arrhythmias except ventricular tachycardia....that one is exceedingly dangerous. To this list (currently comprising only one item), may I add ... ventricular fibrillation -- a/k/a V-Fib?by NBeener - AFIBBERS FORUM
Re: PACs are getting really annoying. - 1 year ago
Quotesusan.d Why is it men don’t tie the backs of their gowns? Nobody wants to see this. One can always ask for a second gown. Put the first gown on "tied in the front," and the second gown on "tied in the back." The health care folks can still quickly and easily get to ... um ... whatever they need to get to. I'm not sure every hospital will accommodate this reqby NBeener - AFIBBERS FORUM
Re: Vitamin E as blood thinner? - 1 year ago
If it were me, I'd take the thinner and carry some sort of product like this -- made to stop moderate to severe bleeding:by NBeener - AFIBBERS FORUM
Re: Complications associated with pulsed field ablation versus radiofrequency catheter ablation of atrial fibrillation - 1 year ago
What I didn't see -- at least not in the cite to which you linked directly (ie, I didn't look for the full paper) is the level of experience with PFA that the PFA-providers had vs. the level of experience the RFA providers had with doing RFA. Meaning: will the complication rate with PFA continue to decline, relative to RFA, with advances in both the technology and the EPs' experby NBeener - AFIBBERS FORUM
Re: Magnesium glycinate gummies? Etc? - 1 year ago
QuotegloamingYou may actually be ingesting too much of a thing. How would you know? If memory serves, at least in the case of many forms of magnesium, it'll all work itself out in the end ;-)by NBeener - AFIBBERS FORUM
Re: The Rising Tide of Atrial Fibrillation: Is Primary Care Ready? - 1 year ago
QuoteToddElectronic pollution galore. Its everywhere. While I don't know about electronic pollution, air pollution has been found to increase the likelihood of arrhythmias: Quotethe studyIn this large cohort study, long‐term exposure to outdoor P M air pollution was associated with increased risk of arrhythmia. Our findings indicate that PM air pollution may be a contributor to cardby NBeener - AFIBBERS FORUM