Experimentation temporarily suspended. I'm doing too much at once and I can't tell whats helping and whats not. I'm now going to start a journal and just try one thing at a time. I've been in afib for a few days now and I have no idea if I innitiated it or not. I ate dinner and took some supplements and started a fib about a 1/2 hour later. I usually get it at night when Iby Billyjeans - AFIBBERS FORUM
rvr being rapid ventricular response.. I reviewed my ablation hospital records and noticed this. Hadn't seen the "RVR" before and of course my heart DR never mentioned it. Reading on the internet it seems as though the atrial sets of the ventricles to basicly afib as well. Is their anything more to it? Also I noticed in the test section that I had a BN peptide reading that was 313by Billyjeans - AFIBBERS FORUM
QuoteJackie Billy - I have great empathy for you. You probably read Dean's recent post and the other contributions at this link: The medical focus should be directed by a specialist who can assess and address the gastric reflux caused by the failed lower esophageal sphincter (LES) and hiatal hernia which impacts the vagus nerve. I understand your limitations with health care serviceby Billyjeans - AFIBBERS FORUM
Quotemwcf Hi Jackie, Noted, but - as is the case in so many similar scenarios - is it not equally likely (or more likely) that the reasons WHY folk are taking PPIs are involved with precipitating arrhythmias more than are the PPIs themselves per se? Looking forward to your upcoming piece on mitochondria and what we can do to try and look after them better! Kind regards, Mike This is aby Billyjeans - AFIBBERS FORUM
So the last try was flecanaide. Holy hell was that not a good idea. I had twice the amount of afib and the afib was very severe. Just bending over would set it off. I tried it for a couple of weeks to see if i would adjust but it just ramped everything up afib wise. So now I'm trying 1000 mg of magnesium,500 mg of potassium and 100 mcg of K2 a day. I also pretty much cut out the metoprololby Billyjeans - AFIBBERS FORUM
QuoteBertanana I had a Catheter Ablation in 2012. It was successful. But most recently in the last month I have had 3 “attacks” (that’s what I call them). The last one lasted about 15 min before normal heart rate came back. And my BP is high again. I don’t have a BP cuff but can feel BP rise. I get dizzy and my legs feel wobbly when walking. I have no medical insurance at this time. I’m on no medby Billyjeans - AFIBBERS FORUM
QuoteLenlec I had all the tests a few years ago after my 1st episode. My heart was fine they said and called it lone af. Mine allways follow after lots of alcohol. I’ve cut down a fair bit now. Alcohol is a huge trigger for me. I used to drink often and I really enjoyed it. Nowadays, a drink gaurrantees me afib almost imediately. You'ld do well to cut down as much as you can.by Billyjeans - AFIBBERS FORUM
This reminded me of an experience I went through about ten years ago. I had contracted salmonella from my mother. I was very sick for several months and towards the end of my sickness I went through this stage of a few days where I had horrific acid production and was gagging and throwing up stomach acid. I have been on PPI's for 25 years or so because I was diagnosed with hiatal hernia andby Billyjeans - AFIBBERS FORUM
QuoteLenlec Hi all I had an attack at Xmas lasting for 2 days , then it’s happened again Wednesday evening woke up this morning and it’s still there but now my heart beat is 80 bpm but quite Irregular. What’s the average length of attack ? And when do I go see my gp and see the ep dept ? Is one episode every few months for a few days ok to live with without treatment? Cheers Andy I woulby Billyjeans - AFIBBERS FORUM
QuoteJackie Hi Mike - The MSG is not only the sodium issue, but also has the excitotoxic effect from the glutamate component. Together, they undoubtedly spell double-trouble for afibbers.... especially those who may be low in potassium, magnesium or both. Glutamate can certainly stimulate arrhythmia. Remember Fran Ross and her story about the glutamate content as a result of long cookingby Billyjeans - AFIBBERS FORUM
Quotetiggwigg Sorry to hear of your problems. Your research would have revealed that the three key triggers associated with AF are weight, high BP and sleep apneoa. A question is whether you have all three of those under control? I am 63 and have had AF for over 20 years. I have had four Catheter Ablations, the most recent only two months ago was unsuccessful. Now I am scheduled for a Coxby Billyjeans - AFIBBERS FORUM
QuoteDavidK Billy, I hope you find a solution. As you no doubt can tell, Natale is highly regarded on this forum and of the best, if not truly the best, EPs on the planet. If you are looking into an ablation with him, here are the details on the three locations where he works in the US and the fees for the preliminary consultation with him if paying cash: Natale insurance, location and availaby Billyjeans - AFIBBERS FORUM
QuoteElizabeth wolf: I didn't mean to call it a snus node ablation, it is a AV node ablation, but I said and I strongly said DO NOT ABLATE THE NODE. His doctor mentioned a pacer and the node ablation/pacer, two options, Bill said he almost passed out a few times, he may have a heart block, that may be why his doctor mentioned a pacer, that is set at anywhere from 50 to 60 (heartrate) soby Billyjeans - AFIBBERS FORUM
QuoteElizabeth Billy: Would the Florida dept. of Health pay for another ablation? There is a Hospital in Florida that is part of the Cleveland Clinic, a few people have gone there for their ablations and did well. Dr. Natale, who is in Texas now and a famous doctor once was with the Cleveland Clinic in Ohio. Cleveland Clinic Florida | Highest Ranked Hospital in ... Find out moreby Billyjeans - AFIBBERS FORUM
Quotewolfpack First off, you need a new EP. You do not want, repeat do NOT want, an AV node ablation and pacemaker. That is an irreversible process and every second of your life will depend on a machine in your chest. It certainly sounds like you could benefit from a more experienced EP such as Dr Natale. Health insurance will be an issue. You can always go “fee for service” but it won’t be chby Billyjeans - AFIBBERS FORUM
QuoteJoe Commiserations Billy! I'd try to establish what causes your high BP. Is is ischemia, reaction to food or environmental or perhaps a combination. Also crohn's disease needs to be dealt with at the same time. Seems to me that both would/should respond to some, perhaps radical, changes to diet? 20 or so years ago i had high BP (about 170/180 over ???) and it turned out thatby Billyjeans - AFIBBERS FORUM
QuoteThe Anti-Fib I don't know how your complicating Health issues relates to your AFIB, but in general, Yes trying a Calcium Channel Blocker would make sense. It should help lower your BP. Also makes sense to try Flecainide, although I would recommend that you start out slow with a low dose, and titrate up. Still good options like this to explore. Many of us have used Cardizem and Flecaby Billyjeans - AFIBBERS FORUM
Quotekong2018 Hi Billy, sorry to heart your struggle. So you got your first afib at age 37...I got mine at 36 when having multiple stressful events and anxiety. Through your post I can kind of seeing my not so bright future. I’m sure someone is going to advise you to get an ablation with Dr Natale. But well, you’ll need to get proper insurance first... I jut wanted to know how was your qualitby Billyjeans - AFIBBERS FORUM
Hi, my name is Billy. I'm 54 yo and have been dealing with afib since 01. It started out in 01 when I was going through a horrible divorce and my heart went afib for over 24 hours. I went to the hospital and was converted using a cardizem drip within a half hour. Had all the tests etc. and was told it was lone afib. Didn't have many episodes but maybe once or twice a year and they wouldby Billyjeans - AFIBBERS FORUM