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Re: Impaired left ventricular relaxation with normal filling pressures?? - 1 year ago

Thanks, it is filling normally though...confusing

by Fuzzyduck - AFIBBERS FORUM

Re: A Few Good Days- GABA, Theanine, and Anti-Inflammatories - 1 year ago

I have some sleep aids that contain L-theanine and lemon balm amongst other things that seem to calm my heart, trouble is the company seems to have stopped making them or they are on a hold or something. It must have been the L-theanine calming it. I hope it continues to help you!

by Fuzzyduck - AFIBBERS FORUM

Impaired left ventricular relaxation with normal filling pressures?? - 1 year ago

So I had an echo yesterday ordered by my cardiologist after I went to see him to ask for propranolol because my nurse navigator from my EP's office is weird about prescribing propranolol. I had an ablation in April. My cardiologist wants to rule out pulmonary vein stenosis following the ablation because I have had an uncomfortable feeling during high cardio and I gave up telling my nurse n

by Fuzzyduck - AFIBBERS FORUM

Re: How much post ablation support would be reasonable to expect from Dr.Natale's post ablation team - 2 years ago

Quotesusan.d Did you have your ablation at los Robles in Thousand Oaks? This office has only one NP compared to Austin that has rotated NPs. If you PM me, I can give you Austin’s head NP direct line. Or why don’t you just email him directly? He is quick in replies. His email is on his business card or you can PM so computer bots don’t spam him since this is a public forum. I had my ablation

by Fuzzyduck - AFIBBERS FORUM

Re: How much post ablation support would be reasonable to expect from Dr.Natale's post ablation team - 2 years ago

QuoteDaisy Thanks Jim, perhaps I shall email Dr.Natale, I am now frustrated that I didn't complain sooner because I have felt a bit isolated and in limbo regarding my symptoms, which limit my cardio Yes, you can feel very isolated if you think that what you have experienced is typical patient care in a practice--it just isn't and as far as I have heard the problem centers around

by Fuzzyduck - AFIBBERS FORUM

Re: How much post ablation support would be reasonable to expect from Dr.Natale's post ablation team - 2 years ago

Quotemjamesone I don't know how the messaging services work at Natale's office, but I've found that both messages and email's are often screened first by either nurses or others and many times are never routed to the Doctor. What I do is in cases like this is make it very clear in the email or message that I want to speak to the Doctor directly. Either that, or I do the same t

by Fuzzyduck - AFIBBERS FORUM

Re: How much post ablation support would be reasonable to expect from Dr.Natale's post ablation team - 2 years ago

Thanks Jim, perhaps I shall email Dr.Natale, I am now frustrated that I didn't complain sooner because I have felt a bit isolated and in limbo regarding my symptoms, which limit my cardio Quotemjamesone How much post ablation support would be reasonable to expec...t Post ablation -- or anytime -- I think it's reasonable to expect to hear back from a ep nurse or PA within 2 days for

by Fuzzyduck - AFIBBERS FORUM

Re: How much post ablation support would be reasonable to expect from Dr.Natale's post ablation team - 2 years ago

QuoteWhyMe Since we are being honest here....I was assigned to Trent...nice guy etc, but I don't feel "the love", if you know what I mean. Kind of a dismissive attitude towards someone who is still experiencing issues after the ablation. It's like as if he does not want to believe it..."oh, maybe you are not hydrating enough..." and other vague one sentences email re

by Fuzzyduck - AFIBBERS FORUM

Re: How much post ablation support would be reasonable to expect from Dr.Natale's post ablation team - 2 years ago

QuoteCarey Yeah, it's perfectly reasonable that if they prescribed a med and you want it changed that they should handle it. An email or call to your nurse navigator should get a response within, say, 2 business days. If it's a more urgent issue, it should be 1 business day. If that's not happening, let Shannon know. Oh the response from my navigator was to ask my family doctor or

by Fuzzyduck - AFIBBERS FORUM

Re: How much post ablation support would be reasonable to expect from Dr.Natale's post ablation team - 2 years ago

QuoteCarey I encourage anyone who's experience sub-optimal follow-up care to let Shannon Rose know, as Pixie suggested. They can't fix something they don't know is broken. Thanks Carey, I just wasn’t sure what normal after care is and if it was correct that I shouldn’t ask them for a change in beta blockers, but it seems like I am not being unreasonable in my expectations so I wi

by Fuzzyduck - AFIBBERS FORUM

Re: How much post ablation support would be reasonable to expect from Dr.Natale's post ablation team - 2 years ago

Who would I ask? My husband and I are disappointed to be honest

by Fuzzyduck - AFIBBERS FORUM

Re: How much post ablation support would be reasonable to expect from Dr.Natale's post ablation team - 2 years ago

That is when I send in a weekly update with my ECG reading, but no one seems to be taking any notice. Surely they should be the ones to send in a prescription for a beta blocker, not my family doctor...

by Fuzzyduck - AFIBBERS FORUM

How much post ablation support would be reasonable to expect from Dr.Natale's post ablation team - 2 years ago

I don't know if I am being unreasonable in my expectations but I had an ablation 7 weeks ago and have had very little follow up, like miniscule even though I have not had a smooth recovery. After two weeks I let them know a few times that I had some discomfort on breathing in which had been going on since I came out of the OR. I eventually was given two weeks worth of colchicine but again n

by Fuzzyduck - AFIBBERS FORUM

Re: 7 months after Natale ablation...PACs are back - 2 years ago

QuoteDaisy I did find that PACs triggered Afib and I think that is the experience of some others as well. Many of the pacemaker models have an algorhythm that tries to outpace PACs and thus stop them from triggering Afib. I am left dealing with his team and frankly they are of little help. It must depend on who your nurse navigator is. I have always had a very quick response -- usually

by Fuzzyduck - AFIBBERS FORUM

Re: Ablation at Abbott Northwestern - 2 years ago

I am glad they managed to map it and hopefully it has improved infinitely for you!. I was massively wiped for a few days. I still get tired after 5 weeks! How long were you under for? Take care

by Fuzzyduck - AFIBBERS FORUM

Re: Long Awaited Natale Consult - 2 years ago

Daisy, as mine was a straightforward procedure, I was told they would just ablate the pulmonary vein and I think posterior wall. I had an additional minor LAA ablation... Megan, sorry you are suffering so much with your SVTs. Do you know what triggers it? I know my sister has SVTs and atrial tachycardia ,but unlike you she is able to control it with her meds, however if she eats or drinks

by Fuzzyduck - AFIBBERS FORUM

Re: Long Awaited Natale Consult - 2 years ago

What do you mean by your arrhythmia being paroxysmal, your SVTs or your Afib? Because when I had my ablation in April I hadn’t had any afib since November but I had svts, not nearly as many as you but runs of them. But he managed to get my afib going for a ‘very short time’. Enough to know what to ablate…although I appreciate our cases may be very different…

by Fuzzyduck - AFIBBERS FORUM

Re: It may be time to ablate. Options are in play. - 2 years ago

I met with Dr. Randall Wolf to discuss my options but for me his mini-maze seemed too invasive at my stage although he said he could offer me one if I wanted. i contacted offices of both Dr. Wolf and Dr. Natale in December. I had my first appointment with Dr.Natale January 29, and Dr. wolf the middle of Feb. I had pulse field with Dr. Natale on April 9 and so I didn't have to wait long and

by Fuzzyduck - AFIBBERS FORUM

Re: EP Visit Update - 2 years ago

I just had the PFA with Dr,Natale on Tuesday. I have been in NSR since November but have had lots of other arrhythmias since then. I asked him if I had afib whilst having the ablation and he said for a very short amount of time. So I conclude that they must have induced it whilst under, at least that is what I was told prior to the ablation.Also looking at the list of meds given through iv su

by Fuzzyduck - AFIBBERS FORUM

Re: Ablation tomorrow - 2 years ago

QuoteDaisy Oh no, they wouldn’t give me a written report and said I have to request it through the portal. I would really like to know what they found. I know they ablated three areas including the apVI, posterior wall and a minor part on the appendage. I had a brief moment of afib during it. I don’t know how my heart is going to perform but so far so good They use 2 portals, one for St.

by Fuzzyduck - AFIBBERS FORUM

Re: Ablation tomorrow - 2 years ago

They used to quote 'isolation of PVs and LA PW - LAA delayed - total of 74 pulses delivered during the procedure' which leads me to think it was all pulse field

by Fuzzyduck - AFIBBERS FORUM

Re: Ablation tomorrow - 2 years ago

Oh no, they wouldn’t give me a written report and said I have to request it through the portal. I would really like to know what they found. I know they ablated three areas including the apVI, posterior wall and a minor part on the appendage. I had a brief moment of afib during it. I don’t know how my heart is going to perform but so far so good

by Fuzzyduck - AFIBBERS FORUM

Re: Ablation tomorrow - 2 years ago

Thank you Megan, it went smoothly so far. Are you having an ablation with Dr.Natale? I think I saw somewhere you are thinking about it? If you have any questions feel free to ask!!

by Fuzzyduck - AFIBBERS FORUM

Re: Ablation tomorrow - 2 years ago

Thank you! I have to remember the end goal!!

by Fuzzyduck - AFIBBERS FORUM

Re: Ablation tomorrow - 2 years ago

Thanks Daisy, that’s reassuring!

by Fuzzyduck - AFIBBERS FORUM

Re: Ablation tomorrow - 2 years ago

Ha Ha! thanks, I guess you are correct!! I think I nearly put myself in afib last night with worry!!

by Fuzzyduck - AFIBBERS FORUM

Ablation tomorrow - 2 years ago

I am scheduled for PFA tomorrow, but I am now really nervous and wondering if I am doing the right thing as I have been in NSR since November, but have had lots of ectopics and arrhythmias since the episode in November. I am also last on the list at number 6, scheduled for 3 pm, this is also making me really nervous- would appreciate words of wisdom from those who have been there and had t done!

by Fuzzyduck - AFIBBERS FORUM

Re: Progression question - 2 years ago

This is all so interesting - I know my afib is caused by electrolyte issues, and I have only had a couple of events, but since the last I have had a lot of ectopic beats and arrhythmias. Interestingly, a couple of months before this I started taking calcium by way of algae cal like the other posters on this thread- I wonder if it is linked. But I have to take calcium as I have weak bones. I am

by Fuzzyduck - AFIBBERS FORUM

Re: Ablation Insurance/costs - 2 years ago

Thanks Carey and Steve!! Carey I find that reassuring!! Steve, that's a bit of a shock!

by Fuzzyduck - AFIBBERS FORUM

Re: Ablation Insurance/costs - 2 years ago

Yes, St.Davids! I expect my husband will enjoy my food-ai will probably be too nervous!

by Fuzzyduck - AFIBBERS FORUM