LIZ: I will respond just to the Thyroid portion and the rest later when I have more energy. This is very good, the situation is primed for another NSR success story here at Afibbery.net. The Thyroid gland is a common cause of LAF, so I will defer to others who want to respond if the have insight or first hand experience dealing with this. I understand that you Irradiated your Thyroidby The Anti-Fib - AFIBBERS FORUM
Mark: So what happened with your AFIB situation? 9 months ago you were contemplating an Ablation. How did you achieve NSR? Or did you get an Ablation after all?by The Anti-Fib - AFIBBERS FORUM
Drugs had opposite effect on me. Prop made HB faster, Flec slowed it downby The Anti-Fib - AFIBBERS FORUM
Liz stated: "I do not understand why most people who have tried the protocol via the strategy do not get the results which some have said they achieved." The way I understand it, AF is a complex condition that involves not only electrophysiology, but it is also impacted by other body systems, such as the Nervous system, and the Endocrine system. In order for an AFIB episode to exby The Anti-Fib - AFIBBERS FORUM
The only thing I agree with your original EP here is that he should not do the touch-up Ablation if needed, but why did the Nurse throw in that negative comment at this point anyhow? You just wanted basic monitoring of your Ablation. I agree with George, your GP can do alot himself, especially if your doing well.by The Anti-Fib - AFIBBERS FORUM
George: Thanks for the tip about reading Fran Ross's account. That has many similarities with my own experience, but luckily it didn't go on helter-skelter like that for 20 years. I also had mis-diagnosed panic-attacks that were AFIB, and was recommended to not try Cardioversion as by the time I was properly diagnosed, 3 years had elapsed. Since I was doing OK with simply rate conby The Anti-Fib - AFIBBERS FORUM
I would keep monitoring what your rate by getting frequent EKG's, ect. Your pulse will probably measure slightly higher by EKG, as you won't feel some of the faint beats, or the ones stacked right against each other. If your pulse is over a 100 or so, you can develope tachycardia induced cadiomyopathy.by The Anti-Fib - AFIBBERS FORUM
I think this is a supplement that would take a while to work. I have taken it for about 6 months now. Dizziness and tiredness are listed as possible side effects. Alot of people take this Supllement.by The Anti-Fib - GENERAL HEALTH FORUM
It seems as though in this Phorum, and even AF treatment in general have drifted towards the lucrative Ablationist Treatment Ideology, ushered along with well versed sales presentations, that we may have too quickly forgotten about the many LAF'ers who found "cure" or "abatement" albeit perhaps only in the short run. It has been proclaimed that only a small handfull sayby The Anti-Fib - AFIBBERS FORUM
researcher Wrote: ------------------------------------------------------- > Same problem with Multaq too. Long half life and > only a slight improvement in toxicity. I was wondering about that, because as I understand it, Multaq was a designer drug being a modified version of Amio.by The Anti-Fib - AFIBBERS FORUM
Ask Natale at what point he wants you to stop the Amiodrarone. Maybe he will say like 2-3 weeks out. I would stay with Natale also. Also is doesn't sound like the Multaq had long enough to build up your system in order to judge whether or not it would be effective for you. I thought I remembered something about it taking 5 days for plasma levels to reach their full levels, but I am not sby The Anti-Fib - AFIBBERS FORUM
Take it easy Shannon, your responses are more than adequate for the time being, so you can tend to your important family business without worrying about the site.by The Anti-Fib - GENERAL HEALTH FORUM
I took NSAID's (Naproxen Sodium) with Multaq. My Doctors were not very concerned about it. I remember something about it being an issue if the QT interval was prolonged than it would be a concern. I think that anything that prolongs the QT interval is the main risk, but I am not certain.by The Anti-Fib - AFIBBERS FORUM
Could mean that your AFIB was Stress induced, and you relaxed somewhat after being in care of the Nurses?by The Anti-Fib - AFIBBERS FORUM
LIZ: I can agree with your response to Morek, in that I believe you are trying to say that AF is more complex that he is laying out is his comments about finding a science-based cure for AF. Having said that, I will like to respond to some of the specific things you cited. You asked Morck about why the more fit tend to get AFIB, vs the fat lazy people who don't eat right. The answerby The Anti-Fib - GENERAL HEALTH FORUM
If your in AFIB, then you'll feel the palpitations more on the left sideby The Anti-Fib - AFIBBERS FORUM
That is just your own body that you need to pay attention to what is going on in various sleeping positions.by The Anti-Fib - AFIBBERS FORUM
"AF's most important objective data derives from measures of the myocytes' electrolytes www.exatest.com" I'm sure this has been discussed here before, but how sure are we that the scrapings off of the inside of a mouth are similar enough to Heart Tissue cells? I know some sort of study was done showing this? Just asking if anyone care cares to voice an opinion as to hby The Anti-Fib - GENERAL HEALTH FORUM
I am not sure that people get the same side effects from the 2 drugs discussed. I tried both, and had completely different reactions to them. The Propafenone speed up my Heart, whearas the Flec slowed it down. Side effects were also different.by The Anti-Fib - AFIBBERS FORUM
Are you taking a Beta-Blocker during episodes for rate control? That could cause it. I always felt calmer after an episode, not sure why, something to do with the bodies reaction to the stress of an episode. Hans the site originator used to talk about this cyclical reaction after an episode.by The Anti-Fib - AFIBBERS FORUM
Clay: If you haven't tried Flecainide I would try it before getting an Natale Ablation. Natale doesn't just do Ablations but likes to do combination therapy of Ablation/Flecianide, etc. What isn't stated in the success rates quoted, even if their legit, is that the Flec alone may be responsible for the NSR achieved. Amazing how many of his "success stories" come fby The Anti-Fib - AFIBBERS FORUM
Without going into detail, it seems you could just try it without the Flec, and see how you got along with ectopics, maybe even get a monitor to wear. I'm thinking that most AFIB episodes are precursed by ectopy. So, if you could add the Flec in if you noticed alot of the Ectopics, and thought yourself at risk. I think it also comes down to just how scared you are of an AFIB episode?by The Anti-Fib - AFIBBERS FORUM
How do you know it was that high? How did you measure it? That sounds to high to just be a High NSR rate, so some sort of an Arrythmia was going on, even if it didn't progress into full blown AFIB. It doesn't sound like an Anomaly to me. You had AFIB before, and getting an Ablation does not magically solve all the issues involved, although it may have saved you from going into sustaby The Anti-Fib - AFIBBERS FORUM
As far as I can tell, an "Anomely" in this circumstance, would be un-anomelyzed if a major medical study showed that. There is little financial incentive to show effective treatment with supplements, vs a lucrative Drug or Procedure, so the studies tend not to be designed to document the success that many of us (50+) have observed from this forum.by The Anti-Fib - AFIBBERS FORUM
LIZ: I am reading that the RBC test is not always accurate. ??? If it is reliable, then your logic makes sense in that if you test low on the RBC test, then the more advanced Exatest is unecessary. Alot of us are taking as much Mg as we can the easy way, but how many are doing the more exotic methods, like Mg Oil rub downs, Mg baths or Mg IV pushes?by The Anti-Fib - AFIBBERS FORUM
Liz: The Mg level in the blood cells in the blood stream is different than the level in Heart Muscle cells. That is my understanding of the reasoning involved in doing the Exatest. The fact that it's not widely used by Dr's though lends credence to your opinion.by The Anti-Fib - AFIBBERS FORUM
Researcher: That is a good point about the differences in Healthcare in the US vs Europe. I have heard that about drug Rx kickbacks, not sure at all how widespread it is, and I think it's technically illegal. The 2 main Dr's that told me that, weren't really pushing drugs. The Dr. that had the worst opinion of Ablations did sat that Amiodarone's side effects were overbby The Anti-Fib - AFIBBERS FORUM
I've had the test done 4 times previously, and maybe it's in part because I asked the Kits be sent directly to me, and they don't normally do that, but I always felt a bit put off by them, it's a $500 test, seems like they would want the business. I usually talked with some lady by the name of Katy or Karen, something starting with a K. Anybody know if another company doesby The Anti-Fib - AFIBBERS FORUM
Anybody care to comment on their experiences with getting an Exatest? Has it been a hassle? Seems that they (IC Diagnostics) are not eager to help me. I kind of have to push them to get them to send me a kit. My Doctors don't know anything about it, but several of them will write a script for it.by The Anti-Fib - AFIBBERS FORUM
Peggy: Have you checked on prices for a new computer? They have come down in price, starting at around $300. What year is your computer? What version of Windows does it have, Windows XP? Also craigslist has used computers that are good at around $100, but if your that Computer-illiterate, then you wouldn't know which used one to buy. Maybe you can find a friend to help you.by The Anti-Fib - AFIBBERS FORUM