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A shot in the dark

Posted by susan.d 
A shot in the dark
September 15, 2025 04:13PM
I agreed to a PVC ablation because I reached my tolerance level of not having a normal life.

So today I was told to see the head cardiologist of heart failure. I told him I get fecal dumps and is it similar to urine dumps (“big pee”) some get during arrhythmias?

His expression was like that of a robot, he starred into space and thought long and hard and said no, no connection. Then he looked up and said I should get tested for a GI GI tumor that’s not a real cancer but similar. It causes arrhythmias and diarrhea. I’m to get tested for Somatostatin. It does affect heart rate and arrhythmias and causes diarrhea. I never used to get diarrhea before PVCs.

I am who I am (advocate for myself) and I walked to the GI department afterwards and was able to convince them to give me a 6pm same day appointment because my ablation is near.

I’ll ask my GI doctor his opinion. It’s a shot in the dark but I’m going to rule it out. I had 3 failed ablations by the best so maybe it’s something that was overlooked- like a tumor in my gut causing abnormal Somatostatin levels. It isn’t a lab test normally given. Let’s see.

I’ve been experimenting with pharmaceutical drugs in the meantime to try to stop my PVCs-which George calculated at a 50% burden. A doctor is trying an experiment with 3 benzodiazepines a day. It stops my PVCs. My EKG today showed I was in NSR with no PVCs. The cardiologist was surprised and listened to my heart and said maybe I can cancel the ablation. I would want a holter to be sure. IMHO it’s a better drug than amio. If it works long term.

I want the below test before my ablation.

Somatostatin has dual electrophysiological effects on the heart: it can be antiarrhythmic by slowing conduction, but it can also cause bradycardia and block conduction by slowing the heart rate. These effects are a result of its interaction with its specific receptors in the heart and its influence on ionic channels.

Anyone tested for this?
Re: A shot in the dark
September 15, 2025 09:21PM
Since you have a pacemaker the low heart rate won't be a problem.
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