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        <title>Kathy(Columbus)- followup OK?</title>
        <description> Hi Kathy in Columbus--

I think you were suppossed to see your doctor for a followup &amp;amp; I was wondering how it went?  I had my ablation at Cleve. Clinic about 10 days before yours and am still waiting for a definate appt. for followup.  I had one for Nov. 19, but doc cancelled.  They&amp;#039;re suppossed to reschedule me for
Oct. 29, but I won&amp;#039;t believe it until it actually happens.  

I think it&amp;#039;s really great that you are getting a 30 day event monitor(as you posted earlier).  I&amp;#039;ve had them 2 or 3 times over the past 4 years &amp;amp; wish the Clinic would prescribe them.  I guess I should just request one &amp;amp; see what happens.  

Anyway, hope reports are good.

njb</description>
        <link>https://www.afibbers.org/forum/read.php?9,591,591#msg-591</link>
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            <guid>https://www.afibbers.org/forum/read.php?9,591,730#msg-730</guid>
            <title>Re: Kathy(Columbus)- followup OK?</title>
            <link>https://www.afibbers.org/forum/read.php?9,591,730#msg-730</link>
            <description><![CDATA[ Yup, even though I still have some problems, I&#039;m relieved knowing I wasn&#039;t &quot;making things up&quot;.  I&#039;ll keep fighting to so hang in there in the boxing ring with me :)  Take care.  Keep me posted with your progress in getting hold of your docs at CCF and the event monitor.]]></description>
            <dc:creator>Kathy</dc:creator>
            <category>AFIBBERS FORUM</category>
            <pubDate>Wed, 22 Oct 2003 11:42:57 +0000</pubDate>
        </item>
        <item>
            <guid>https://www.afibbers.org/forum/read.php?9,591,698#msg-698</guid>
            <title>Re: Kathy(Columbus)- followup OK?</title>
            <link>https://www.afibbers.org/forum/read.php?9,591,698#msg-698</link>
            <description><![CDATA[ Kathy,<br />
<br />
Thanks for your encouragement &amp; feedback. I know exactly what you mean about having to fight for answers.  In fact, I just wrote those exact words in a note to Hans.<br />
<br />
I did  manage to get the docs email address at Clinic this evening.  I guess his assistants are tired of dealing with me.  Or maybe all I had to do was ask for it.   Also, I will tell my doc about your 30 day event monitor &amp; request one.  If he refuses, I&#039;m quite sure my referring EP would prescribe one. <br />
<br />
Fortunately, I live quite close to the Clinic.<br />
<br />
I&#039;m glad you got your questions answered &amp; your symptoms validated.  It&#039;s very difficult when you are &quot;blown off&quot;(by that nurse or anyone).  I often hesitate to report symptoms for fear I won&#039;t have any during EKG.  But usually they are confirmed and then, ironically, I feel relieved because it proves I&#039;m not a hypochondriac. <br />
<br />
Later, NJB]]></description>
            <dc:creator>njb</dc:creator>
            <category>AFIBBERS FORUM</category>
            <pubDate>Tue, 21 Oct 2003 18:48:01 +0000</pubDate>
        </item>
        <item>
            <guid>https://www.afibbers.org/forum/read.php?9,591,694#msg-694</guid>
            <title>Re: Kathy(Columbus)- followup OK?</title>
            <link>https://www.afibbers.org/forum/read.php?9,591,694#msg-694</link>
            <description><![CDATA[ I&#039;m sorry to hear about the runaround you&#039;re getting.  It sure sounds like you&#039;ve spoken to a few rude people at CCF.  Which doctor did your ablation?  Please be persistent, even though it&#039;s frustrating.  It seems that many of us have to fight for answers, and fight for the attention we need in dealing with this condition.  I&#039;d probably talk to my EP too.  After my ablation, I couldn&#039;t get responses from my EP.  I could only communicate through his nurse.  She was great, but I kept getting told &quot;it&#039;s normal&quot; when I relayed my symptoms, etc.  Now I finally got confirmation last week that there are other things going on and I&#039;m not just crazy :)  I&#039;d even talked to my old cardiologist who referred me to this EP (cardiologist doesn&#039;t do ablations) and scheduled an appointment with him for follow up care.  I even contacted CCF and got an appointment in Nov. with Dr. Schweikert to get a 2nd opion.  After meeting with my EP last week, I cancelled the appointment with the cardiologist cause I feel so much better finally getting answer and getting the time I deserved with him.  I don&#039;t think you&#039;re expecting too much at all.    Where do you live?  Are there other EPs where you are that can perhaps help with your questions?]]></description>
            <dc:creator>Kathy</dc:creator>
            <category>AFIBBERS FORUM</category>
            <pubDate>Tue, 21 Oct 2003 17:39:06 +0000</pubDate>
        </item>
        <item>
            <guid>https://www.afibbers.org/forum/read.php?9,591,681#msg-681</guid>
            <title>Re: Kathy(Columbus)- followup OK?</title>
            <link>https://www.afibbers.org/forum/read.php?9,591,681#msg-681</link>
            <description><![CDATA[ Hi Kathy;<br />
<br />
Right now I&#039;m extremely upset after a conversation with Clinic. <br />
<br />
Friday, the person who is suppossed to be the assistant to my EP DOC told me she would get the appt. moved up.  Today I asked her for confirmation &amp; was told &quot;a guy&quot; from a certain desk would call me tomorrow.  When I asked if she got his name, she said &quot;if I got his name, don&#039;t you think I would have told you?&quot;<br />
<br />
Yesterday, I called the &quot;pacing lab&quot; as directed &amp; transmitted a crude EKG.  Was told rate was 106 ish(could be caused by flutter) &amp; 2 PAC&#039;S.  EP&#039;S assistant claims there were none.  Told her about the other report &amp; that just seemed to upset her.  Assistant said PAC&#039;S are normal-- she &amp; everyone has them.  I thought they could be a precursor to AFIB.  Anyone  know if PAC&#039;S lead to AFIB?<br />
<br />
I was told to go off Atenolol (25 mg) last Friday.  <br />
<br />
Suppossed to wait another week to go off Lipitor or longer?  Confused by what I&#039;ve been told by different people who respond at Clinic.  <br />
<br />
I suppose if I don&#039;t get satisfaction soon from Clinic about evaluation of ablation, I&#039;ll have to ask my regular EP.  Right now, I feel so stressed about trying to get straight answers from Clinic that I don&#039;t know what to do.<br />
<br />
Perhaps I&#039;m just expecting to much from such a bureacracy.  I&#039;m used to a great EP doc who is extremely supportive, attentive, &amp; reassuring.  Unfortunately, he&#039;s never done a pv ablation.<br />
<br />
But all in all, I guess I&#039;m better off. Unless there is some more flutter. <br />
<br />
Sorry to hear your ordeal isn&#039;t over yet.   I know how dissappointing it is when you take great risks for a cure &amp; then come out not cured.<br />
<br />
njb]]></description>
            <dc:creator>njb</dc:creator>
            <category>AFIBBERS FORUM</category>
            <pubDate>Tue, 21 Oct 2003 12:56:43 +0000</pubDate>
        </item>
        <item>
            <guid>https://www.afibbers.org/forum/read.php?9,591,674#msg-674</guid>
            <title>Re: Kathy(Columbus)- followup OK?</title>
            <link>https://www.afibbers.org/forum/read.php?9,591,674#msg-674</link>
            <description><![CDATA[ Hi!  Thank you for remembering me :)  I wore the 30 day event monitor and then a few weeks later wore the 24 hour Holter monitor.  My follow up appointment was last Thursday.  I had a wonderful appointment, because I got to talk to my electrophysiologist for about 1/2 hour and asked many questions.  Turns out that the event monitor did show some afib, but few events and only during the first couple weeks after my PVI ablation (on 8/4).  I&#039;ve been having a great deal of other arrythmias, totally new to me.  I told my doc that they mostly feel like the beat my heart makes right before it goes into afib.  He said that was exactly correct. I&#039;m having PAC&#039;s along with some atrial flutter and some sinus tachycardia.  He said I could go on drug therapy for the next 3-5 years and wait to have another procedure done (since ablation technology is changing and improving every day).  Or, I could go through another ablation.  This ablation would be an RF linear ablation with an 8mm tip.  I&#039;m not sure yet what I&#039;ll do.  I have a friend who helped me get an appointment at CCF in November.  I may just send my records and have them reviewed first for a 2nd opinion.<br />
<br />
I&#039;m surprised CCF doesn&#039;t prescribe the 30 day event monitor.  Mine caught a great deal of important information, especially the sinus tachycardia.  So, I highly recommend to anyone having an ablation that they wear the monitor a few weeks after the surgery.  It&#039;s a great way for the docs to see what&#039;s going on.<br />
<br />
I can&#039;t believe you&#039;ve not had a follow up visit yet.  Definitely push on that cause it&#039;s been almost 3 months since your surgery.  How have you been feeling?]]></description>
            <dc:creator>Kathy</dc:creator>
            <category>AFIBBERS FORUM</category>
            <pubDate>Tue, 21 Oct 2003 11:30:49 +0000</pubDate>
        </item>
        <item>
            <guid>https://www.afibbers.org/forum/read.php?9,591,591#msg-591</guid>
            <title>Kathy(Columbus)- followup OK?</title>
            <link>https://www.afibbers.org/forum/read.php?9,591,591#msg-591</link>
            <description><![CDATA[ Hi Kathy in Columbus--<br />
<br />
I think you were suppossed to see your doctor for a followup &amp; I was wondering how it went?  I had my ablation at Cleve. Clinic about 10 days before yours and am still waiting for a definate appt. for followup.  I had one for Nov. 19, but doc cancelled.  They&#039;re suppossed to reschedule me for<br />
Oct. 29, but I won&#039;t believe it until it actually happens.  <br />
<br />
I think it&#039;s really great that you are getting a 30 day event monitor(as you posted earlier).  I&#039;ve had them 2 or 3 times over the past 4 years &amp; wish the Clinic would prescribe them.  I guess I should just request one &amp; see what happens.  <br />
<br />
Anyway, hope reports are good.<br />
<br />
njb]]></description>
            <dc:creator>njb</dc:creator>
            <category>AFIBBERS FORUM</category>
            <pubDate>Sun, 19 Oct 2003 18:12:32 +0000</pubDate>
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