Ablation scheduled but having second thoughts... November 08, 2020 09:42PM |
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Re: Ablation scheduled but having second thoughts... November 09, 2020 02:28PM |
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NotLyingAboutMyAfib
I am 10 weeks out from my ablation and right now having had one is the single worst decision of my life. I had a very bad time in hospital - was there 6 days, $300K + in bills so better have good insurance, and I am in flutter as I type loaded up with flecainide, diltiazem and eliquis. Getting another ECV this week and EP wants to do 2nd procedure which I am scared to death of based on first experience. Right now my heart and body feel irretrievably damaged.
I had persistent AF but other than that didn't affect me much. You seem to be one of those that might be able to manage this following George's or Steve's protocols or some mix.
With all of that said, this ECV might put me in NSR and flutter or AF never returns - but not holding my breath. Even if that happens, I'm months to years from saying "good thing I had that ablation".
Re: Ablation scheduled but having second thoughts... November 09, 2020 08:50PM |
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Re: Ablation scheduled but having second thoughts... November 09, 2020 09:58PM |
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Re: Ablation scheduled but having second thoughts... November 10, 2020 04:26AM |
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susan.d
I was sitting doing absolutely nothing (unlike Friday when I was digging ditches for irrigation and sweating like a pig) when suddenly tonight out of the clear I went into tachy.
Re: Ablation scheduled but having second thoughts... November 10, 2020 03:23PM |
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Re: Ablation scheduled but having second thoughts... November 10, 2020 03:43PM |
Registered: 4 years ago Posts: 38 |
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Jeff W
Hi Ingrid,
You do sound conflicted still, maybe not fully ready?
Maybe a round of rededication to a cleaner diet, religious hydration and possibly no alcohol might be the next step? Really honing in on your triggers can be difficult but a very productive exercise. I would suggest starting with a 'clean slate' by just eating only natural and organic foods (no products with suspect additives) and no additional supplements (or alcohol). See if you can stabilize or reduce your afib first at this 'clean' baseline. I have been working with this for 15 years and making good progress. I likely will be needing an ablation at some point, but I feel the wait for improved treatments is wise; like Rocketritch was implying: you will know when it is time...
Just my 2 cents. And may you find calm and peace in the journey many of us are on - so hang in there. Even though it is frightening, there is much to learn about ourselves and our health through having afib that will ultimately be useful in our lives - if we are thoughtful and don't panic... I know it's easier said than done, but that seems to be the road of life we are all on. You are not alone...
Sincerely, Jeff
Re: Ablation scheduled but having second thoughts... November 10, 2020 03:46PM |
Registered: 4 years ago Posts: 38 |
Quote
NotLyingAboutMyAfib
I am 10 weeks out from my ablation and right now having had one is the single worst decision of my life. I had a very bad time in hospital - was there 6 days, $300K + in bills so better have good insurance, and I am in flutter as I type loaded up with flecainide, diltiazem and eliquis. Getting another ECV this week and EP wants to do 2nd procedure which I am scared to death of based on first experience. Right now my heart and body feel irretrievably damaged.
I had persistent AF but other than that didn't affect me much. You seem to be one of those that might be able to manage this following George's or Steve's protocols or some mix.
With all of that said, this ECV might put me in NSR and flutter or AF never returns - but not holding my breath. Even if that happens, I'm months to years from saying "good thing I had that ablation".
Re: Ablation scheduled but having second thoughts... November 10, 2020 03:54PM |
Registered: 4 years ago Posts: 38 |
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susan.d
Ingrid, have you tried flecainide? It stopped my af cold turkey for 5 years straight. I speculate I wouldn’t have had af five years later if it wasn’t for getting af while hooked up to two chemo drug IVs at the time. At least flecainide can buy you time to think about an ablation after there is a successful covid19 vaccine.
Re: Ablation scheduled but having second thoughts... November 10, 2020 04:23PM |
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Re: Ablation scheduled but having second thoughts... November 10, 2020 07:23PM |
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Re: Ablation scheduled but having second thoughts... November 10, 2020 07:29PM |
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Joe
FWIW i had zero side effects taking Flec but then again i only took it for, i think, about one week BID and then converted. After that i took 50mg only once a day at night for some months. I did stop for a few weeks in between but had an episode so i just take 50 mg every second day. Don't even know if that is effective pharmacologically but it may help with my mind?
Re: Ablation scheduled but having second thoughts... November 10, 2020 10:57PM |
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Re: Ablation scheduled but having second thoughts... November 19, 2020 07:45AM |
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Re: Ablation scheduled but having second thoughts... November 19, 2020 08:44AM |
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strongHeart
Only recently have put myself back on the 'list' (it could take 2 years to get to the top; australia's public health system, with covid delays). But I have an excellent reputable cardio doc who knows my reticence to drugs and surgeries: I made a deal with him that if i have fewer than 3 episodes this year, I won't go thru with ablation, but if i have more than 3, I will do it. I've changed my relationship to my body enormously in the last 4 years (I'm way kinder & gentler, tho still v fit) and I figure I can put up with 3 episodes a year without over impact on my loving life... but otherwise, bring on the ablation.
Re: Ablation scheduled but having second thoughts... November 19, 2020 03:27PM |
Registered: 10 years ago Posts: 2,513 |
My local ep told me to stay clear of taurine. It has helped some here but I read stories here the past 16 1/2 years how taurine was an af trigger for some readers.Quote
NotLyingAboutMyAfib
I'd look for triggers and see what taurine, ribose, magnesium, potassium might do for you. Maybe even flecainide PIP as your heart sounds structurally sound.
Re: Ablation scheduled but having second thoughts... November 20, 2020 02:55PM |
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Re: Ablation scheduled but having second thoughts... November 23, 2020 02:46PM |
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NotLyingAboutMyAfib
Jackie -
What are your thoughts on l-citrulline compared to l-arginine ?
From what I've read the former is superior
Re: Ablation scheduled but having second thoughts... November 23, 2020 03:51PM |
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Re: Ablation scheduled but having second thoughts... November 23, 2020 08:04PM |
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Quote
NotLyingAboutMyAfib
Jackie -
What are your thoughts on l-citrulline compared to l-arginine ?
From what I've read the former is superior
Re: Ablation scheduled but having second thoughts... November 29, 2020 04:12PM |
Registered: 4 years ago Posts: 38 |
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strongHeart
So it's 9 days since you posted, I'm curious whether you went ahead Ingrid?
I'm 50, i've been an elite athlete, first episode when i was 30, Paroxysmal AF, averaging AF every 2 months; episodes last at least 2 nights for me. I follow similar to George's protocol, and have been thru years where I had to have regular cardioversions, but now am starting to self-revert to NSR again (YAY). Only recently have put myself back on the 'list' (it could take 2 years to get to the top; australia's public health system, with covid delays). But I have an excellent reputable cardio doc who knows my reticence to drugs and surgeries: I made a deal with him that if i have fewer than 3 episodes this year, I won't go thru with ablation, but if i have more than 3, I will do it. I've changed my relationship to my body enormously in the last 4 years (I'm way kinder & gentler, tho still v fit) and I figure I can put up with 3 episodes a year without over impact on my loving life... but otherwise, bring on the ablation.
Wishing you NSR and health, either way!
Re: Ablation scheduled but having second thoughts... November 29, 2020 11:41PM |
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Re: Ablation scheduled but having second thoughts... November 30, 2020 09:41PM |
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