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Do you ever feel like Afib is just around the corner?

Posted by DavrosT 
Do you ever feel like Afib is just around the corner?
March 01, 2019 09:03AM
Hi all,

Long time no post. Had ablation 20 months ago (successful) and all I've had barring a 2 hour episodes a week after my ablation is ectopics. These can be quite regular and have become more so since I started to have new-found gastro issues a year ago.

Mainly bloating, gas, wind, discomfort which has become chronic. I began to change my diet quickly as I was concerned of the effects on my afib.

Fast forward to today, I am GF, dairy and wheat free. Have been almost a year but for the past few weeks my heart activity seems to have gotten worse. Almost to the point where I feel like an afib episode is just waiting to happen.

Any little thing gives me ectopics - walking too fast, wind/bloating, too much time between meals, sleeping at certain angles/on certain sides. But the past 2 weeks I've had a few episodes that last 3-5 seconds where my heart does a strange 'quivering' before trying to kick off afib and then settles into an increased HR.

Has this happened to anybody so soon after an ablation?

I'm concerned that my scarring has healed too well and I may get a breakthrough soon. It's almost been MORE irritable since my ablation. Obviously, my stressing won't be helping but it's hard not to when I can't pinpoint what's causing the upswing in irritation.

I'm seeing my GP on Monday for a number of other health issues but I think I'm going to ask for a new referral RE: heart problems.
Ken
Re: Do you ever feel like Afib is just around the corner?
March 01, 2019 09:32AM
Ectopics were an issue pre and post ablation for me. My ablation was 11 years ago and I didn't know about this site until a couple years after. That's when I started supplementing with Mg, K and Taurine. The ectopics almost completely went away, maybe one 2 second blast once a month now. So, if you aren't supplementing with the magic three, give it a go. If you are, then maybe someone else can make a suggestion. I should add that in general, I am not a supporter of supplements, but this site move me to give it a try. However, I am still skeptical about thousands of other supplements.
Re: Do you ever feel like Afib is just around the corner?
March 01, 2019 10:04AM
Hey DavrosT thanks for the inquiry and welcome back.

It is not uncommon during certain phases of PAF (paroxysmal AFIcool smiley for a person to have what appears to be regularly spaced or seasonal-seeming triggering. Over the course of one’s long term gradual progression of the disease it will usually go through a number of such phases over time. That phenomenon you describe can also manifest as this; you have a new AFIB episode and then it seems like your heart has reset and feels rock solid for a decent period of time and you feel almost immune to any hiccups or recurrences of AFIB until gradually you notice an increase in ectopic beats, perhaps leading to short runs of ectopy and the tension waiting for the dam to break seems to build up until ... BAM ... another episode and the cycle repeats itself.

I went through a phase like that for about 7 to 8 years during my gradual progression from rare sporadically short-lived episodes in the beginning of my AFIB ‘career’, toward eventual conversion of increasingly frequent and longer duration PAF episodes until it all suddenly flipped into full time 24/7 aggressive symptomatic persistent AFIB after 16 years of doing my level best at managing the beast naturally and with medications when needed.

But the scenario you describe, DavrosT, maybe a bit different issue and I need to know a little more. Was this your first ABL 20 months ago, and who did the procedurec and what kind of AFIB ABL did you have done? And you mentioned some weekly 2 hour breakthroughs you had post ablation I think you implied. How frequently post ablation have you had any breakthroughs of actual arrhythmia? (I.e. AFIB, AFlutter or ATachy), not just ectopy which does not count in this equation.

Roughly how many, if any, actual recurrences of longer than 30 seconds duration have you had the past 20 months, starting AFTER the blanking period?

If you have had any actual breakthroughs past the blanking period, and even if you had increasing AFIB/Flutter activity during the last month of the three month blanking period, then this sensation of increased ectopic activity with an increasing sense of the dam about to break could just be your signal that you likely may need a follow-up procedure to button down a few loose screws. Even after an elite expert ablation it’s very possible that a few sub-clinical remnant triggers that we’re not quite mature enough during your first procedure to readily reveal themselves to the EP when he or she was trying to elicit any more mischief during the final phase of your index ablation. Not infrequently, a few such immature triggers can remain hidden due to the added suppression effect from anesthesia, or because a less experienced ablationist simply was not looking for them in all the right places.

In any event, if you have had any actual breakthroughs of AFIB/AFlutter since the end of the eighth week of the 12 week blanking period, this increased instability may well indicate a need for one more tune up with an expert ablation EP to solidify durable NSR for you.

If you do get any actual breakthrough in the coming months, then I’d suggest to get this fixed sooner rather than later. However, be very discriminating in your choice of EP to perform this second ABL and don’t automatically assume the EP who did your first ABL is fully capable of putting the lid on the kettle long term during a follow-up ABL. Unless you already chose an elite level operator who performs a good number of persistent and LSPAF cases routinely and with good success, thus indicating he/she should be able to address whatever your heart presents to them.

Chasing down potential atypical left Atrial flutters can definitely stretch the comfort zone of those EPs who typically perform only ... or mostly .... just a standard PVI-alone or PVI + LAPosterior wall-Iso, anatomical-only index ablation ... and who may not be so skilled or comfortable at doing real-time electrophysiological sleuthing tracking down unique active triggers or flutter circuits during an ablation and who, thus may well have missed even obvious Non-PV triggers too during the index ABL.

Best wishes!
Shannon



Edited 2 time(s). Last edit at 03/01/2019 10:45AM by Shannon.
Re: Do you ever feel like Afib is just around the corner?
March 01, 2019 11:15AM
Hi Shannon,

As always, thanks so much for your detailed and comprehensive response - always great to have your input.

Yes, first ablation was 20 months ago - June 2017 and came 4 months after my diagnosis in Feb 2017 of PAF. It was my 2nd trip in 5 weeks to A&E department. It righted by itself on both occasions. First time I rode it out overnight at the hospital, 2nd time they diagnosed quite quickly and sent me home. It had resolved overnight.

My first (and, so far, only) cryo-balloon catheter ablation was actually carried out by Dr Derick Todd at the Liverpool Heart and Chest Hospital here in the UK. I am led to believe that Dr Todd is one of the best in the country and the LHCH is highly respected throughout Europe. Just FYI, if anybody wants to take a look into him (https://www.dailymail.co.uk/health/article-5808995/Meet-best-heart-rhythm-surgeons-Britain.html / [healthunlocked.com]). He did at one time have a website but I can't seem to find this.

The ablation was considered a great success and in my outpatients letter to my GP/family Dr, he said that he couldn't specify as to the long-term prognosis of somebody having undergone ablation at the age of just 36 but said he expected me to enjoy a minimum of 5 years problem free.

I can say for certain that I've not had any actual 'breakthroughs' since that single 2-hour long episode 1 weeks post ablation.

All I've had is a far bit of ectopic activity and more recently that feeling that you put very succinctly - the dam feels like it's about to burst. It hasn't yet (touch wood), but heart activity in the past few weeks hint at a heart that is very irritated.

I'm certainly planning on at least seeing Dr Todd again as soon as possible. I'd like to get this looked into asap. I have a Kardia device but it's hard to catch when these things typically only lasts for seconds at a time but I do usually take a single ECG before bed each night and I regularly monitor my HR.

Currently, I am taking Ramipril for high BP (although my new NHS family doctor thinks I've been on a seriously low dose).
I've also been on Sustanon injections for 8 weeks, along with 0.5mg Anastrazole every 5 days (both).
I take cetirizine hydrochloride for what appear to be allergies.

In answer to the question posed by Ken too - currently supplementing 2000mg of each Taurine/L-Arginine, 200-300mg magnesium daily. I haven't actually supplemented potassium in a while but I've ordered some today.

I should point out that the reason I'm taking Sustanon injections is because one of my specialists is invesigating me for autoimmune disorders and initially prescribed my thyroxine. This did nothing for me but knock my Free Testoserone levels out of whack, so I'm having to try to get that back under control too!

I've had a quick research re: testosterone and from what I can gather, low T can trigger afib. Mine is particularly high right now, so don't think there's any concerns there!
Re: Do you ever feel like Afib is just around the corner?
March 01, 2019 12:44PM
Hello DavrosT - With all three of my ablations ....original in 2003 and then 2014 and 2015... I didn't have problems post ablation with ectopy/PACs... I did go right into AF after the first ablation prox. 3 months later... and with the 2014 ablation which was for flutter... I did have repeat flutter issues (hence) the last ablation... and I attribute the general 'calmness' to a very consistent intake of magnesium and mostly dietary sources of potassium although depending if that seems low, I supplement with potassium as well. As I age, my food quantity intake is relatively small, so it becomes a challenge to meet optimal daily intake.

Be sure you are pushing your magnesium to just below the bowel tolerance levels. It's easy to deplete magnesium and your supplemental dose is quite low.

Also I have read various comments that indicate arginine and the conversion to NO might be too 'stimulating' in some individuals. You may want to either stop the arginine or cut back significantly to see if you notice a difference.

Best to you,
Jackie
Re: Do you ever feel like Afib is just around the corner?
March 01, 2019 01:48PM
Hi Jackie,

Thank you for replying.

I'll definitely start upping the Magnesium and I'll start on a high dose of potassium as I doubt I get enough at the moment. Will ease off the arginine for a while too, to see how I feel.

Thanks again!

Dave T
Re: Do you ever feel like Afib is just around the corner?
March 01, 2019 03:07PM
DavrosT - Wait on the potassium supplements ....because... if you are significantly low in IC Mg... then adding too much potassium before your IC Mg is optimized can cause a shortened refractory period... (PAC type activity)...

Focus on consuming more potassium-containing foods gradually - at least at first - while you increase the Mg. I prefer to be cautious and conservative - at least initially...

Jackie
Re: Do you ever feel like Afib is just around the corner?
March 02, 2019 04:37PM
I have! Thanks for your msg.

Supps came this morning, a few months worth but after your message I've been and picked up some bananas and a few alternative potassium rich foods.

Slow but steady.
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