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Long post, any help is appreciated. Young Affiber - new diagnosis, had it for many years

Posted by beardman 
Maybe try substituting the PowerAde fluid volume with something like Waller Water. It's magnesium bicarbonate and the recipe for it is found on this site. Just search for it. You can also add low-sodium V8 for the potassium if you wish. My post workout rehydration is a 12oz can of LSV8 followed right away by 16oz of WW. I figure the acidity of the tomato juice cancels the alkalinity of the WW nicely. I then switch to plain bottled water for the remainder of the day (probably at least another 64 oz). I, too, steer hydration by urine color. Straw color is good. You don't want dark yellow or completely clear.

Another formula for quick-uptake hydration that I use is seltzer water with a splash of orange juice. I find that doesn't drop the acidity in the stomach given the carbonic acid in the seltzer and citric acid in the OJ, so it finds its way to the small intestine right away. I can feel the pyloric valve begin opening after about 5 minutes after ingestion, and within 10 to 15 minutes any "cotton-mouth" sensation begins to fade. I often do this at night as I, too, have a tendency to mouth breathe while sleeping which is disastrously dehydrating given the increased fluid volume in the upper torso due to the prone position and thus exhalation of very moist breath.

An important thing to remember about just consuming pure water is that it dilutes the stomach acid and the stomach won't empty until the pH recovers. Also, the small intestine can't absorb pure water until its tonicity is enough to create a gradient across the cell membranes and "push" its way in. That's what the sports drinks try to accomplish by adding sugar and salt but, unfortunately, they also add lots of other nasty stuff like food coloring and brominated vegetable oil.
I just wanted to reach out to say thank you so much to everyone for their advice and insight.

I had previously looked into the Buteyko Breathing technique, but had not really made it a priority. Since I am going to keep my supplements static over the next month I figure I’ll concentrate on reading and researching breathing this month. The thought of taping my mouth shut terrifies me a bit, but I’ll get over it.

I will check out the Weller water, but things like juice and V8 are off the table with the Keto intake.
Beardman:

Getting back to the Original Post, of the 3 medications Rx'd by the Dr. I think the Diltiazem makes the most sense, at least during an Episode. Try to manage AFIB naturally is a noble concept, and I applaud you you endeavoring this. You seem a good candidate to try this usually uphill and often unsuccessful battle, but it seems that if ones AFIB HR is going up as high as 200, then this needs to be managed with Rate-Control Therapy. I saw that you indicated that you were Asymptomatic, but having high HR's for a prolonged period of time is unnatural and still impacts the body is many ways. There are many of us AFIB'ers that just use Medications during Episodes, and then do the best we can to maintain NSR naturally when we convert back.

As for the issue with Remodeling, Yes you have already Remodeled, but there is also something called Reverse-Remodeling. The longer you can maintain NSR, the more the remoldeling from the previous AFIB can be reversed, at least partially. Momentum is important in AFIB management. The saying "AFIB begets AFIB" is true, but maintaining NSR, also begets NSR. This is why minimized the length of AFIB episodes is important. Taking Flecainide just during Episodes may help you to shorten your length of time in AFIB.

The good thing is that is sounds like you have already turned the tide of this AFIB condition on your own Naturally.
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The Anti-Fib
Beardman:

Getting back to the Original Post, of the 3 medications Rx'd by the Dr. I think the Diltiazem makes the most sense, at least during an Episode. Try to manage AFIB naturally is a noble concept, and I applaud you you endeavoring this. You seem a good candidate to try this usually uphill and often unsuccessful battle, but it seems that if ones AFIB HR is going up as high as 200, then this needs to be managed with Rate-Control Therapy. I saw that you indicated that you were Asymptomatic, but having high HR's for a prolonged period of time is unnatural and still impacts the body is many ways. There are many of us AFIB'ers that just use Medications during Episodes, and then do the best we can to maintain NSR naturally when we convert back.

As for the issue with Remodeling, Yes you have already Remodeled, but there is also something called Reverse-Remodeling. The longer you can maintain NSR, the more the remoldeling from the previous AFIB can be reversed, at least partially. Momentum is important in AFIB management. The saying "AFIB begets AFIB" is true, but maintaining NSR, also begets NSR. This is why minimized the length of AFIB episodes is important. Taking Flecainide just during Episodes may help you to shorten your length of time in AFIB.

Totally agree

My Afib runs have been less severe and more spaced out since i started chewing 3/4 of a 150 mg Propafenone pill with a big glass of water about 5 min. after the start of an Afib.......after doing this it rarely runs on for more than an hour and normally converts by the 40-50 min. mark like clockwork.
Call it what you may, distrust, fear, thickheadedness, but I am going to do everything within my power to stay off the pharmaceuticals. I am viewing this as a symptom rather than an issue itself.

I am really aiming on finding the root cause of the problem which seems to be a chemical imbalance. I think now that I am aware of what was happening previously in my life when my heart was racing, etc. I will be much more in tune with my NSR.
Wolfpack - A major health benefit of the alkaline WW is just that… alkalinity to keep tissues healthy as an acidic tissue pH helps support a variety of serious health issues. This is not blood pH which is must be kept in a narrow range.

When foods are metabolized, they form either acid or alkaline ash residues ranked on the specific scale offered by Theodore Baroody, author of "Alkalize or Die". He published a chart of common food ranges from highly acidic to highly alkaline to help people maintain good health and that method has worked well to regain and maintain health in those who are careful to observe. Remember - this is 'tissue pH."

FYI ... veggie juice on the food alkalinity chart is 6.5.... All tomato...is slightly more acidic at 4.5. (with 4.0 being neutral)

Example... lemons which taste very acidic, metabolize to a (healthy) high alkaline ash pH content of 7.5 whereas examples of high acidic ash... would be meat, carbonated fizzy drinks, flour and sugar with pH of 1.0.

Alkalinity is very calming. Many practitioners of nutritional medicine, functional medicine and naturopaths support the goal of tissue alkalinity to achieve and maintain health. In the book by Jerry Tennant MD Healing is Voltage... the term, 'voltage'... stands for pH. He goes into great detail about how he cured himself and, now, many patients with this focus.

[www.myph11.com]

Jackie
Saw this article from the Edgar Cayce (1877-1945) Health Database:

"From the Edgar Cayce readings' point of view, a diet should be slightly alkaline-reacting or consist of about 80% alkaline-forming foods and 20% acid-forming in nature. ....from a purely technical, medical point of view, as too much acid-forming could be a drain upon the fixed base or so-called alkaline reserve of the body. Fortunately the body has a marked ability to protect itself from excess acid formation."

"Sulfur, while naturally present largely as sulfur-containing amino acids in proteins, is oxidized on use by the body to form sulfuric acid. Thus high-protein foods are generally acid-forming."

"Citrus fruits, on the other hand, contain citric acid and acid potassium citrate. Their citrate radicals are completely oxidized in the body to carbonic acid (lost as C02), leaving behind potassium, which is one of the bases of the body. Hence, a great many "acid" fruits and juices are base-forming in their body use."

Highly recommended orange juice mixed with some lemon.
Edgar Cayce? Really?
While i like proven science for guidance i wouldn't mock Edgar Cayce. I've read a lot of his dietary recommendations relating to individuals and it makes sense to me (bio-chemical individuality). Don't think anybody could go wrong following his general dietary recommendations.

If you have anything to back up that Edgar Cayce was a bulltish artist (as you implied, Carey)- i'd like to know.
So, a rather strange occurance last night. I have been in NSR since Tuesday, was out all day with the family yesterday. Once I got home and sat down, I could tell something wasn’t quite right. I pulled out my Kardia device and confirmed I was out of NSR. While taking the ECG, I actually saw myself convert, I then went in and out of NSR two more times in the matter of a few minutes. I unfortunately stuck out of NSR which is where I am this morning as well, but just barely.

When I am out of rhythm I have no P wave (not sure ifs that the norm for everyone). Today though my ECG appears borderline to me as my bpm is around 70, still high, but not that high and I will get a few beats with a nice clean P wave as well.

Thank you again to everyone for the insight and advice. I really do appreciate all of the experience that everyone has to offer.
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hwkmn05
Adrenatone has a few of what is in Cortisol manager* in lower amounts. The C and B are virtually useless for mg amounts. Large doses of C, 3-5 grams, control adrenals also. I will get a list to compare later. Good start. Hope it works.

Hwkmn05, I am rereading everything this morning and think I might have missed your post. What are you referencing with the C and B items?

Also, does anyone have any suggested dosage recommendations for starting Potassium Gluconate powder?
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Joe
If you have anything to back up that Edgar Cayce was a bulltish artist (as you implied, Carey)- i'd like to know.

I implied nothing of the sort, and I don't need to provide evidence of anything. That falls to the guy making the claims.
I simply don't think a clairvoyant born in 1877 who had some theories on nutrition is a reliable source of information. I'm pretty confident we know a lot more now than he did in the first half of the 20th century.
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Carey
I'm pretty confident we know a lot more now than he did in the first half of the 20th century.

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Jackie
"Example... lemons which taste very acidic, metabolize to a (healthy) high alkaline ash pH content of 7.5"

get it now? (probably not)
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jpeters
get it now? (probably not)

Well, you're right because I don't know what point you're trying to make.

If you want to convince me of something, I recommend starting with credible, peer reviewed science, not clairvoyants from the 19th century. If you can't find credible science to back your thinking, then that's either because you're not making the effort to find it or it's simply not true. The history of science and medicine is littered with discarded theories that made perfect sense at the time.
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Carey

get it now? (probably not)

Well, you're right because I don't know what point you're trying to make.

geez...okay. The point was that Edgar Cayce had said something similar to Theodore Baroody (Jackie's post) in pointing out the importance of alkaline diets, and noting that lemons metabolize to high alkaline ash. Cayce recommended lemons as an alkalizing vs acidic food way back in the early 20th century. The post had nothing at all to do with the scientific validity of either Baroody or Cayce.
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Carey
If you can't find credible science to back your thinking, then that's either because you're not making the effort to find it or it's simply not true.

People who believe that clearly don't understand science.



Edited 2 time(s). Last edit at 06/11/2018 01:44AM by jpeters.
"Needless to say, I was not impressed he hadn't stipulated that years prior. "
Doctors arent trained in nutrition because there is no $$$ in supplements, only meds.
hwkmn05 said: Doctors arent trained in nutrition because there is no $$$ in supplements, only meds.


This is changing... fortunately, and thanks to organizations of forward-thinking physicians who are promoting advanced education in the practice of nutritional medicine such as The Institute for Functional Medicine, ACAM, A4M and similar. These are extensions of what Naturopaths and holistic physicians were using decades ago...now becoming extremely popular because nutritional and lifestyle interventions do work. The fundamental science has always been there.

Certainly Rx meds are needed for specific interventions and to save lives.

The missing link of finding the true source of the underlying problem which is often rooted in nutritional deficiencies which unbalance biochemistry and can negatively influence genetic functions is now being recognized and promoted and so many patients are benefiting.

Shannon can attest to the popularity of the A4M meetings he helps with annually when practitioners flock to hear the latest in functional-type medicine approaches.

Here in my area, The Cleveland Clinic opened the Center for Functional Medicine which is a collaboration between Cleveland Clinic and the Institute for Functional Medicine (IFM), led by Mark Hyman, MD who is well-known for his successes in nutritional interventions that helped patients get well and eliminate Rx drugs. They aren't going broke because they aren't prescribing drugs. In fact, the appointment wait time for new patients can be considerable as the living proof of success becomes well known.

Jackie
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Jackie


Shannon can attest to the popularity of the A4M meetings he helps with annually when practitioners flock to hear the latest in functional-type medicine approaches.

Wow, Shannon sure gets around.
Edgar Cayce also was big on apples "as a way to alkalize one's system." [cayce.com]

Apple peels are a great source of Rutin and lots of other nutrients:

[www.livestrong.com]

"Apple peels are bursting with antioxidants. According to Cornell University’s Chronicle Online, apple peels are especially rich in powerful phytochemicals like flavonoids and phenolic acids. These compounds work to help keep your cells clear of destructive molecules called free radicals. Free radicals attack and damage your cells and may contribute to the development of a wide range of diseases. Eating a diet rich in foods that contain generous amounts of antioxidants may help to protect you from dangerous health problems like cardiovascular diseases and diabetes."
Beard, sorry, that was hurried. Vitamins B and C was minimal in those supplements you mentioned. Not knowing my cortisol levels were off, I was on a daily dose of 4000 mg of Vit C for 2 years and stayed in NSR. For some reason they ceased to keep me in NSR, going out 12 times in 2 months. After an adrenal test and regimen of Cortisol control, NSR since then for 1 year. I dont take Mag or Potassium daily, but Vit C as an anti inflammatory is a staple.
Jackie, I hope I didnt give the impression that I am anti med? You are correct that Rx meds are useful in saving lives, mine included. Though I have never been on a standing med for afib over 8 years, I certainly have depended on them as a PIP to work 100% over a dozen times. My post stands however, there is no money in supplements for doctors who have little and wrong training in nutrition, still suggesting Oleo over butter, to list one of several erroneous suggestions. They are still trained 99% to prescribe meds, no matter what our opinions are. Great to hear about CC and others promoting good health thru diet and lifestyle, but that is the exception not the norm.
Not a fan of clairvoyants or Cayce, but Im guessing he came along shortly after the Allopaths, ("Allo": Opposite Healing"), brought their new techniques to modernize healing. At one time some were called Witches for using certain herbal remedies. We all may cringe if we knew the absolute truth of how certain herbs were discovered or proven to work on specific ailments.
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hwkmn05
Beard, sorry, that was hurried. Vitamins B and C was minimal in those supplements you mentioned. Not knowing my cortisol levels were off, I was on a daily dose of 4000 mg of Vit C for 2 years and stayed in NSR. For some reason they ceased to keep me in NSR, going out 12 times in 2 months. After an adrenal test and regimen of Cortisol control, NSR since then for 1 year. I dont take Mag or Potassium daily, but Vit C as an anti inflammatory is a staple.

Yes it seems quite the same with me with the cortisol situation....since trying Phosphatidyl Serine 400 mg. a day about 5 days ago to effect my cortisol levels i have had amazing success....no pac's or even the threat of an ARR...of course we all know a few days of success on something means little to nothing but it is noteworthy along with the d-ribose i have been taking for a few weeks.....having said this i have just contacted shannon to get the ball rolling on a Natale ablation set for near years end so that goes to show you how much confidence i have in this new found success that i have had a few times before that never cont. past about 2 weeks...but i will update....i have had huge amounts of periodic stress over the years through high stakes gambling (i call it sports investing) so maybe this could be a break through since all my heart markers have come back excellent....we'll see if not i have da Vinci in Austin waiting in the wings to paint a beautiful picture on my heart.
BTW i have tried taking in huge amounts of vit. c to no avail....so again another example. of good for 1 and not for the other we endlessly see....but good luck with the vit c 05.



Edited 2 time(s). Last edit at 06/12/2018 05:05PM by vanlith.
Yes it seems quite the same with me with the cortisol situation....since trying Phosphatidyl Serine 400 mg. a day about 5 days ago to effect my cortisol levels i have had amazing success....no pac's or even the threat of an ARR...of course we all know a few days of success on something means little to nothing but it is noteworthy along with the d-ribose i have been taking for a few weeks.....having said this i have just contacted shannon to get the ball rolling on a Natale ablation set for near years end so that goes to show you how much confidence i have in this new found success that i have had a few times before that never cont. past about 2 weeks...but i will update....i have had huge amounts of periodic stress over the years through high stakes gambling (i call it sports investing) so maybe this could be a break through since all my heart makers have come back excellent....we'll see if not i have da Vinci in Austin waiting in the wings to paint a beautiful picture on my heart.
BTW i have tried taking in huge amounts of vit. c to no avail....so again another example. of good for 1 and not for the other we endlessly see....but good luck with the vit c 05.[/quote]

vanlith, as was my success after nearly signing up for the ticker carving with weekly PVCs and afib for a few months. After 60 days, I announced it felt like I never had Afib before. 2 cortisol controls in the morning and 2 at bedtime seemed to keep things smooth and still are 1 year later. I believe the high dosage of C may have worked to control adrenals for a time, but other factors conflicted, not certain. The ultimate test would be to stop all supplements and see if it returns. Being 100% sober may be helping also.
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hwkmn05
Beard, sorry, that was hurried. Vitamins B and C was minimal in those supplements you mentioned. Not knowing my cortisol levels were off, I was on a daily dose of 4000 mg of Vit C for 2 years and stayed in NSR. For some reason they ceased to keep me in NSR, going out 12 times in 2 months. After an adrenal test and regimen of Cortisol control, NSR since then for 1 year. I dont take Mag or Potassium daily, but Vit C as an anti inflammatory is a staple.

Thanks for the info, at this point, what’s one more vitamin to take. . .

Any specifics for the vitamin c like there are with the magnesium?
hwkmn05 - I understood your comment.

I am fully aware of the lack of nutritional education for physicians as long ago, I had the unfortunate experience of been prescribed meds several times rather than be appropriately tested for the symptoms I was exhibiting and had unnecessary surgeries as a result. I suffered significantly. Having survived, I've been a 'health awareness advocate' for a very long time to alert others so they can try to avoid those medical blunders.

Nourishing the body with the essential nutrients is fundamental to health and longevity.

Best to you,
Jackie
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hwkmn05
Not a fan of clairvoyants or Cayce, but Im guessing he came along shortly after the Allopaths, ("Allo": Opposite Healing"), brought their new techniques to modernize healing. At one time some were called Witches for using certain herbal remedies. We all may cringe if we knew the absolute truth of how certain herbs were discovered or proven to work on specific ailments.

Got to be careful no matter who you consult. It's results that count.

If Casey were alive today i'd consult him for certain after my disappointing experience with the cardiologist who is well regarded by his medical peers. I'm not a fan of cookie cutter medicine even though it has it's place.
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Jackie
hwkmn05 - I understood your comment.

I am fully aware of the lack of nutritional education for physicians as long ago, I had the unfortunate experience of been prescribed meds several times rather than be appropriately tested for the symptoms I was exhibiting and had unnecessary surgeries as a result. I suffered significantly. Having survived, I've been a 'health awareness advocate' for a very long time to alert others so they can try to avoid those medical blunders.

Nourishing the body with the essential nutrients is fundamental to health and longevity.

Best to you,
Jackie

Sorry to hear that. Most share some misfortune with wrong diagnosis or none. Good to hear of your advocacy. Thank you.
Beard , If you dont mind the price, the best of the best is Liposomal liquid. Maybe 3-4 times the cost of capsules. I usually stay away from the box stores or membership outlets for supplements, what I call "dirty" vitamins. Stick with brands such as NOW, Divinci labs, Thorne, Vital, Pure Encapsulation, and maybe a Solaray. Integrated Theraputics are makers of all my cortisol supplements.
So I have been on quite a few supplements since originally posting and though I would put them here for reference.

2 grams L-Argentine 3X daily
1 gram Vitamin C 3X daily
500mg Niavasc (Niacin) 1X daily
20,000 fu Nattokinase 1X daily
3 caps Adrenotone 3X daily
200mg DHA form Algae 3X daily
1 cap Vitamin D Supreme (5,000iu Vit D and 550mcg Vit K) 1X daily
3.75grams L-Carnitine 1X daily

I have discontinued my Taurine completely as when I ran out of it for a few days it appeared to let me kick back into rhythm easier (doesn't make sense to me).

I have made a bunch of other changes that I find to be impactful as well.
I lost about 30 lbs
I changing my diet to a Keto based vegetarian diet
I changed my supplements per the Natropaths recommendations
Concentrating on nasal breathing only (taping my mouth shut at night) thanks @GeorgeN

I have been able to maintain rythum approximately 60-70% of the time (confirmed via my Kardia reports). For me, that is huge compared to when I was first diagnosed. I was previously out of rhythm for 3-4 weeks at a time.

Karate is still the one thing that I can count on to kick me back into rhythm. Running almost always knocks me out of rhythm and from time to time I will still randomly kick out for seemingly no reason.

The one new symptom (possibly unrelated) has only started within the last two weeks. I have developed significant Sciatica pain in my right upper ankle area and numbness in my right foot. The pain is in the 8/10 neighborhood when standing for more than a few minutes, but is almost completely eliminated when sitting (except for a slightly numbness in the tip of my big toe). I have been going to the chiropractor regularly for the last few months to see the effect it would have on any vagal related Afib (no luck with that specifically for me). I spoke to them about the Sciatica and they seem to think it will go away with a few adjustments in the next week. I have never previously had any Sciatica pain and did not have any sort of acute event to trigger it. Does anyone else have any Sciatica related pain and is this somehow related? I have been doing a number of stretches to try to eliminate the pain and continue to workout and run despite the pain/discomfort, but it does not appear to be getting any better.

Thank you in advance for listening to my ramblings.

Joel
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