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Current Afib recommendations

Posted by LSulka 
Current Afib recommendations
February 09, 2018 11:44AM
Hi Everybody, rarely have time to visit much any more, but do want you to know that you continue to do a great service to all visiting Afibbers looking for solid research on the subject. Recently, I was diagnosed with "Diastolic Dysfunction" in the Left Ventricle and this was one of the first places I came to do my research. Found an article of summarized info in DD by Shannon (I believe) and found it extremely helpful.

Being gluten free has been highly beneficial in helping me stay Afib free. Which has caused to wonder what other dietary recommendations are you making. There is so much confusion among the experts including too much oil - even health oil is harmful, and also lectins and their harm to the gut. Are you still recommending the Paleo diet, or modified Paleo diet? I learn toward Mark Hyman's Pegan diet primarily.

Would love to hear from you regarding what's working and what's not - and in particular you, Jackie, who I have always found so knowledgeable and helpful.

Good health to you all!
Re: Current Afib recommendations
February 10, 2018 09:51AM
Hello Lois - Good to hear from you again, but sorry about the DD development. I think you're smart to be evaluating the current dietary trends. Check some of the recent, past posts by George N and his dietary discipline.

Current opinions indicate that organic, expeller-pressed, virgin coconut oil is good to use now that the focus is more on using fat for fuel. It's certainly easy, satisfying and tastes good. So the focus is on protein, healthy fat and low-sugar low-carb veggies and a modest amount of fruit.

Send me a PM and let's catch up.

Be well,
Re: Current Afib recommendations
February 11, 2018 09:14AM
Lois - Here's a link to a previous post on the importance of CoQ10 related to diastolic dysfunction Check out the many links for supportive info. [www.afibbers.org]

Also, this one links to a report published in Townsend Letter which is a great overview.


Edited 1 time(s). Last edit at 02/11/2018 09:17AM by Jackie.
Re: Current Afib recommendations
February 11, 2018 10:17AM
thanks Jackie. Here's a little history on my case and an update on what I am currently doing. I have done really well for more than ten years following my Classic Maze surgery in 2006 by Pat McCarthy from Cleveland Clinic who relocated to Chicago to set up a premiere' cardiac center in Chicago.

Through the years, I learned through my local functional medicine cardiologist and from specifically your case on afibbers.net the impact of food allergies including gluten intolerance and dairy and how they affect Afib. And, through the years, I have a few trips to ER about 2 hours after accidentally ingesting gluten. I use pill in pocket but when I have taken a full dose and it can't stop it, I go in for help. I also learned how this all affects the thyroid and can demonstrate it in my past blood work - the auto-immune state and how it interacts with the thyroid and sets off the heart.

So, for more than a year things have been going very well. As indicated, regular exercise and moving forward with my health. Then in Nov. 2017, I was at a brown bag luncheon and took a bottle of Kombucha and was sipping it when I suddenly felt something odd in my chest, like a lot of pressure. I immediately thought "gluten" but as I scanned the ingredients I realized I has just ingested 40+mgs. of caffeine from coffee bean ingredients, something that is not normally present in Kombucha. They usually use green tea and had not had any problems up to this point.

For the next 2 weeks, I couldn't see any pulse or blood pressure indicators telling me I had a problem. But on a Sunday morning I felt very SOB, so I went into to local ER and it was determined I was in congestive heart failure with a BNP of over 3200 - less than 100 is normal. I was educated on CHF and kept overnite and sent home with Rx's. I truly felt I was being sent home to die since no one offered a recovery prognosis.

A week later I had an ECHO that showed the heart was "normal" but DD in the LV - was moderate.

So I did what I do -began to learn everything I can about the subject. Remember, my cardiologist (who is now retired) has recommended a book to read by Stephen Sinatra, MD; I found it and re-read it and ordered his most current book.
So, right now I am doing pretty much every he recommends, just not using his supplements

I also visited the afibbers.net website and researched "diastolic dysfunction" and was so pleased to turn up Shannon's post and your comments and dialogue on DD.

Today, I continue to supplement daily per Sinatra; take beta blocker and fluid retention drug, BP drug - most of which is very low dose, I believe and haven't had any side effects yet. Exercise moderately daily and try to limit salt intake; however, I have noticed when I do occasionally take in more sodium, my heart doesn't seem to be working as hard as it did when I was first diagnosed. My new cardiologist staff indicated that they have see cases like mine reversed; and a quick check with Northwestern nurse who knows my case indicated a good prognosis that I could expect this not to shorten my lifespan, especially if I am careful with sodium, and you, Jackie, and I know especially if I re-supplement the body with the nutrition that washes out with the Lasix.

So here we are on the snowy Sunday. Looking forward to hearing from you. Hope your journey has continued to be a good one.

Re: Current Afib recommendations
February 11, 2018 12:20PM
Hello again, Lois. Thanks for going into your history and the recent details which are certainly of significant concern but I'm so relieved to read that you are improving and the encouraging comments from the nurse. Glad you are well-versed with the background and please do focus on the research by Dr. Langsjoen in that reference list.

Just to clarify, while I did test positive for a gluten sensitivity many years ago and did go GF as a result, I didn't have any severe reactive responses. Without the test, I'd not have known. I also tested positive for leaky gut syndrome (LGS) so most likely, the two issues contributed to various reactive responses behind the scenes. The LGS was resolved many years ago. My first afib event was May 1995 and my first ablation Natale ablation in 2003 (Cleveland, OH) lasted for 11 years. Then, I began to have breakthroughs which were mostly A-flutter and those were extended duration and high heart rates so resulted in many Electrocardioversions and a total life disruption so I quickly I had the second Natale ablation (this time in Austin TX), in August 2014 followed by a touchup in April 2015 (Austin) and have been stable since then... thankfully!!!

I’m hoping for you that with time and enough of the supportive benefits of the CoQ10 and your other protocols, your DD will be classified as very minor or resolved. And... Yes… become a diligent label reader if you consume anything you didn’t make from scratch.

Re: Current Afib recommendations
February 11, 2018 12:40PM
Good to hear your update. Have wondered through the years how you were doing. It's not what the professionals tell me, it's what they avoid telling me that most concern me. When I went to Northwestern in 2006 I was in cardiomyopathy with an ejection fraction of .18. Four days later following the Maze surgery my EF was 50+. Dr. McCarthy follows my case annually through a questionnaire, as he does all his former patients. I was pleased that he was pleased enough with my progress to have his nurse assistant give a personal call of congratulation. That fact, keeps me working hard, but not too hard.

Jackie, from what you said, DD does sound reversible. I can't wait until May for a re-check and I plan to have the BNP blood work done again to see my progress. I must say, I was in shock with the the news of a entirely new health issue, CHF, I am pleased that I am still competent to educate myself and evaluate information on a new dx. By the way, my internist said he has seen the BNP numbers reverse. That is huge. Just so glad there was no injury to the heart.

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